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That's not in the SCR. The SCR is the absolute basics so that if, eg, you were in an accident the treating Drs could see what medication you were already on. Or at least that's the idea. What the GP actually writes is held by the surgery afaik

I feel a bit bad for saying that now, perhaps I was being harsh my patience is thin today. I know she means well & the dramatic relief of her symptoms must be hard not to extrapolate from & enthuse about. But I don't think it's doing the rest of us much good.

quite. Not to mention the fact that it will all play beautifully into the hypochondriasis/aberrant illness beliefs/unconscious desire to be seen as having a serious illness/etc etc etc nonsense of the BPS narrative. I'm appalled that she can't see the harm she is doing. Jen isn't just another...

@Simbindi I agree about the recordings, but regardless of the evidence you have, regardless of the fact you will very likely win an appeal, the process of mandatory reconsideration & appeal is gruelling & depends on how emotionally not just physically robust you are as to whether you can do it.

when you say it was upheld do you mean your challenge was upheld or that they upheld the assessors error?

I'm glad you had a good experience @Kitty & I hope you will again. Every error on my assessors report is ripe for challenge, but even with support I am nowhere near well enough to challenge it. Yes they cant seem to grasp that you can be intelligent, show insight & still not know whether you...

not ok. not ok at all

I have same problem, explained it clearly in the form, & at the assessment, even showed him the organiser box I have to use. Still said I didn't need any assistance/aid/appliance & scored 0 points for it. In my experience it matters less whether your difficulties actually meet specific...

Thanks everyone I was sure it was Woo when I was referred to it, but I just wanted to be able to say so with authority :)

I should have said that it tastes the same when my gums are bleeding (which is rare but blood does taste metallic to me) ugh :sick:

yes weird taste & phantom smells... smells - things smell like cat faeces or cat urine, or cigarette smoke. taste - yes metallic It is literal for me, it tastes like if you use cutlery that is steel but silver plated & they're old, the silver plate starts to wear off & the unpolished steel...

I feel certain this will be twaddle... woo.... can someone who understand physics debunk it pls... since they claim it's all to do with physics https://www.temple-healthcare.com/how-it-works/

many thanks to them for trying to help. Does anyone know where to find the guidance that Capita use?

completely agree @Unable

To be fair, in the Liv Uni study mentioned above (where the Chalder scale is included) it did say at the beginning - sorry I cant remember the exact words - but words to the effect of 'if you've been ill a long time answer compared to when you last felt well'. But I don't think, IIRC, that that...

Yes, I guess it doesnt always follow. I just meant i expect a certain level of intelligence if someone has made it through to that stage in their academic life. However I think this issue is more to do with common sense, & thinking it through, than anything else so it may not follow...

Yes I was going to say the same thing. I've seen the chalder scale before but it pulled me up short again when I did that survey - just because it's such an utterly stupid way of describing - leading to all the issues you describe @Unable . Since she is a professor it's difficult to believe she...

I haven't read it because i havent the heart to. But what's the betting they somehow forgot to recognise that people who feel healthy have secure jobs & a reasonable work life balance, can pay their bills etc & saved enough for retirement not to be choosing heating vs eating... tend to eat...

How disingenuous.... presenting it as that way around...…. it's only when you get properly in their clutches that you'll find out they really mean how these areas of your life affect (cause) the CFS/ME symptoms.... not the other way around.

Unless i'm in PEM already then it doesn't feel unpleasant initially (unless I stand upright for too long) it only gets unpleasant afterwards. So when well rested I can exert gently happily for a short while - walk slowly from room to room, sit in reclining chair & talk etc, it only gets...