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  1. Hutan

    Jake Hollis - "The Fatigue Psychologist"

    Checking out his Linked In and PsychologyToday Profiles, he has claimed to be fully recovered in one place, but notes that he is on a journey in another. And, in the article he is back to claiming recovery: He seems to only have his 'The Fatigue Psychologist' practice. As far as I can see...
  2. Hutan

    Well-known, famous people with ME/CFS (public thread)

    Thanks for doing that @forestglip
  3. Hutan

    Jake Hollis - "The Fatigue Psychologist"

    Link here: George Monbiot on ME/CFS, PACE, BPS and Long Covid
  4. Hutan

    Jake Hollis - "The Fatigue Psychologist"

    Yeah, this is just annoying. He's one of those ones who recovers and believes that he has special insights. As if most people with ME/CFS don't have a good go at giving their bodies their best chance of healing... That seems a very limited and unnecessarily negative view of things from a...
  5. Hutan

    Impact of Pre-Infection COVID-19 Vaccination on the Incidence and Severity of Long COVID: A Retrospective Case–Control Study, 2025, Barado et al.

    It's a reasonable conclusion to draw, given the way they phrased it. I think it's rather misleading although probably not intentionally so. Long Covid is a very loose entity. If people are getting milder Covid-19 infections, then it's not surprising that some are not getting the persistent...
  6. Hutan

    Identification of a multi-omics factor predictive of long COVID in the IMPACC study, 2025, Gabernet et al.

    androgenic steroids Figure 3b shows that of the 15 or so steroids, cortisol is not one found to be different. ________ 73 unique features they believe are particularly useful in separating the recovered and LC groups
  7. Hutan

    Identification of a multi-omics factor predictive of long COVID in the IMPACC study, 2025, Gabernet et al.

    I think this study may suffer from an overly permissive view of what Long Covid is. That, coupled with their hospitalised samples means that the biochemical markers are not necessarily relevant to LC ME/CFS. The Recovery factor is the combination of the parameters that best differentiated...
  8. Hutan

    Duvets - what fillings are worth a try, and which brands and retail are good (eg for being able to send back)

    Blankets are good even with a duvet. I have cotton ones that I put on top of the duvet+duvet cover - because the dog likes to sit on the bed and look out the window. It's a lot easier to wash a light cotton blanket and put it back on the bed than deal with all the duvet drama at the same...
  9. Hutan

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    It's so incredibly patronising. The inference is that the problem is that the complainants have somehow failed to understand the intricacies of Cochrane's complaints process. When the problems have had nothing to do with the complainants understanding of Cochrane's complaints process (unless...
  10. Hutan

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    Sure, as in 'We've looked at all your specific complaints, and we don't find anything to be worried about. End of story. Move along please.' Because of the way Cochrane is set up (i.e. a law unto itself), I don't know that they have to provide any further detail.? I presume this is part of...
  11. Hutan

    AI-driven multi-omics modeling of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome, 2025, Xiong et al.

    Looks like a revision, although still with the same number of participants, and still a preprint.
  12. Hutan

    Patient registries

    Yes, I think that could be a useful outcome. Of course we can't say anything about the people who believe that they were cured by a specific intervention and so aren't in the registry. But retrospective reports of harm do count for something in a well characterised group of people diagnosed...
  13. Hutan

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    I've made some posts on this thread: https://www.s4me.info/threads/news-from-cochrane.7024/ with excerpts from their 2023 Annual Report. They seem to be moving to a model of open access for their Library, supported by fundraising.
  14. Hutan

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    The World Health Organisation, I'd say. Not so much frightened of, but concerned about maintaining its reputation with the organisation.
  15. Hutan

    News from Cochrane

    More excerpts from the 2023 Annual Report: How to spin a debacle as a positive! - that's the masks review with its Altmetric score of 26,000. Number 2 on the list had an Altmetric score of just 3,000. Moving to Open Access will presumably require a different funding model. This seems to be...
  16. Hutan

    News from Cochrane

    https://register-of-charities.charitycommission.gov.uk/en/about-the-register-of-charities/-/charity-details/1045921/financial-history On the finances of the Cochrane Collaboration, it appears that they had no UK government contracts and received no UK government grants, at least up to the end...
  17. Hutan

    News from Cochrane

    https://register-of-charities.charitycommission.gov.uk/en/about-the-register-of-charities/-/charity-details/1045921/trustees Just noting that the Cochrane Collaboration is a charity governed by the Charity Commission of England and Wales. Many of the Trustees appear to have changed in...
  18. Hutan

    Duvets - what fillings are worth a try, and which brands and retail are good (eg for being able to send back)

    Wool is good for winter. I like down/feather for the other seasons; the cover does need to be a high thread count though to stop feathers coming out. Perhaps you could try a matching pillow from a supplier that has a suitable duvet to see if you are allergic? I've never tried a silk-filled...
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