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New blogpost from initiator Nina E. Steinkopf. This time about the impossible situation for families with children with ME, when seeking help is defined as symptom causing behaviour. De ME-syke barna google translation: The ME-sick children The parents' situation is that their struggle to get...

I remember they were 46 members when starting up a year ago. Perhaps this means they've grown with 5 people since then. I thought they were many more. They sure give that impression, that they're talking on behalf of a lot of people.

The "patient organisation" Recovery Norge, the one with MD Henrik Vogt and LP-coaches claiming ME is something you can recover from by your own merits, have initiated a counter-petition supporting and praising the Competence service for CFS/ME. Their petition has 51 signatures and has been...

If you're on Instagram I'd like to recommend SerIkkeSykUt (Don't Look Ill). It is by an ME patient who wants to challenge prejudice towards chronic illness. I like her friendly and humorous style. She says if she'd been given a krone (Norwegian valuta) for each time she's heard: you don't...

Another blog post from initiator Nina E. Steinkopf. She is working very hard on uncovering and documenting problematic aspects with the PBS-establishment in Norway, and she does as good a job as any investigative journalist. In this blog post she writes about how Lightning Process is pushed on...

The Minister of Labour and Social Affairs answered yesterday. She doesn't see any reason to change the rules for now, but emphasise that rest can be part of treatment for ME patients. Stortinget: Skriftlig spørsmål fra Lise Christoffersen til arbeids- og sosialministeren google translate...

It says on their website that the seminars can be viewed via a link, and that more information will come during October. Konferenserna kommer att kunna följas via länk – mera information om detta i oktober.

Politicians in Sweden are working for a ward for ME-patients in the county Västerbotten. For time being there is nothing offered to ME patients in the region. Västerbottens-Kuriren: Ny mottagning för ME-sjuka Not able to provide a google translation for this article, but here's a recap. It...

Study from Norway on 124 patients with a mixed psychiatric population of whom 39 diagnosed with PTSD. Paper is published in the journal Neuropsychiatric Disease and Treatment PTSD patients show increasing cytokine levels during treatment despite reduced psychological distress Results: Overall...

New blog post from initiator Nina E. Steinkopf. This time she has gathered a collection of the history to the BPS-approach in Norway. Quite striking when it's presented in a chronological order as here. Mens vi venter på å bli trodd google translation: While we wait to be believed The petition...

The Norwegian ME Association - Rogaland County - will host two lectures about ME by prof. Karl Johan Tronstad (scientist who has been working together with Fluge/Mella researching ME and cell metabolism) and prof. Kristian Sommerfelt (neurologist and paediatrician with over 20 years experience...

My latest letter to Archives of Disease in Childhood I sent the following e-mail today to Dr Nick Brown, the editor-in-chief of Archives of Disease in Childhood, the journal that published the Lightning Process study a year ago. I cc’d Dr Fiona Godlee, editorial director of BMJ, which publishes...

New blog post from initiator of the petition, Nina E. Steinkopf which is also an answer to psychologist Nina Andresen's letter to the editor: Hva vi blir utsatt for google translation: What we are exposed to 4 612 have signed the petition by now.

PDF of paper from Sci Hub

No tickets or programme available yet. So thought I'd wait a bit until adding the events (research conference and open seminar) to the calendar.

This is from Aug. 15th 2018 and as far as I know not shared here already. Not sure if studies on ME patients are included in the review, but thought it was of interest nevertheless. E-Health interventions for anxiety and depression in children and adolescents with long-term physical conditions...

Henrik Vogt joins the debate. It is frustrating that he still believes this is just about having different opinions..