Search results

The Norwegian ME Association, Buskerud County, participated at the Stanford ME symposium and made this greeting to patients from Ron Davis.

CNN: Indie pop sensation's disease became his muse Decades ago, ME/CFS stole his life, but music has allowed Murdoch to take back his life and shine a light on a disease that afflicts more than 17 million people worldwide. "It could be the most important thing I ever do," he said.

Finally an article about this from Norway. This from the editor of the Journal for the Norwegian Medical Association. This journal quite often provide translations in English of articles, so no google translations this time! Are Brean: Sannhet og konsensus English: Truth and consensus The...

This psychologist has written a new letter to the editor, this time claiming that the petition's criticism of the Competence service is wrong. She fails to mention that she's been a colleague to Competence service, and she refers to a newly arranged seminar for physiotherapists without...

A surveillance among pupils with ME was done by Tymes Trust in England in the 1990's, and last year in Norway (by initiative from the prime minister). Both concluded that ME was the main cause of school absence due to long term illness. Anyone know if other countries have done something similar?

This article was published 9 days ago, but I just discovered it via a tweet from OMF. My apologies if this has already been posted. School Nurse Net: CDC Awards NASN $1,3 Million Contract September 24, 2018 (Silver Spring, MD) – The Centers for Disease Control and Prevention (CDC) has awarded...

Another blog post from the initiator for this petition, Nina E. Steinkopf. She's doing an amazing job with collecting information and documenting how bad things really are with the National Competence Service for CFS/ME in Norway. This time she looks at the published research from the...

Over 6 000 views by now. It's quite astonishing.

Last month the Norwegian ME Association had a meeting with a member of Parliament from the Labour Party. Today she has followed up that meeting by formally asking the Minister of Labour and Social Affairs how ME patients can be better helped. It usually takes some time until answers are...

Scopeblog Stanford: Stanford immunologist pushes field to shift its research focus from mice to humans For the last several years, Stanford immunologist Mark Davis, PhD, has been pushing the immunology field to steer research away from a reliance on mice and toward humans. He recently talked...

From freelance journalist Miriam Tucker, who has written some great articles about ME for Medscape. Perhaps she'll do a writeup now afterwards?

Agree. They could do a tour with this!

Brian is excellent! Really enjoying this!

First post on this page https://www.facebook.com/Hope4MEFibro/

An excellent reply today from Nina E- Steinkopf who is also the initiator behind the petition against the Norwegian Competence Service for ME/CFS (with BPS approach and enthusiasm for Lightning Process) Nina E. Steinkopf: ME-pasienter har rett til evidensbasert behandling google translation: ME...

Here is a trailer to the final information film made for this project. This one is about ME, school and friends. This is what's being said: Do you have a friend in your class with ME? In that case you might have noticed that something has changed in the friendship. Perhaps you are no longer...

Trial By Error: The CFS/ME Research Collaborative Conference So I attended the CFS/ME Research Collaborative conference two weeks ago in Bristol. The two-day event was a refreshingly PACE-free zone–as far as I could tell, I was the only person who mentioned that piece of crap in public...

4 000 have signed the petition by now!

Sometimes I use an ice package on the top of my head when I feel I have a "brain fever" and am so uncomfortable I despair. But if I use it excessively I feel the symptom just increases afterwards, but it does give some immediate relief.