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  1. Sean

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Do organic vegan lentil chips count?
  2. Sean

    Evaluation of Novel Concentrated Interdisciplinary Group Rehabilitation for Patients With Chronic Illnesses..., 2021, Kvale et al

    They have to assert that we are pathetic incompetent wretches who fall apart at the first whiff of difficulties in life, and maybe even malingerers and frauds as well. Otherwise their 'model' doesn't work from the start.
  3. Sean

    Pediatric Somatic Symptom and Related Disorders (SSRDs): Parent Acceptance Influences Recovery, 2021, Wiggins et al

    In contrast, there was no significant association between full acceptance by patients and their recovery. So the point of trying to 'change patients somatic perceptions' is...? And how did they measure 'recovery'?
  4. Sean

    Comparing Idiopathic Chronic Fatigue and ME/CFS: Response to 2-day CPET, two papers males & females, 2021, Van Campen & Visser

    Which is why we need some means of distinguishing between the two. Like PEM 2-day testing.
  5. Sean

    Comparing Idiopathic Chronic Fatigue and ME/CFS: Response to 2-day CPET, two papers males & females, 2021, Van Campen & Visser

    Yeah, they might want to be a bit careful about demanding new evidence be admitted to the NICE debate. Cuts both ways.
  6. Sean

    Evaluation of Novel Concentrated Interdisciplinary Group Rehabilitation for Patients With Chronic Illnesses..., 2021, Kvale et al

    What happens if the patient doesn't 'comply' with these new health dictates? Translation: If our therapy doesn't work for you, it is your fault. The expansion of the empire continues... and always will. –––––––––––– Apart from Acceptability, which is of limited value, this is the standard...
  7. Sean

    Comparing Idiopathic Chronic Fatigue and ME/CFS: Response to 2-day CPET, two papers males & females, 2021, Van Campen & Visser

    Posts moved from separate thread on the female research that is now closed. If this result holds up then it is important.
  8. Sean

    Who was it that said being in support groups leads to poor outcome?

    Collate and cross-reference their own words, and ye shall be rewarded. But it is hard work.
  9. Sean

    United Kingdom: ME Association governance issues

    They also said that when patients did not get better that they were given a different diagnosis before being sent home. How is this not fraud? Very disappointing choice, MEA.
  10. Sean

    Functional neurological disorder: lighting the way to a new paradigm for medicine, 2021, Edwards

    They really don't do irony, do they. Exactly. This whole performative dance around methodology by the BPS camp is because they are consistently unable to deliver any clear benefit.
  11. Sean

    Article Telegraph: Is long Covid being overblown?

    Sounds familiar. Perhaps not so new? So, not psychosomatic then?
  12. Sean

    Pacing for people with severe ME/CFS

    It hasn't even been shown to do that. So the rest of the argument is moot.
  13. Sean

    Brain fog, cognitive dysfunction

    Because it must always be stressful and demanding. :rolleyes:
  14. Sean

    Placebo effect: a psychosomatic component, or only an aggregate of other biases?

    IOW, people who are more compliant, less confrontational and disruptive. Less 'difficult'. Problem is that real change for the better is rarely done by such people. It is done by those who don't like what they see around them, and do something about it, including demanding that those in power...
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