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They have understood nothing.

The best place to start with explaining functional neurological symptoms is to stop prejudicing the whole debate from the start with the unproven assumption of them being 'functional'.

CBT, and more broadly any directive psychotherapy, necessarily assumes the therapist knows both general reality and the reality of patient's life better than the patient. Which is one hell of an assumption, for which I have never seen a shred of evidence. If anything, for ME at least, the...

If a therapy has the power to good, it also has the power to do harm if misapplied.

The real trick is being able to predict outcomes before you have seen them. That is the pay dirt in science.

Don't know if that 90% stat is correct, but would not surprise me if it was. I suspect ME, especially so called mild-moderate, is going to turn out to be quite common and the primary explanation of a lot of stuff currently labeled something else.

Former medical electronics tech here. We had to run strict safety tests on all equipment before returning it to the ward/clinic, and sign for it on formal documentation that went on permanent record, meaning there was no dodging accountability for our mistakes. Not to mention being responsible...

Yep. We have run hard into the language barrier. Fatigue can mean a whole lot of very different things going on underneath. The only way it makes any sense at all to me is as a vague and not especially useful, and often very misleading, shorthand for reduction or loss of general capacity to do...

If the focus stays on 'fatigue', especially if only subjectively measured, then nothing will change. It's déjà vu all over again. Again.

ACT shows promise in reducing fatigue And always will.

Munchausens By Proxy Fortunately, in Australia at least, that diagnosis has been ruled unsafe by our courts some years back, in a case involving a child with ME.

Sorry for what have had to go through, Gradzy. :grumpy: By design, IMHO. Lack of falsifiability is a haven for the incompetent, the lazy, the grifters, and hardcore ideologues. It is not a new problem with allegedly science-based claims in medicine, and all the systems set up to supposedly...

Yep, the BPS project to rebrand some version of GET as pacing has been going on for some years. All road lead to psychotherapy in BPS Land. It is appalling that they are allowed to keep getting away with corrupting everything we report about our own experience and how we handle it.

Fair point. OTOH, given the apparent global effects in ME then whatever the underlying problem/process is in ME there is a real possibility that it involves something that is at least relatively widespread throughout the body, if not ubiquitous. My particular interest is what, if any...

@Snow Leopard

hammer therefore nail

The real cost of indulging in psychologising, and why it must be stopped.

True, but torrenting itself is a very efficient and low cost way of transferring files, including legal ones. It is used by legit operations all the time. Linux OS distributions, and a lot of archive.org content, for example, are available via torrents.

Exactly. As I have said before, I will take psych's hand-wringing about mental health seriously when they make reliable unconditional access to both an adequate minimum standard of material resources, and basic civil and politic rights, their core policy positions. Will it solve mental health...

Indeed. 'Psychological factors are not a core feature, therefore they must be taken into account.' :grumpy: Creed has never been a friend of ME patients. As you can tell by the fact that he insists on using 'chronic fatigue syndrome'.