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  1. BeautifulDay

    My e-book “Tracing Chronic Fatigue Syndrome to mtDNA” will be free Wednesday and Thursday on Amazon

    If you can get the word out about the book via Twitter to friends, absolutely go for it. Thanks!
  2. BeautifulDay

    My e-book “Tracing Chronic Fatigue Syndrome to mtDNA” will be free Wednesday and Thursday on Amazon

    Yes, it is setup to be free tomorrow and Thursday. Right now I'm binge watching a baking show competition series to distract myself from author jitters. Thanks everyone for the positive support!!!
  3. BeautifulDay

    My e-book “Tracing Chronic Fatigue Syndrome to mtDNA” will be free Wednesday and Thursday on Amazon

    Thanks @andypants I put a request into Amazon to look into this. I appreciate the heads-up.
  4. BeautifulDay

    My e-book “Tracing Chronic Fatigue Syndrome to mtDNA” will be free Wednesday and Thursday on Amazon

    Hi Inara, If I did it correctly, it should be free for everyone on Wednesday and Thursday on all Amazon platforms (no matter if US, UK, or another Amazon platform location). If there is an issue downloading it tomorrow for free, please let me know and I'll put in a task question to Amazon...
  5. BeautifulDay

    My e-book “Tracing Chronic Fatigue Syndrome to mtDNA” will be free Wednesday and Thursday on Amazon

    To my friends at PhoenixRising and at S4ME, My e-book “Tracing Chronic Fatigue Syndrome to mtDNA” was released today on Amazon. I’ve set it up to be free for you to download on Wednesday and Thursday (November 28th and 29th). If you have any friends, family members, or other support boards...
  6. BeautifulDay

    2016 Psychology Today article discusses overcoming CFS through dealing with stressful situations from past.

    How do we educate all the doctors who believe ME/CFS is psychosomatic? In this Psychology Today article from 2016 "Explaining the Unexplainable: Chronic Fatigue Syndrome", Howard Schubiner M.D. states that: "It is my opinion, and the opinion of a group of physicians and mental health...
  7. BeautifulDay

    Gastroparesis, post-prandial pain, eating difficulties

    I have intermittent gastroparesis. It's actually always there at a minimal level of very slow digestion. Yet, there are days where my stomach almost completely shuts down. On those days I get a painful bump just below my right rib. It's more likely to get into the crazy gastroparesis pain of...
  8. BeautifulDay

    Higher prevalence of ‘low T3 syndrome’ in patients with chronic fatigue syndrome: A case-control study (2018) Ruiz-Núñez et al.

    Very true. Many doctors follow the outlined steps in 5 Minute Consult. They don't have the interest or training to deal with the technical details and research needed to properly understand and treat the unusual cases. Most insurance companies pay doctors a set fee no matter how much time...
  9. BeautifulDay

    Extremely misleading & NEGLIGENT news today by MIT’s Technology Review, the journal Nature, and Ambry Genetics regarding 23andme and direct testing

    It comes down to probabilities and statistics. Boy I disliked those courses. :banghead: Let me give you an example problem. Statistics still hurts my brain. Most pathogenic really deleterious health related variants are going to occur in less than 1% of the population. On those same SNPs...
  10. BeautifulDay

    Extremely misleading & NEGLIGENT news today by MIT’s Technology Review, the journal Nature, and Ambry Genetics regarding 23andme and direct testing

    There are some SNPs where 23andme miscalled them for many people (some might have a 10% miscall, others might have a 90% miscall rate). That's not the 40% being reported by Ambry Genetics. Across all locations tested on their chip (600,000 on chip v4) I believe 23andme's self reported error...
  11. BeautifulDay

    Extremely misleading & NEGLIGENT news today by MIT’s Technology Review, the journal Nature, and Ambry Genetics regarding 23andme and direct testing

    I agree that the error rate on 23andme could provide a false negative on a disease causing variant. The only way to overcome this is through WES or WGS at a high quality lab with the right depth to really catch those issues. Even Ambry Genetics has an error rate. In my test documentation...
  12. BeautifulDay

    Extremely misleading & NEGLIGENT news today by MIT’s Technology Review, the journal Nature, and Ambry Genetics regarding 23andme and direct testing

    Most people looking for answers in their genes only get as far as looking for dominant pathogenic variants that cause serious health issues that match their symptoms. That’s what I did first time around looking at my 23andme data. It comes back to the way we filter through our data for...
  13. BeautifulDay

    Extremely misleading & NEGLIGENT news today by MIT’s Technology Review, the journal Nature, and Ambry Genetics regarding 23andme and direct testing

    And here we go. Gizmodo wrote an article on that false 40% error ratio. https://gizmodo.com/another-reminder-that-consumer-dna-tests-are-not-100-a-1824149551/amp
  14. BeautifulDay

    Extremely misleading & NEGLIGENT news today by MIT’s Technology Review, the journal Nature, and Ambry Genetics regarding 23andme and direct testing

    Please forgive grammar issues and any spots where I don’t complete a thought or I repeat myself. I’m tired, but I need to get this off my mind. Today, I was reading my google generated news stream on genetics when I ran across an article on MIT’s Technology Review website. It was so outright...
  15. BeautifulDay

    Why I want to lie down in public - BBC

    I've laid down in crowded rooms against walls and on the grass in: - Washington D.C. at the Smithsonian's Natural History Museum and the Air & Space Museum - Virginia at the Steven F. Udvar-Hazy Center and Monticello - Pennsylvania at Hershey Park - New Jersey at Great Adventure - Florida at...
  16. BeautifulDay

    DNA testing on Long Term Health Insurance and Life Insurance

    Watching this webcast activated my mind. Specifically, it discusses how DNA testing companies (like 23andme) are changing the field of long term health insurance and life insurance. The point is that such insurance companies create standard rates to apply against categories such as male...
  17. BeautifulDay

    Our 8 year old has had an uptick in symptoms

    Here is a link to one source on the high B12. https://academic.oup.com/qjmed/article/106/6/505/1538806
  18. BeautifulDay

    Our 8 year old has had an uptick in symptoms

    Thank you @Arnie Pye . I appreciate all efforts at getting to the bottom of this. I had come across the web sites you mentioned. Both are interesting. 2. For the blood test, she was not fasting and it was in the morning (but not first thing in the morning). I read a lot of articles that...
  19. BeautifulDay

    Our 8 year old has had an uptick in symptoms

    I pushed for the blood tests mentioned. Here are her results. Ferritin was normal (middle of the range). Iron normal (but higher end of range). Transferrin normal (but lower end of range). TIBC normal (but lower end of range). Transferrin Saturation HIGH (43% with range of 6-40%). When I was...
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