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Hi @Julia O i wonder given you’re only looking at a very small number of meetings how essential it is for people to contribute to video (or presumably audio) meetings. Some people especially who have more severe ME struggle to deal with direct engagement by video or audio due to sensory...

Weird. That’s actual harassment unlike the accidental cup drop incident that was mentioned in the information commissioner tribunal.

Yep particularly annoying Why can’t they just say symptoms?

Apologies for being flippant but Ive only just registered their logo. Coffee cup :whistle: :wtf: I thought they were supposed to be scared of coffee cups or are they doing group aversion therapy.

Persistent complaints. Yet another example of ableist thinking.

Not everyone can access twitter content if they don’t have an account only the first tweet in a thread can be seen - what was the response you’re referring to?

Welcome @chinook :)

Welcome to the forum @SteveFifield

I think some kind of measure of ability to undertake work equivalent activity for 8 hours on say 3 consecutive days for say a month without triggering PEM could give an indication that someone may be in a position to start thinking about committing to part time work. A lot of people with ME...

3-4 months doesn’t leave much time for people to have completed the process of putting in job applications and have interviews - even assuming they are qualified or have previous experience to make applications viable. As with many people entering employment for the first time or reentering...

Ah ok so this app is ok yet someone was only saying the other day that when they mentioned visible it was pooh poohed as something you can get too focused on

What planet is he on

@EmmaS302 thats useful for people to know that the focus is on social aspects rather than a biological study thanks

I find all GF bread really sweet

Asda in larger stores have quieter hour 2-3 pm Monday to Thursday

I would think they might get some mileage with reporters on covering the story of the fundraising in traditional media. Unusual livestream plus amount raised in 24 hours??

Filling wrapped in cos/romaine lettuce leaf is good too

Yes I use the crispy type of “cakes” too Not bad with boiled egg, tahini, avocado

I can do oatmeal I’m ok ish with some types of wheat spelt for eg. Cheap white sliced bread is the worst. But all manageable occasionally. I really dislike gf bread although pasta is ok but I try very hard to keep pasta intake down anyway. Gf bread is why I resort to standard bread although...

Hi Emma I’m not asking this as a potential participant but ME/CFS in men is very broad, can you give some details of the type of research you are considering?