Search results

Snap!

Yes. That is true. However, for some reason many of us find ourselves being pushed to give descriptions of what it's like. Almost as though we should be justifying why we can't just do stuff. Thinking it over I think that advocacy that focuses on describing how it feels might make that...

The more I mull this over the more I agree with @Ravn. Why should we be obliged to describe, in detail, exactly how having ME feels? Are we, in fact, playing into the BPS narrative by even attempting to describe how it feels. Using words such a tired, fatigue (I avoid those), pain, exhaustion...

I think there is an inherent issue with trying to describe how something so abnormal feels using descriptors a healthy person might feel/use. The danger is they'll judge fatigue as how they feel on Monday morning rather than the poisonous, painful thought obliterating experience of ME. It...

Probably easier to say what it doesn't feel like. As a child I remember being really ill and one morning, feeling a little better, hopped out of bed to go to the loo. My legs were to weak & I hit the deck. Doesn't feel like that, because they didn't feel weak till I put my weight on them...

More like it's the wrong type of fuel in the tank maybe?

I do wonder if psychologists are planting the seeds of their own destruction. Everything they look is twisted to give the conclusion- more research needed and/or more psychological intervention. Thus (blatantly) more work for me and my pals. :rolleyes: In my own career, my employer supplied...

It seems to me "depression", like "fatiigue" is so widely used (and abused) that it generally causes more misunderstanding than not. I understand reactive depression from bereavement, being made redundant etc.. Although we use the same word "depression" to describe a biochemical imbalance or...

Already done and shared with the person who runs the nearest local group.

Not all my spoons seem to be the same size or made of the same materials & so break or melt more easily than others. Maybe I got a defective batch?

And yet they say- Either someone doesn't know what they're talking about or there's some cognitive dissonance going on here - and I'm not referring to the patients.

It says Clear conflation of anxiety and ME. Some very unhelpful, false illness beliefs right there. Subjective questionnaires. Really, what could possibly go wrong?

I adore dark choc, but it's effects are nothing like having a cigarette for me.

I had this with a relative who also had a serious head injury. They were like a badly tuned radio - bits of what they said and did made sense. I have no idea how, but they kept "finding" boxes of matches and lighting up in their room. The nurses were really naffed off. It was unbelievably...

I know when I gave up the fags (& it was one of the hardest things I have ever done) kicking the nicotine habit was just one aspect. The other was the behavioural habit of lifting the cigarette to my mouth and inhaling. Don't know about the heroin, but I haven't smoked for over a quarter of a...

I see it as them trying to sit on both sides of the fence - On one side they want CBT to be given the gravitas of rigorously trialled medical treatments. In which case there should be detailed evidence of safety and efficacy. On the other it's not a medical intervention. It's just a talking...

I tried various SSRIs and also amitriptyline over the years. The aim was to reduce pain and improve sleep and the prescribed dose was very low. I really, really wanted them to work. None of them did. To make matters worse all if them gave me a severe hangover effect that lasted all of the...

It means money that could be spent on frontline NHS services will instead go to some private contractor, boosting the profits of their shareholders. At least that's how I see it.

Don't any of the GPs or other doctors worry about their jobs being dumbed down? If you're a GP and care about the quality of the health service, does it not worry you? If you're an A&E doctor do you not worry about the extra load of emergency patients coming in because no one picked up there...

The problem is that once a patient has been passed off to some Lifestyle, Link Worker "professional" the chances are they won't have the skills to spot the cues of a genuine medical problem, or that what they are recommending may well cause the patient harm. I can sympathise with people wanting...