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So true. I have had difficulty explaining to people that even being driven somewhere in silence, in my own car, with my husband driving is a huge cognitive burden. The eyes still see, the ears still hear and the brain still filters and processes. It's the brain filtering and processing that...

From @Sly Saint 's post #36 above Erm.....didn't everyone play spin the bottle as teenagers or was it just an 80s thing where I grew up? Things might've stopped at a good snog, but wasn't that all that was needed?

No, unfortunately holidays are a secondary benefit of being able to work and the chronically ill can't just book a holiday where they can get a break from being ill. Being able to pay for holidays is also a secondary benefit of work that once again the chronically ill who are unable to work...

I'm pretty sure they do. I fill in the mental health section of the questionnaire in some detail to record the effects of impaired cognitive dysfunction. Although I make it clear these are a symptom of ME rather than a comorbidity because they are and the form is rubbish for eliciting...

I can understand that. Who wants to be bothering with what seems like political arguments when you just want to get better. Still, sticking your head in the sand won't help, far better to be forewarned than harmed. Many of the ME patients I have met who are less severely affected won't get...

Yep, that's what I figure. I take every opportunity to use the sanitizer as well, just in case I forget & touch it. Also, it's hard enough to walk "normally" & in a straight -ish line when I'm paying attention. I've noticed a few people fiddling about with their masks and not looking where...

I have to say, I've ventured out 4 times now with my masks. It isn't nearly as bad as I thought it would be. I hate anything up around my neck and face unless it's quite loose - polo necks, tightly wrapped scarves, hoods drawn tight etc. I have a small supply of washable masks and a box of...

Ah now, the b@****** just didn't want to get better. :whistle: [Sarcasm]

GIGO. Again. Is it really not thought necessary to throw in a course module on critical thinking or how to evaluate "evidence" before you go round recommending treatments? Though it's a trainee and this is the treatment "preferred" by the system the conclusions are hardly surprising.

IM's employer is now starting to "encourage" much of the work force back to work. Apparently HR have stated that workers currently working from home can't be forced to come back in so they are being asked. Difficult situation - some are fed up trying to work at home, some prefer it. However...

I find that PEM is the biggest cause of disrupted sleep for me. Then the sleep disruption means it takes much longer to recover from PEM so sleep continues to be disrupted until I clear PEM. However, if I have been active (for me, not a normal person) then having a lie down and allowing myself...

My view (learned cynicism) is that when they say individualised person centric care it is to be deliberately unclear. It makes it sound as though the care is tailored to the individual and treatment/drugs will be given or changed depending on how the person reacts. That sounds like a good...

Not only are people going to be very annoyed about the guidelines, I think they're going to get a shock when they realize just how much we've done to try to get them changed. The fact that nothing had been done for so long and the harms have been wilfully ignored despite our efforts is going...

Ah, the joy of chocolate delivery day....

Yep. 1) Exactly what do they mean by CBT? Is there a clear definition of exactly what was done and di we know if the therapists stuck to what they were supposed to do? This matters - if it became more than CBT then this is mislead & I've seen this before with ME patients - a friend had a...

I'm really glad so.much of this is being aired on social media. If nothing else it will give some of those suffering post covid some warning if how these "professionals" really view them & may be that will be enough to ensure more patients manage to avoid their clutches. It must seem surreal...

Indeed they do. Nearly 35 years ago I spent a summer working for a well known fast food place to earn some extra cash for my final year at uni - it's very hard work by the way. Even then, every time an order went through a till it was recorded, very strict stock control. There was a bin for...

Mike Scott's words quoted by @Sly Saint above Anyone else similarly not surprised to find that some of these so called mental health professionals seem completely unable to read or hear other people's opinions without misinterpreting them? Even when both parties are native speakers of the...

I've just thought of this - I'm not sure how common this is but I know others have mentioned it before so I'll add this as it's caught me out many times - Sometimes I get bursts of energy. I' won't feel well but much better than usual. It's not a hyperactive state but, suddenly, a lot of...

One of the things I find it hardest to get across to other people is that pacing is a very interactive process, it's hard work whereas non ME people often seem to think it means taking it easy. I need mental cognitive energy & function to observe myself- be self aware - but when I start to fade...