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hahaha @Forbin thats brilliant I havent heard that for years :laugh: The first verse is so apt :sneaky: "the madness takes it's toll"...."not for very much longer".... "i've got to keep control" For the benefit of RHPS uninitiated

I'm concerned about this too

interesting related article here about pain beginning differently at a cellular level in men & women - research only made happen due to NIH's new policy described in original article (in the OP)...

Thats actually a really good brief, succinct overview of the situation, and gratifying to think we can do a massive class action suit in the yrs to come. But @TiredSam & @Andy...if someone does contact him, i think it'd also be a good idea to make him aware that the NICE guideline was not...

well.... I dont know what to think really, but one thing i feel sure of & that is that EC would not be leaving a position of status & influence if it werent to go to a position of higher status & influence, so i'm actually rather troubled by what she will do next. Worrying for the children of...

You are so right Luther.

Especially overweight women and those who dont conform to society's narrow view of what is deemed sexually attractive:rolleyes::mad:. What i find so troubling about all this, is that generally compassionate people, those who believe I'm really ill & not in anyway malingering, will still say to...

perhaps wearing enough/different fabrics so you dont need the wheatbag? - so that during the night the conditions are the same as when you go to sleep? Just thinking that the bag will obviously cool through the night so that you are still left with cooler environment after a few hrs. What i was...

So when you go to bed cold do you put extra clothing/covers on to compensate? If you do, then that would suggest that no matter how warm your pyjamas are or how thick the covers, you will still wake up cold? yeesh thats a bummer!

i actually have the opposite problem, but i'm mentioning it because i wonder if you could use the opposite solution to the one i found.... all my life i have been chilly before bed (unless the weather was very hot) & prefer my bedroom on the cool side so as not to feel 'hot n stuffy' which i...

yes I'm afriad that knowing what i do about the SMC & about such 'meta analyses' (eg cochrane) I am skeptical to say the least. I mean i dont know if they work or not, but i dont trust this one little bit. I'll be happy to be proven wrong, but just the reports in the press that so many more...

Yes i noticed the talk of 'recovery' too, it makes me very cross. These are not unintelligent people, they can be expected to know full well what the word recovery means, and using it to mean 'management' or learning to live with it, it just disingenuous. Telling people they cant cure them but...

On reflection overnight I edited my OP this morning to add the following 'Just to be clear - I am not in any way attacking Prof Helen Payne personally, I do not know her & therefore cannot comment. It is her attitude and approach that i find so objectionable.'

precisely

thanks for posting that vid @Luther Blissett, horribly enlightening. "they don't want to be stigmatised these patients" .... of course, because other patients DO want to be stigmatised. It's nonsense - I find having a mental health dx (a legitimate one PTSD coming 6yrs after ME & for which i...

yeah 'the creeps' is the exact correct phrase Arnie Pye.

Note it's called the 'HOME' study. They seem to select study names that will appeal to participants.... I find it rather disingenuous & cynical. This 'home' study - for people who are miserable & just want to go home. The PACE trial - for people who know that pacing works & would be much better...

http://www.bbc.co.uk/news/av/stories-43058019/when-mental-health-gets-physical Although this doesnt specifically say it's about ME/CFS, it's about MUS, & I've seen this woman (the doctor) on a video about CFS before, & recognise her name - Helen something... i cant remember where it was but i'm...

hahaha brilliant :D again :D brilliant

Well thats a high compliment coming from you TiredSam, i love your rants :) That is SUCH a good point, & one i dont think i've ever really noticed before!!:thumbup: They cant have it both ways!:banghead: