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  1. JemPD

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Oh thank God!!! at least there will be one non-lay sensible voice being heard!
  2. JemPD

    Who said: don't bother testing patients?

    What is most disturbing about this is that it is clearly taking shape in the GP surgery. Not just in our own experiences, but i recently watched a couple of episodes of GPs Behind Closed Doors. I'm often not well enough for tv & this wouldn't be my top choice for viewing, but recently for...
  3. JemPD

    The Guardian's Science Weekly podcast - 2 November 2018 - What role should the public play in science?

    I read Sharpe's tweet about patients being too ill to do FOIs etc, as a sly way of suggesting that they cant be that ill if they're going to all this trouble - a la Rod Liddle. We need to be careful that we dont play into it. The unaware will not understand that a bedbound person spending an hr...
  4. JemPD

    The challenges and implementations of exercise therapy for patients with chronic fatigue syndrome

    I skimmed it, it's grim. But it's exactly what you would expect of a competent & compassionate med student who trusts cochrane... as he's been taught to.
  5. JemPD

    ME Association Quick Survey Nov 18: Do you have a healthcare plan that is consulted, adhered to and kept up to date...?

    Me too. A 'care' plan for someone with ME can soon turn sinister. Better to fly under the radar at the moment iyam. Dont want them thinking 'if it's that bad we'd better do something".... knowing that the only things they can do are more ineffective & harmful CBT/GET......... so i'd rather...
  6. JemPD

    Is being pushed in a wheelchair humiliating? BBC: Disabled man drags himself on floor through airport

    Abuse for the guy is not ok :emoji_angry: I hope nothing i've said could be construed as such. For me it was as much a discussion about whether society/people in general think it's humiliating to not be independent, as it was about his specific actions. I agree it's disgraceful that they were...
  7. JemPD

    Is being pushed in a wheelchair humiliating? BBC: Disabled man drags himself on floor through airport

    No doubt the **** who yelled at me from the other side of the street a while back to "get out of that chair you lazy bitch" will find this disabled chap's dragging choice laudable :rolleyes: :bored:
  8. JemPD

    Is being pushed in a wheelchair humiliating? BBC: Disabled man drags himself on floor through airport

    This is a good point. But nobody took hold of him & pushed him into the chair, he was given the option. Similar to somebody saying to me "I'm sorry but i need to get past would it be ok if i pushed you to one side a bit." Exactly. I obviously don't know this person, but i think this reflects a...
  9. JemPD

    Is being pushed in a wheelchair humiliating? BBC: Disabled man drags himself on floor through airport

    https://www.bbc.co.uk/news/uk-45765767 After the airport forgot to load his self propel wheelchair, this paraplegic man chose to drag himself along the floor through the airport rather than be pushed in a 'push only' wheelchair. His reasons are that it would be humiliating & degrading to have...
  10. JemPD

    The Guardian's Science Weekly podcast - 2 November 2018 - What role should the public play in science?

    If it were up to me we'd not bother to publicise it at all. Linking to it on twitter so it gets loads of views will only encourage the guardian that this is a newsworthy & well 'read' piece, that loads of people are interested in. And MS will simply adore the controversy & drama of it. I'm...
  11. JemPD

    Simon Wessely Research & Related Quotes

    It seems to me that the only people who think there are gains to be had from the 'sick role' are people who've never actually been sick for any length of time.
  12. JemPD

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    Eeeww! shudder. Only skimmed it but ugh, just ugh.:sick: My old Humanistic therapist told me once that they privately called psychoanalysts 'psycho_Anal_ists', but now i'm the one gossiping out of turn. Yikes! :eek: And also thank you for making me, once again laugh out loud. :D the...
  13. JemPD

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    I dont want to take the thread off topic, but just to say that it would be interesting to know the theraputic orientation of said therapist... ie psychoanalytical (freudian), psychodynamic or humanistic? Since in my (albeit limited) experience, Humanistic therapists consider themselves equal to...
  14. JemPD

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    I couldnt agree more @JaimeS , but then that's what i've been afraid of since they announced the review/update. I think it's interesting that Colin Barton seems to think they are 'better than nothing' at this point, given his Pro BPS/Miller stance. Personally I'm not sure that is the case & istm...
  15. JemPD

    NICE guideline review: A list of appointees to the ME/CFS Guideline Committee has now been published

    I know you know this @strategist so this comment isnt directed at you, just using your words to illustrate that.. he entire problem for us (not just this NICE guideline, but everything), revolves around the fact that they have successfully convinced themselves & the medical establishment, that...
  16. JemPD

    Cochrane ME/CFS GET review temporarily withdrawn

    I couldnt agree more. If it werent so diabolical it'd be amusing that a shrink was doing it.
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