Thank you for writing, @Naomi10
I really admire your writing and am looking forward to read the rest of the article series.
And thanks for adding the section summaries. I'm sure that made the text much more accessible for many. :)
FOI request granted. They were just emails from someone complaining to the Norwegian Institute of Public Health for having been denied access to documents with case numbers 2017/10566 Documents nr. : 12 and 13.
These documents have later been released and are included in @Michiel Tack 's blog...
New blog post from Naomi Whittingham
Beneath the Surface, Part 1
The first of a three part series analysing the British Association of CFS/ME (BACME) guidelines on severe ME. I have chosen to write extensively on this subject, as the guidelines encompass several themes that are important to...
Blog post from Sept. 18th 2019
ME-senter nr. 1: Virusjeger, immunekspert og sjarmen med tarmen
google translation: ME center #1: Virus hunter, immune expert and the gut
In this article Jelstad presents one of the research centres who where allocated with funds from NIH; The Center for Solutions...
Blog post from Sept. 13th 2019
300 millioner kroner til forskningssentre for ME
google translation: 300 million NOK for ME research centres
In this article Jelstad writes about the ME research centres funded by NIH.
It is worth a small roar of joy, but the ceiling is not lifting yet. In...
Jørgen Jelstad is a physiotherapist, author, journalist and speaker who for several years was a strong voice in the Norwegian ME debate.
In 2011 he published a book about ME, "De bortgjemte" (The hidden - and how ME/CFS became the most controversial disease of our time) which was an important...
This morning I sent the following letter to Adrian Aldcroft, editor-in-chief of BMJ Open. The subject line was: "The factual error in the first paragraph of the PRINCE protocol"
*****
Dear Mr Aldcroft--
Last week, I sent a letter to Professor Trudie Chalder on which I cc'd you and several...
Bjarte Stubhaug is about mindfulness (and CBT) as ME treatment, co author Gerd Kvale has in addition developed a treatment program called The Bergen 4-Day Treatment - B4DT and this is the one who has inspired developing the center that's being build
More about B4DT in English from Haukeland...
Yes, a brand new health center, Health in Hardanger (Helse i Hardanger) is now being build and will be finished next year. This will be an offer specifically for patients with chronic obstructive lung disease and other respiratory problems, people (particularly children and adolescents) with...
Chronic Fatigue Syndrome: Progress Towards Diagnosis And Treatment, Finally?
Article is written by Henry I. Miller, physician and Senior Fellow at the Pacific Research Institute. He has also been a Research Fellow at the National Institutes of Health and the founding director of the Office of...
The Norwegian ME Association - Buskerud County - was present during the Symposium and got this interview with Ron Davis. No big news, but a nice summary of his work in layman's terms.
A moving article from the Swedish newspaper Aftonbladet about 26 year old Sandra who suffers from ME. The article contains a 7 minute interview with her and Mats Lindström, leader of an association for infectious diseases which are challenging to diagnose. Despite having been diagnosed, Sandra...
Two more letters to Dr Godlee. The first is from Philip Stark, a professor of statistics at Berkeley. The second is from Robert Garry, a virologist at Tulane.
*****
Dear Dr. Godlee--
I hope you reconsider your decision.
Leaving this paper in place is a disservice to science and to public...
And it seems she was already improving anyway when she started with LP.
But none of that matters, I guess.
This article is another addition about Lightning Process (TM) in the academic literature, providing an aura of credibility and will for sure be enthusiastically used in further marketing...
from Oslo.. oh dear..
I've only skimmed this but :banghead::banghead::banghead:
Here's from the patient's story in her own words (from the sci-hub-link)
I got in contact with the CFS organization through the internet, but I soon learned how they “protected” their disease. They turned down...
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