Search results

  1. Saz94

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    That may have been a statement made specifically for that patient's personal case.
  2. Saz94

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Are you referring to Jenny's case? If so, I don't think any of us know enough about her individual case to be able to comment on that.
  3. Saz94

    Hospital Records of Pain, Fatigue, or Circulatory Symptoms in Girls Exposed to Human Papillomavirus Vaccination.., 2020, Thomsen et al

    But another review disagrees. https://www.ncbi.nlm.nih.gov/m/pubmed/28730271/ https://www.bmj.com/content/366/bmj.l4508.full "In our critical review, we found that serious adverse event signals were already present in the largest randomised trials of HPV vaccines. These signals were ignored...
  4. Saz94

    ME/CFS services in the United Kingdom

    I'm hearing excellent things about the new consultant doctor at the Barberry at the Birmingham Q Elizabeth hospital. Apparently he sees it as a biomedical illness and rejects all psychological models. (Even though ME/CFS is under neuropsychiatry at that hospital.)
  5. Saz94

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    I too was devastated to read the update from Jenny's family this morning. I want to ask (this isn't aimed at anyone in particular), please, please don't turn Jenny's case into a football for the CCI debate. I imagine that that would cause her (and her family and friends) significant distress...
  6. Saz94

    Pathogens associated with triggering ME/CFS - discussion thread

    I heard something about giardia lamblia? Herpesviruses?
  7. Saz94

    Pathogens associated with triggering ME/CFS - discussion thread

    Yes, Charles Shepherd has said that was his trigger
  8. Saz94

    Coronavirus - worldwide spread and control

    How bad is this compared to the swine flu in 2009?
  9. Saz94

    'Pacing for people with M.E.' Action for ME booklet - revised and updated January 2020.

    Fucking heck (am I allowed to say that on this forum?) So they're now renaming GET / graded activity as "pacing up" And telling people that "pacing up" is not GET Because they know that the patient community says that GET is bad and pacing is good Fucking heck. You can't just change the...
  10. Saz94

    Coronavirus - worldwide spread and control

    Oh wow, is this a permanent move to get away from the teletubbies or are you on holiday?
  11. Saz94

    Coronavirus - worldwide spread and control

    You're floating around in the sea?? I don't understand
  12. Saz94

    Coronavirus - worldwide spread and control

    How bad is this compared to the swine flu scare back in 2009(?) ?
  13. Saz94

    Pain in ME–what helps you and what can I do?

    I'm sorry that this appointment was so disappointing. "I don't want to medicalise it" is a weird thing to say. To my mind, it seems to imply that he doesn't think that it is a proper medical condition. But idk, that might not be what it means.
  14. Saz94

    Article: Study gave me purpose when the future seemed bleak Jan 2020

    Completely agree. I'm only doing the Italian because I'm enjoying it and it's manageable to me so far. In fact for me so far it seems to be less exertion than e.g. reading S4ME.
  15. Saz94

    Article: Study gave me purpose when the future seemed bleak Jan 2020

    Oh dear maybe this is why I keep forgetting to take tablets on time lately??? As I started learning Italian recently. But correlation doesn't equal causation ;)
  16. Saz94

    Article: Study gave me purpose when the future seemed bleak Jan 2020

    I like learning stuff but I couldn't do open uni because you have to submit work for them. No way I could write an essay or anything like that. I just want to learn stuff in an easy manageable way. To be fair I think I am learning a fair bit of science stuff via osmosis on Science 4 ME, and a...
  17. Saz94

    Article: Study gave me purpose when the future seemed bleak Jan 2020

    I've recently started learning Italian on duolingo, and found it much easier than I expected with my brain fog. I think that the part of my brain that stores languages is maybe different to the part that's most affected by brain fog? Also a lot of the questions on duolingo are multiple choice on...
  18. Saz94

    Are noncommunicable diseases communicable? (Finlay et al, 2020)

    How can stuff be transmitted between people through the microbiome? I don't understand.
Back
Top Bottom