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Only slowly I am getting an idea of the structure of "de Monitor": (About "de Monitor": https://demonitor.kro-ncrv.nl/over-de-monitor ) It appears to be a website gathering public input on controversial topics journalists want to investigate and eventually make a film series about. During the...

....except in countries with fixed book prices: https://en.wikipedia.org/wiki/Fixed_book_price_agreement

It got pretty bad already. Sorry, am not able to give a synopsis, but this Dutch series shortly after the Netflix debacle should alert us to seemingly sympathetic journalists.

Perhaps we should collect those experiences like yours, @TiredSam? After reading @Trish 's blog ( https://www.s4me.info/threads/this-could-happen-to-you-blog-article-by-trish.5465/) and @Hutan 's proposal for ME care ( https://www.s4me.info/threads/what-do-we-want-me-care-to-look-like.5547/ ), I...

Added links to... ...and... ...in the opening post.

Just realized that this is a ongoing series of the dutch online journal "de monitor": https://demonitor.kro-ncrv.nl/artikelen/opvallend-veel-onderzoek-naar-mecvs-door-familieleden-van-patienten twitter comments: from the google translation: The article mentions Ron Davis, Keith...

Being too sick today to write the posts, hellos and welcome messages I would like to write, I instead asked the two nearest libraries to buy @Brian Hughes' Psychology in Crisis (just in case you don't know: most libraries have online forms for asking to buy a book ), and opened this thread...

from the MRC's website: from Merriam-Webster's website: https://www.merriam-webster.com/dictionary/some : ETA: Is there yet a more unspecific wording than saying "some" patients?

The book fits this thread's topic perfectly... From p. 140:

Thank you @Grigor -- your blog might be the most apt answer. And thank you @Andy and @adambeyoncelowe for reminding me of @Grigor's blog .

Would someone who's on twitter please make this dutch journalist aware of... - the S4ME PACE briefing paper: https://www.s4me.info/threads/science-for-me-pace-briefing-document.3140/#post-55894 - Graham's video...

link to the conference on eventbrite: https://www.eventbrite.co.uk/e/management-of-mecfs-adult-paediatric-first-do-no-harm-tickets-46131336068?aff=ebdssbdestsearch Hope 4 ME & Fibro Northern Ireland's homepage: https://hope4mefibro.org/ ETA: Natalie Boulton, Producer of the award winning...

Do we know whether they have been asked yet? @dave30th, did you contact Carmen Scheibenbogen and her team? ( https://me-pedia.org/wiki/Carmen_Scheibenbogen )

I would prefer not to have the private docs involved, seconding @Jonathan Edwards' point: btw, never heard of Dr. Pfeiffer - do you have a link, @Inara ?

Thank you both, @Kalliope and @Jonathan Edwards! Such a relief to read this! -- my confidence in Lenny Jason is restored. Very good to know. It's a pity that Derek Pheby is not doing epidemiological studies himself anymore. I just had a quick glance and found his research very promising...

Thanks, @Jonathan Edwards. It was not only the BPS bits that irritated me, but also the seemingly low quality of their papers and scientific appoach. I also don't trust another member's expertise who isn't BPSophil at all https://me-pedia.org/wiki/Olli_Polo. I mean, is EUROMENE really only a...

Doesn't sound good.