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  1. adambeyoncelowe

    Weird NHS ME clinic referral form

    My guess is that they ask this because older studies have claimed those who attribute their illness to a solely physical cause won't recover. It's an old idea.
  2. adambeyoncelowe

    UK benefits advice: Universal Credit and limited capability for work

    Understood. Thanks. The CAB seems the best way to go. Perhaps if you have any evidence to 'prove' your limitations, too, like a report from an OT, that might help.
  3. adambeyoncelowe

    UK benefits advice: Universal Credit and limited capability for work

    You're self-employed, so technically you can charge whatever you want, even nothing. Couldn't you add six hours of pro bono work, or virtual volunteering, in somewhere? It seems odd that they specify you should earn a specific amount. (My response would be, 'I'll charge it if you pay it.') The...
  4. adambeyoncelowe

    Suggest a name for Chris Ponting's ME GWAS project!

    Also: GAME (Genome Associations in ME)
  5. adambeyoncelowe

    BBC radio programme on diagnostic names 12/07/2019

    The issue is that this was a huge vehicle for Simon Wessely. There's no doubt in my mind he'd have got the last word.
  6. adambeyoncelowe

    BBC radio programme on diagnostic names 12/07/2019

    They were probably best left out.
  7. adambeyoncelowe

    ME Epidemiology - prevalence and peak ages of onset

    I can't remember. I thought it was due to a doubling of one of other numbers as a guesstimate.
  8. adambeyoncelowe

    ME Epidemiology - prevalence and peak ages of onset

    Isn't 2.5 million equivalent to the 0.82% (or thereabouts) from the 'CFS-like' figure?
  9. adambeyoncelowe

    Suggest a name for Chris Ponting's ME GWAS project!

    GnoME = Genome ME GeneSeME = Gene Sequence Has anyone tried this? http://acronymcreator.net/ I can't get it to work, but it might be useful.
  10. adambeyoncelowe

    Suggest a name for Chris Ponting's ME GWAS project!

    If we're doing that you could just add S (for 'study of') to my suggestion above.
  11. adambeyoncelowe

    Post-Exertional Malaise Is Associated with Hypermetabolism, Hypoacetylation and Purine Metabolism Deregulation in ME/CFS Cases, 2019, McGregor et al

    That could be possible too. Though I would've assumed dehydrated people's urine would smell more of urea, and that a proportion of those with dehydration may have high blood sugar anyway, since it's relatively common. Glucose metabolism problems have been raised before in ME. The CFIDS...
  12. adambeyoncelowe

    MicroRNAs as biomarkers of pain intensity in patients with chronic fatigue syndrome. Al-Rawaf (2019)

    Yes, it looks like they're reaching. It's all a bit sloppy, isn't it?
  13. adambeyoncelowe

    Post-Exertional Malaise Is Associated with Hypermetabolism, Hypoacetylation and Purine Metabolism Deregulation in ME/CFS Cases, 2019, McGregor et al

    That's what I noticed too. It could be. It fits some of the symptoms, at least. Didn't acute renal failure lead to Sophia Mirza's death? I wonder if this is a complication that occurs in severe cases, or if it is just something that happens to all of us, but to a lesser degree? Obviously this...
  14. adambeyoncelowe

    The Neurological Alliance: Patient experience survey

    Thanks. I've already sent this to the chair. I'm sure it will be useful.
  15. adambeyoncelowe

    MicroRNAs as biomarkers of pain intensity in patients with chronic fatigue syndrome. Al-Rawaf (2019)

    It's garbled but if it means what I think it means, that's interesting. If patients have a higher pain tolerance, it suggests they're not hypersensitive to pain.
  16. adambeyoncelowe

    A general thread on the PACE trial!

    I have mini periods of remission several times a month. Usually first thing in the morning after a good night's sleep. I wake up energised and alive, and as if a great physical weight has been lifted from my bones. Sometimes it lasts to the afternoon. Very rarely it lasts a few days. But it...
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