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I didn't know that covid 19 would cause EBV reactivation in so many. This sort of mechanism might explain how different pathogens and triggers can apparently cause a similar illness.

It's CBT for ME applied to post stroke fatigue. With a no treatment control group compared to a placebo and expectation setting pseudotreatment. And a study name that could be a caricature.

Some interesting data in there. It appears people with subjective health problems that receive specialist care and medication are much less likely to return to work than those with other health problems (which presumably means well defined, objectively measurable problems).

I don't spend most of my time horizontally (I sit a lot) and am keeping daily activities not far from my exertion/orthostatic stress limit. Yet I still have substantial OI. Lately I've had multiple controlled falls due to "low blood pressure" which was 90/70 and 95/75 so not that low. With...

Maybe I'm getting the theory all wrong and actually training other things. Without any way to see inside the body it's a bit hard. But the general idea of training the cardiovascular system via postural changes to me seems to have merit. Postural changes are clearly a weak point for me. I'm not...

There's an easy way to train this reactivity (if it's trainable). I put a pillow on the end of my bed which is 30 cm higher than the mattress. Then I can elevate my feet while the rest of my body is on the mattress. This pushes blood into the head. Sitting will push it away from the head. It...

From https://www.ncbi.nlm.nih.gov/books/NBK53080/ I think I have inadequate reactivity. I've also wondered before if the frequent "low blood pressure" feeling in my head could be a response to high intracranial pressure. Lying with my feet above my head will make blood flow into my head. If...

Not sure. I don't understand how these genetic variants would affect mucus barriers. Alterations in MAIT cells, zonulin, LPS and increased intestinal permeability following exertion have been reported in ME/CFS. In some ways ME/CFS resembles a persistent infection but nobody can find the...

Merged thread Surprise Gene Finding Could Give Pathogens and Toxins a Leg Up in ME/CFS Some new information coming out of the Klimas genetic study https://www.healthrising.org/blog/2020/07/11/mucosal-genes-chronic-fatigue-syndrome/ Gene names: MUC16, MUC19, MUC22. Video here

Leading German Economist on Corona Policies “The Virus Must Be Contained Before the Economy Can Recover” https://www.spiegel.de/international/germany/leading-german-economist-the-virus-must-be-contained-before-the-economy-can-recover-a-652a4098-ad44-4fb1-a2e2-a46776d56217

Maybe she didn't deteriorate on the second CPET because the dose of exertion wasn't enough. If she has been pacing well and isn't severely ill that could be plausible in my experience. Moving on to the topic of true ME. If we assume that the situation is one where Ramsay's disease is often...

Copied post Maybe she didn't deteriorate on the second CPET because the dose of exertion wasn't enough. If she has been pacing well and isn't severely ill that could be plausible in my experience. Moving on to the topic of true ME. If we assume that the situation is one where Ramsay's disease...

It may be confusing to suddenly have the support of understanding professionals, if that was never the case for many years.

It's too slow. There should be more research projects and more researchers.

It would be the ideal moment to circulate a good guide on pacing. Then patients and healthcare professionals dealing with covid 19 can decide for themselves what makes more sense.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7139782/

@Jonathan Edwards Could a training program that involves lying on a tilt table, and repeatedly alternating between -10 and +10 degree inclination for some time, result in improvement in cerebral blood flow in daily life? If in ME/CFS training the heart is limited by difficulties tolerating...

Maybe the liver comes up not because it's the center of the illness, but the center of metabolism in the body. If you selected a random metabolite or pathway in the body, chances are high it would be closely connected to the liver (I don't know if this is accurate but it illustrates the idea)...

An apparatus similar to this one could be a way to train blood vessels and valves. The apparatus would have to be large enough for a person to lie on the board in balance. A ball could be held by the person and serve as movable weight to raise or lower the head end of the board.

A simple observation. Doing a few push ups feels like it pushes blood into my head, which makes me feel good. It doesn't last long but it's making me think about ways to use this. Would doing a few push ups every day be expected to lead to long term improvements in blood flow into the brain...