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  1. JemPD

    Covid-19 vaccines and vaccinations

    Do we have a comparison anywhere for efficacy of AZ cmopared to moderna? - moderna reported to be due to be rolled out on uk later in april.
  2. JemPD

    Covid-19 vaccines and vaccinations

    and in english? I too foggy to work out what's going on can someone explain
  3. JemPD

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Oh that made me laugh :rofl::rofl::rofl::rofl::rofl: thank you for that Sarah i really needed it tonight :D
  4. JemPD

    Covid-19 vaccines and vaccinations

    Brilliant! somebody sensible is in charge :)
  5. JemPD

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    But it must be 'individualised', if we have learned anything these past few yrs it's that all treatment simply must be individualised & agreed apon in collaboration with the patient :D Thats interesting @boolybooly what does your 'mother' do to it that helps do you think? :D
  6. JemPD

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Sorry this is a bit jarring now as the thread has moved on but it felt important for me to respond. Sorry it’s taken me so long to reply @Wyva Reading back through my recent posts on this thread i realise they can easily come off as a bit superior/patronising & implying that anyone who...
  7. JemPD

    Covid-19 vaccination experiences

    I'd like to know why nobody suspects after getting vaccine & developing fever, that they may have coincidentally caught actual covid? nobody seems to be sugesting testing, but after discovering the ludicrous & imo dangerous mask policy at some counties' vaccination centres, theres certainly a...
  8. JemPD

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Thats interesting Kitty, I stand corrected, thank you for sharing. It seems to make no difference to me whatsoever, that must be a right pain! A little bit of 'nice' keeps me going sometimes :) As you say, calling it an 'allergy' isnt very good from a doctor though. Really? wow, thanks for...
  9. JemPD

    BPS attempts at psychologizing Long Covid

    There is no spoon. (sorry that will only make sense to fans of The Matrix, but i couldnt resist it).
  10. JemPD

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    It reminds me of Vogt's story where he had an over-reaction to his tinnitus &was unable to keep it in proportion/kept obsessing over it - or something like that i dont remember his exact words - what i remember is the assumption that because he had an inappropriate/unhealthy response to an...
  11. JemPD

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    from his interview I just dont recognise any of that. does anyone else? - being "frightened" of being ill the next day? I never feel like that, i'm always shocked when the PEM kicks in. Thinkin you allergic to sugar because you ate a lot of cake yesterday? sorry but thats just daft, who thinks...
  12. JemPD

    Open Cervicocranial dysfunction, neuroinflammation and infection in ME/CFS compared to healthy subjects, Bragée & Bertilson [MEPRO study]

    I'm not pro structural abnormality theory by any means, but just to say that in UK from my experience of listening to other patients, very few people with ME/CFS will have had an brain MRI, much less the neck. Not saying they should have had a neck MRI, just that i'd be astonished to discover...
  13. JemPD

    Sensory sensitivities: research and theories?

    yes this is how it is for me also, but sound is worse than light for me, light is only very* bad when i'm in PEM, when the slightest chink of light is like a dagger. It must be so hard to be like it all the time. What i cant understand is how sound ramps up the "volume" on ALL my symptoms...
  14. JemPD

    Heart Rate Monitor Factsheet - Workwell Foundation

    I'm also interested to know what they say about anxiety. I do deal with an unavoidable amount of stress & my HR rises unpredictably then. I also feel physically MUCH better when stressed, presumably due to stress hormones like adrenaline, so a lot of things that would feel very hard when calm &...
  15. JemPD

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    I find the moldex foam is quite firm, the Hearos brand are wider but *much softer. If you'd like me to PM me & i'll post you a pair so you can try before you buy xx
  16. JemPD

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    I use moldex & also hearos brand, BUT i have to always cut the pointed tips off to make them much shorter, otherwise they are pure agony! So i cut about 1/4 of the length off, so the tip becomes flat & 'blunt' instead of rounded - which turns into pointed when you roll them up to insert. Think i...
  17. JemPD

    Letter in BMJ: Long COVID-19, persistent somatic symptoms and social stigmatisation, Ballering, Rosmalen et al, 2021

    yeah the hearts are a bit pukey, especially when you find out what is meant by "support" by the BPSers
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