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  1. JemPD

    BBC: Chronic fatigue trial results 'not robust', new study says

    Yes this was one of my concerns. @Trish .....I'd like to draw this post & idea to the attention of the committee for consideration (hence my including the quotes from the start of the specific discussion) but i dont like to tag them all here as i'm aware everyone is both very busy & has their...
  2. JemPD

    BBC: Chronic fatigue trial results 'not robust', new study says

    so..... to those who liked my post @Hutan @ladycatlover @Luther Blissett @Invisible Woman @Jan @Trish @dangermouse @adambeyoncelowe ..... does that mean you think i should start a thread? I dont like to start one entitled "S4ME thanks..." as i dont really feel it's my place to speak for the...
  3. JemPD

    BBC: Chronic fatigue trial results 'not robust', new study says

    I like her too @large donner very much, but in my mind this would be satire, & i think she'd do a great job of satirising EC :D
  4. JemPD

    BBC: Chronic fatigue trial results 'not robust', new study says

    haha that would be fabulous :D You could have Crawley played by Jennifer Saunders, & have Tom Selleck sweeping in from America as Dave Tuller whom she'd call "that pain in the arse American". ooo and Nigel Hawthorne could be in it as well :) ETA no no it wouldnt be 'pain in the arse american'...
  5. JemPD

    Telegraph front page: Wessely photo wth Duchess of Cambridge & BPS back pain treatment

    sorry all the link in the OP were broken & the back pain one was wrong anyway, i was so goofy that morning but i just had to try to post about it it was just such a horrible way to start my day seeing that! the OP links are both working accurately to the stories now. The photo of them both is...
  6. JemPD

    BBC: Chronic fatigue trial results 'not robust', new study says

    lets not get excitied about nothing in the guardian..... there are the weekend supplements to come out yet. If we get away without some egregious BS from someone (guardian, telegraph,indepenent) it really will be a win.
  7. JemPD

    Telegraph front page: Wessely photo wth Duchess of Cambridge & BPS back pain treatment

    I didnt mean to underestimate you Melanie, apologies if it came over that way, i was simply asking what your evidence was, that she "knew all about the PACE trial & issues surrounding it". Thank you for telling me. And for your suggestions about how we might ensure they are better informed in...
  8. JemPD

    BBC: Chronic fatigue trial results 'not robust', new study says

    Just an idea.... perhaps we could start a thread for the AP journalist entitled something like "S4ME thanks Jennifer Cockrell for her article" and then we could all put our thanks and comments there & then someone could tweet her a link to it? It would be great if she would come here, especially...
  9. JemPD

    Telegraph front page: Wessely photo wth Duchess of Cambridge & BPS back pain treatment

    I'm no particular fan of the royals. At all. But this is a science forum & imho we need to be careful about making claims without evidence.... So I'm interested to see any evidence that she knows all about PACE & the issues surrounding it? He may well have told her that he's been under attack &...
  10. JemPD

    BBC: Chronic fatigue trial results 'not robust', new study says

    Reading this made me happy. I'm so glad we have you in our corner Carolyn :) you've all done a superb job with this study
  11. JemPD

    Rethinking the treatment of CFS — a reanalysis and evaluation of findings from a recent major trial of GET and CBT (2018) Wilshire et al.

    The thing i love the most about all of this, (so far - trying not to count my chickens - we still have the weekend papers to contend with yet - i notice nothing from the guardian which is a worry) but so far the story still got through... despite the SMC attempts to counter it & prevent it. I...
  12. JemPD

    The Canary: More coverage of Wilshire et al's latest PACE study

    https://www.thecanary.co/discovery/analysis-discovery/2018/03/22/the-mainstream-medical-community-just-declared-war-on-people-living-with-me/ I like the Canary because i like the 'call it out' attitude, but i do wish they wouldnt make such basic factual errors as calling it the 'PACE trials' -...
  13. JemPD

    The Mighty: How My Life Has Changed Since I Developed ME/CFS

    Actually i was just thinkin that i think i did say similar kinds of thing back in year 2-3 of being ill. Dont think i ever used the word 'gift' but i felt i'd learned a lot about myself & grown alot, and was convinced that - somehow - i would improve over time. I think it depends a lot on how...
  14. JemPD

    The Mighty: How My Life Has Changed Since I Developed ME/CFS

    that was my feeling entirely @Revel ..... in my mind it wnet along the lines of "yeah well, tell me that again in 20yrs"
  15. JemPD

    Telegraph front page: Wessely photo wth Duchess of Cambridge & BPS back pain treatment

    Ugh, as i checked the headlines this morning i was greeted by a large photo of Prof Sir Simon smiling with Kate.... right above an article declaring that "Gps too soft on back pain", bemoaning the painkillers & surgery given out, when really pwback pain need psychosocial treatments of therapy &...
  16. JemPD

    United Kingdom: Science Media Centre (including Fiona Fox)

    Haha YES! that is exactly what i was thinking of thank you :) I did search the forum but i obviously didnt use the right search terms. I never have much luck with that :confused:
  17. JemPD

    United Kingdom: Science Media Centre (including Fiona Fox)

    brilliant, it'll take me some time to read that but it looks like a useful article thanks Dolphin :)
  18. JemPD

    United Kingdom: Science Media Centre (including Fiona Fox)

    Re the 'low impact journal' bit, I'm sure i read an article not long ago about journal prestige not being linked to research quality. but i cant find it. Cant anyone else recall it? This one is old & i cant read the full article w/out a subscription, but the recent article was along the same...
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