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I havent the heart to watch it, I had such a hideously awful day today i just cant take anymore, but my family watch & if it mentions ME i need to be prepared because they swallow anything thats "on the news".... does it actually mention ME in the report? or just FM/MUS

:) me too @dave30th Always happy to unofficially proof read anything when I'm able. Since I've been ill, the slightest errors really shout out at me, i think it's because it's a bit of a struggle & my brain doesn't make up for the errors by 'filling in' in the way it did while i was healthy, so...

This describes my experience exactly. The other thing that happens is that if you keep trying to vacuum things up with a full bag, despite it's feebleness, it overheats & will start to smell burning/cut out/become otherwise unusable, until it not only cools down & cleaned out but gets a full...

thanks @Jonathan Edwards. Unfortunately everyone i have spoken to to try to explain this says that "well i wouldnt say what i was supposed to say, i would say how it really is". They don't seem to understand that their perception of 'how it really is' can be unconsciously influenced by how they...

This new thread has been split from this thread. A Members Only thread also has relevant content. oh hallelujah. I've been thinking for years that how can any of it be of any proper use until we are really clear on what it is we're studying, especially re PEM. I think this is the only way to...

I would agree that this is a priority, there are LOTs of people (just generally) that don't understand the subjective vs objective in non blinded trials, and no doubt many of our sympathetic MPs are included in that. And unless they thoroughly grasp that it will be difficult to counter much of...

Been following this as much as i can, not too good atm. I thought the MPs did very well considering & i'd like to thank them & everyone involved in preparing them & contacting them etc. Well done everyone. One thing that struck me in the few mins i was able to watch, is that there was a lot of...

I'm so disturbed by this training I have to find a new GP soon after old excellent one left, & i am praying i can find one who's disinterested & not bothered to do it yet & wont want to after they see me for the first time. It freaks me out that this training is their polluting all those...

I agree with @Barry but I do think - given the BPSers usual tactics - that this is a very important point. It's late, but can anyone get this point across to any of the key players before the debate. Who has CM's ear?

The more activity i do the worse i sleep... and once a crash hits hard there is no chance of sleep at all, until i have rested myself out of the crash. Who can sleep when you feel that ill? The pain & buzzing prevent any kind of sleep & the wired & tired mentally is hideous. In the winter months...

Crumbs. I just dont know what to think about this. I mean in many senses its a huge victory. But if it doesnt go well because those speaking for us dont really understand the issues & start saying things like 'ME is real, it's not psychological', then we're in deep trouble... & then we wont get...

That would be sooo good! (both or either)

Amen!

I think that's certainly the case for many people, they cant wrap their heads around the very idea of it. Wow. That's disturbing.

I was reflecting on my anger this evening & i think one of the worst things about this, is that if only their training to the DWP were true. If only rehabilitation were really possible for most of us, for me :cry: How can they be so obtuse as to be unaware of how utterly heartbreaking it is, how...

@Action for M.E. hi i know you are just the rep who comes here, so this isnt directed at you personally, but i want to tell AfME how absolutely disgusted i am with them for this. I dont know whether to cry or explode. I, like many others am a sufferer at the moderate end of severe. ie...

Oh my. The most egregious bit is about the 'caregivers'.... 100 years from now, the framing of compassionate supportive care as 'reinforcing so-called 'maladaptive' beliefs and encouraging disability', will be seen for the pure evil that it really is. My beliefs are not maladaptive Mrs... YOURS...

interesting.....

uh, well 'say no more' then!

The author of the original article https://www.theguardian.com/society/2016/apr/07/the-sugar-conspiracy-robert-lustig-john-yudkin is Ian Leslie Ian Leslie, the author of Curious: the Desire to Know and Why Your Future Depends On It, is a regular contributor to the Long Read. Twitter...