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How about asking someone to take an AV1 telepresence robot there for you (and @Andy ) ? https://www.s4me.info/threads/uk-hospital-and-outreach-education-granted-£500k-to-provide-continued-education-to-children-absent-from-school-due-to-long-term-illness.8532/...

Kienle J, Rockstroh B, Fiess J, Schmidt R, Popov T, Steffen-Klatt A 2018, Variation of Functional Neurological Symptoms and Emotion Regulation with Time, Frontiers in Psychiatry 9 (2018), https://www.frontiersin.org/article/10.3389/fpsyt.2018.00035 DOI=10.3389/fpsyt.2018.00035 (open...

"Speaker TBC" on 2nd day seems now to be: https://twitter.com/BhupeshPrusty/status/1236044846726615040

I was about to ask if this is a good or a bad thing. I thought the virus could provide an opportunity to think about how to improve accessibility to conferences. I realize that the informal part of conferences often is more important and also more fun -- for those who are able to attend in...

http://stamm-fibich.de/4300/verbesserung-der-me-cfs-versorgung-dringend-notwendig/ https://translate.google.com/translate?hl=de&sl=auto&tl=en&u=http://stamm-fibich.de/4300/verbesserung-der-me-cfs-versorgung-dringend-notwendig/

That seems to be what it was meant for -- note how "they" is used at one point: Two options? The whole document looks to me like a parody from the beginning: Some pages later: Of course, "another important factor is PERSONALITY STYLE".

Only found these archived presentation slides: https://www.yumpu.com/en/document/view/37474074/pr-induction-and-training-all It's "A brief introduction to chronic fatigue syndrome" for the "Fine trial therapists induction day" And an old thread on PR...

Interesting wording. Is there any other group of doctors that would say "patients with these particular features are of increasing interest to us"? Perhaps cosmetic surgeons?

Considering Covid-19, are there any plans to transform the meeting into a video conference?

changed now to: Dr Dan Peterson, Fiona Wright, Dr Sue Pemberton, Dr Nina Muirhead https://www.actionforme.org.uk/uploads/images/2020/02/CMRC_2020_programme_V8_18.02.20.pdf

https://training.cochrane.org/resource/2019-cochrane-methods-symposium https://methods.cochrane.org/2019-cochrane-methods-symposium I'm not sure whether the Cochrane library stores only (their) reviews. Even if they did, you could search the reviews for original studies/ sources, too. So not...

Trial By Error: Another Letter About Mahana; BerkeleyWellness on IBS Study 24 February 2020 By David Tuller, DrPH http://www.virology.ws/2020/02/24/trial-by-error-another-letter-about-mahana-berkeleywellness-on-ibs-study/...

The allocation to another Cochrane review group seems to me to be a big challenge. Hope it's OK to copy this from the current review thread: Might be an idea to propse him as a member of the advisory group? (I see the group is not confined to patients but an "independent advisory group".)...

From: Hilda Bastian, It’s a Start: The Amended Version of the Cochrane Review on Exercise and CFS, 3.10.2019, https://blogs.plos.org/absolutely-maybe/2019/10/03/its-a-start-the-amended-version-of-the-cochrane-review-on-exercise-and-cfs/ : "The previous editor-in-chief, David Tovey, had...

eta: the discussion seems to have split:

Might also be mixed with this line of thinking: https://twitter.com/Chrissox/status/1222062872785801216

Not about ME but I think many pwME can relate to that: "Living with MS is painful but I've never felt indignity like a PIP assessment | inews" https://inews.co.uk/opinion/living-with-ms-is-painful-but-ive-never-felt-indignity-like-a-pip-assessment-1374404 Nevertheless, sometimes encouraging...

Again was reminded of this other perspective with regard to 'MUS' and thought it could be interesting to know this team's stances not only on equating 'unexplained' long term conditions with 'psychosomatic'/ 'psychogenic' but also on 'positive signs' of functional neurological disorders and the...

This thread could provide some hints: https://www.s4me.info/threads/is-cognitive-behavioral-therapy-the-gold-standard-for-psychotherapy.379/ (I haven't read it yet.)

I think the NICE terms are "supportive" vs "directive" CBT. But even if supportive CBT were offered and even if it were provided in home visits or or by phone or e-mail, if you aren't able to talk much or talk at all, it's understandable to prefer spending the scarce time you're able to...