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  1. JemPD

    Telegraph front page: Wessely photo wth Duchess of Cambridge & BPS back pain treatment

    I didnt mean to underestimate you Melanie, apologies if it came over that way, i was simply asking what your evidence was, that she "knew all about the PACE trial & issues surrounding it". Thank you for telling me. And for your suggestions about how we might ensure they are better informed in...
  2. JemPD

    BBC: Chronic fatigue trial results 'not robust', new study says

    Just an idea.... perhaps we could start a thread for the AP journalist entitled something like "S4ME thanks Jennifer Cockrell for her article" and then we could all put our thanks and comments there & then someone could tweet her a link to it? It would be great if she would come here, especially...
  3. JemPD

    Telegraph front page: Wessely photo wth Duchess of Cambridge & BPS back pain treatment

    I'm no particular fan of the royals. At all. But this is a science forum & imho we need to be careful about making claims without evidence.... So I'm interested to see any evidence that she knows all about PACE & the issues surrounding it? He may well have told her that he's been under attack &...
  4. JemPD

    BBC: Chronic fatigue trial results 'not robust', new study says

    Reading this made me happy. I'm so glad we have you in our corner Carolyn :) you've all done a superb job with this study
  5. JemPD

    Rethinking the treatment of CFS — a reanalysis and evaluation of findings from a recent major trial of GET and CBT (2018) Wilshire et al.

    The thing i love the most about all of this, (so far - trying not to count my chickens - we still have the weekend papers to contend with yet - i notice nothing from the guardian which is a worry) but so far the story still got through... despite the SMC attempts to counter it & prevent it. I...
  6. JemPD

    The Canary: More coverage of Wilshire et al's latest PACE study

    https://www.thecanary.co/discovery/analysis-discovery/2018/03/22/the-mainstream-medical-community-just-declared-war-on-people-living-with-me/ I like the Canary because i like the 'call it out' attitude, but i do wish they wouldnt make such basic factual errors as calling it the 'PACE trials' -...
  7. JemPD

    The Mighty: How My Life Has Changed Since I Developed ME/CFS

    Actually i was just thinkin that i think i did say similar kinds of thing back in year 2-3 of being ill. Dont think i ever used the word 'gift' but i felt i'd learned a lot about myself & grown alot, and was convinced that - somehow - i would improve over time. I think it depends a lot on how...
  8. JemPD

    The Mighty: How My Life Has Changed Since I Developed ME/CFS

    that was my feeling entirely @Revel ..... in my mind it wnet along the lines of "yeah well, tell me that again in 20yrs"
  9. JemPD

    Telegraph front page: Wessely photo wth Duchess of Cambridge & BPS back pain treatment

    Ugh, as i checked the headlines this morning i was greeted by a large photo of Prof Sir Simon smiling with Kate.... right above an article declaring that "Gps too soft on back pain", bemoaning the painkillers & surgery given out, when really pwback pain need psychosocial treatments of therapy &...
  10. JemPD

    United Kingdom: Science Media Centre (including Fiona Fox)

    Haha YES! that is exactly what i was thinking of thank you :) I did search the forum but i obviously didnt use the right search terms. I never have much luck with that :confused:
  11. JemPD

    United Kingdom: Science Media Centre (including Fiona Fox)

    brilliant, it'll take me some time to read that but it looks like a useful article thanks Dolphin :)
  12. JemPD

    United Kingdom: Science Media Centre (including Fiona Fox)

    Re the 'low impact journal' bit, I'm sure i read an article not long ago about journal prestige not being linked to research quality. but i cant find it. Cant anyone else recall it? This one is old & i cant read the full article w/out a subscription, but the recent article was along the same...
  13. JemPD

    United Kingdom: Science Media Centre (including Fiona Fox)

    @Robert 1973 you are a legend :D
  14. JemPD

    United Kingdom: Science Media Centre (including Fiona Fox)

    Well i assume the 'trial design specialists' would include Wessely & his co author, they wrote a book on 'clinical trials in psychiatry or something. Although whenever I've seen him talk about that book he always says "i wrote a book" rather than that he co authored it. Clearly considers himself...
  15. JemPD

    Coyne and Michael Sharpe on Twitter

    Thanks so much @Esther12 I've read that paper but there are so many brilliant papers about PACE i get muddled which one is which
  16. JemPD

    Coyne and Michael Sharpe on Twitter

    does anyone know where that graph that Anton Meyer tweeted, came from? I'd love to print it out (inc the references) & use it to give to a HP i know
  17. JemPD

    CBT- Jen Brea Twitter

    @Londinium you have articulated my point of view beautifully thank you :) I long for the ability to be so succinct. Yes I agree, however.... What @Nasim Marie Jafry says is spot on imho. I'm very happy to cut everyone slack, i need lots of it myself. So wouldnt have dreamed of commenting if...
  18. JemPD

    CBT- Jen Brea Twitter

    Goodness does she really think that? Crumbs no!:eek: He will just take whatever she says & twist it for his own purposes. yes a total fantasy. I sometimes wonder if she's aware of the way some of the things she does can be twisted to appear to bolster the BPS ideas.... like pitching a tent in...
  19. JemPD

    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

    Interesting @Cinders66 thanks for that info i was still fairly new to the field back then. Yes thank you indeed @Jonathan Edwards, what can we do to help?
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