Search results

Yeah maybe, but seems to be a dramatic drop four days ago (yesterday still low), but it's been slow for longer than that.

Interesting. It could be. But I just searched a few random things (PEM, David Tuller, Avindra Nath, 2-Day CPET) and MEpedia was always one of the first five results.

A Couple's Quest To Stop A Rare Disease Before It Takes One Of Them, 19 June 2017 (This is about fatal familial insomnia, a prion disease.) "In less than a year, Sonia's mom died. An autopsy showed Kamni had died from something rare -- a prion disease. Specifically, one called fatal familial...

Follow up article from The Guardian: Second Canadian scientist alleges brain illness investigation was shut down "A senior Canadian federal scientist has alleged that the government shut down an investigation into a mystery brain illness in New Brunswick that he believes may have affected 350...

Views on MEpedia seem to have gone way down the past three days. I wonder why. Maybe the lower numbers are more normal, and the tracking only started after the start of a temporary upswing, maybe caused by something like the JonVsJonVsME campaign three days before the start of the data.

Aren't "long COVID" and "PASC" interchangeable? They keep alternating between the terms and also the last sentence makes it seem like two different things. From Mayo Clinic Proceedings: I think they're trying to say long COVID including obvious MIS-C is similar to long-COVID without it. My...

Evaluating myelophil, a 30% ethanol extract of Astragalus membranaceus and Salvia miltiorrhiza, for alleviating fatigue in long COVID: a real-world observational study 20 June 2024 Jin-Yong Joung, Jin-Seok Lee, Yujin Choi, Yoon Jung Kim, Hyeon-Muk Oh, Hyun-Sik Seo, Chang-Gue Son Background...

I hope I don't come across as presenting anything in this thread as fact. My goal is to make people even aware it's a possibility so that maybe actual research can happen which actually can determine if it's a fact. As it stands, research or even discussion about environment causing ME seems to...

The Guardian: "Top Canadian scientist alleges in leaked emails he was barred from studying mystery brain illness", 3 June 2024 Follow up article: "Second Canadian scientist alleges brain illness investigation was shut down", 21 June 2024

The potential link to humidifier disinfectants seems to be based on this survey, though I can't find it online: ---- Cort's blog is partly talking about how GWI and ME/CFS may be different because not all people with GWI have abnormal 2-day CPET: But this seems like the same thing as long...

None of the sources about HDs in the intro where they discuss a potential link even mention CFS or PEM. (Edit: Seems to be based on a survey mentioned in reference 25.) They didn’t recruit based on if the CFS symptoms came after HD exposure, as far as I can tell: They make it clear they are...

If anyone lives in the US wants to contact congress people, this site will tell you all your representatives.

Final blog post in the "Lies, Damn Lies, and Statistics" series by Jeannette Burmeister: The NIH Intramural ME Study: “Lies, Damn Lies, and Statistics” (Part 4) Ends with a call to action:

Widespread impacts to precipitation of the East Palestine Ohio train accident 19 June 2024 David A Gay, Katelan Blaydes, James J Schauer, Martin Shafer "From these two maps, it is very clear that extreme concentrations of multiple pollutants were present over a widespread area during the days...

They posted this: (I accidentally deleted the question they are responding to. Basically asking if they split their original study by individuals or simply by cells.) As I say in response, I think I might have misinterpreted what they meant by "samples" in the paper when they said "the train...

Not 100% sure what's going on in this study, but here's the introduction with an overview:

Plasma proteomics identify biomarkers predicting Parkinson’s disease up to 7 years before symptom onset Jenny Hällqvist, Michael Bartl, Mohammed Dakna, Sebastian Schade, Paolo Garagnani, Maria-Giulia Bacalini, Chiara Pirazzini, Kailash Bhatia, Sebastian Schreglmann, Mary Xylaki, Sandrina Weber...

Many symptoms in long COVID and other post infection conditions, like fatigue, pain, and brain fog, are hard to test for and it's easy for someone on the outside to say those are caused by maladaptive thought processes even if someone is experiencing them. What are some other well documented or...

Beyond the serotonin deficit hypothesis: communicating a neuroplasticity framework of major depressive disorder Chloe E. Page, C. Neill Epperson, Andrew M. Novick, Korrina A. Duffy, Scott M. Thompson Abstract The serotonin deficit hypothesis explanation for major depressive disorder (MDD) has...

ABC: 'Not everyone who uses a wheelchair is paralysed. This is what ambulatory users want you to know' "It's a similar story for Kate Pern, an ambulatory wheelchair user who lives with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), a debilitating multi-system illness that gets...