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  1. JemPD

    “It Has Come to My Attention…” How Institutional Complaints Procedures are Being Weaponized (article in Quillette)

    yes, https://www.s4me.info/threads/telegraph-front-page-wessely-photo-wth-duchess-of-cambridge-bps-back-pain-treatment.3124/ posts i dont think this was the first time though... i seem to remember something to do with his work with the MOD & Combat Stress charity, maybe when he got his...
  2. JemPD

    small advocacy project: replacement for CFS/ME clinic patient manual

    It might be worth doing anyway for the benefit of new patients, regardless of what happens with NICE - i dont know about that, as long as we're sure there isnt something good already in use... has the MEA pacing leaflet been looked at i seem to remember it being quite helpful? and there was also...
  3. JemPD

    Re-framing GET as pacing, or vice-versa

    @NelliePledge thanks for that link it's useful.... In the managing stress section Unless of course we're saying no to CBT or that we need to stop rather than pushing on with your shitty advice Unless its the schedule of GET you've set for us Except of course for the fact that we at the...
  4. JemPD

    Med Students Still Do Pelvic Exams on Women Under Anesthesia

    Sexual Assault. Plain and simple. They should all be in prison, every last one of them. ETA There is no difference between this & a bunch of blokes deciding to do it to some woman passed out drunk. In fact it's worse because these woman have put their trust in these doctors.
  5. JemPD

    Michael Sharpe skewered by @JohntheJack on Twitter

    Ahhhh, well, that explains it then. He reacted in a cognitively unhealthy way to a 'minor' health event - not saying tinnitus is nothing - i have it quite badly & it can be miserable at times, but it's not exactly rocket science to avoid focusing on it. But he did focus on it, he obsessed over...
  6. JemPD

    Re-framing GET as pacing, or vice-versa

    exactly patronising b*stards, they really do think we are stupid. Very funny clip @large donner
  7. JemPD

    NICE ME/CFS Guideline stakeholder scoping workshop, Fri 25th May 2018

    haha lol they are 'chandlers' indeed....... what a marvellous freudian slip :D It should be called that from now on imo. Sorry @Suffolkres i didnt realise you'd written it :confused: I wasnt suggesting in anyway that you were ill informed! Was clearly too fuzzy to be posting :rolleyes:
  8. JemPD

    Personality as a risk factor for ME/CFS and similar diseases

    You dont see people who've never been accused of a crime going around shouting "i didnt do it", do you? No. I wonder why, might it be because there is no need. You may as well say to someone who lives in the arctic circle 'even in Africa no one goes around in thermal underwear' It wasnt 'stuck...
  9. JemPD

    NICE ME/CFS Guideline stakeholder scoping workshop, Fri 25th May 2018

    It'd be good to point out to whomever wrote this that it's the Chalder Fatigue Scale, not the Chandler Fatigue Scale. I know it's pedantic, but errors like this make it look as if the author is ill informed, which i'm sure they're not
  10. JemPD

    CDC responds to false SMC factsheet claim

    Well done @Robert 1973 !!!
  11. JemPD

    NICE ME/CFS Guideline stakeholder scoping workshop, Fri 25th May 2018

    I think you're right about using that to our advantage. Here's one study by Goudsmit, Jason, Nijs It's behind a paywall but i seem to remember reading it at the time thinking it was a good one https://www.tandfonline.com/doi/abs/10.3109/09638288.2011.635746 Wonder what @Jonathan Edwards...
  12. JemPD

    NICE ME/CFS Guideline stakeholder scoping workshop, Fri 25th May 2018

    you make a good point @strategist.
  13. JemPD

    NICE ME/CFS Guideline stakeholder scoping workshop, Fri 25th May 2018

    Sorry cross posted with @strategist - removed the following from an edit to original post - it didnt seem fair to add such a significant edit when several people had already liked original post. I don't see why the clinics cant be maintained by ditching the GET/CBT delivery but keeping...
  14. JemPD

    NICE ME/CFS Guideline stakeholder scoping workshop, Fri 25th May 2018

    My thanks to all who participated in the meeting. I think this is precisely what will happen Indeed. I dont know why more people cant see that the position of "well such n such supplement/off label drug helps some people, so lets have it".... is simply the BPS argument in the opposite...
  15. JemPD

    Is this pseudoscience? If not whats the view?

    yeah i thought so thanks I just wanted to check.
  16. JemPD

    Is this pseudoscience? If not whats the view?

    Sounds like the usual 'alternative health' malarky to me but I dont know... Does anyone else know anything about this? https://www.sciencedaily.com/releases/2018/04/180425093745.htm
  17. JemPD

    Chronic pain often has no physical cause. Psychotherapy can reduce the suffering.

    this is what irritates me sometimes, I dont really understand such catastrophising, i mean i understand it & am not judging anyone who feels that way, i guess it might be natural to feel like that.... what i mean is that i never thought or think like that, it's just not where my thoughts go, &...
  18. JemPD

    Central sensitisation theory - discussion thread

    One of the things i find problematic is the assumption that pwME are 'not used to it', so desensitisation could work. But what about the experience of people whose problems with sound & light are the reverse of this theory... ie that when they're well rested AND anxious they can tolerate a...
  19. JemPD

    Turning badmouthing of ME/CFS on social media into something positive - a fundraising possibility

    I think #JusticeForME is excellent, perfect. we should have that as a hashtag for something even if it's not this.
  20. JemPD

    Graded exercise self-help for chronic fatigue syndrome in GETSET, Twisk, 2018

    oh i seeeee, i thought it was too good to be true, am so goofy tonight!
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