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  1. Hoopoe

    Plasma proteomic profiling suggests an association between antigen driven clonal B cell expansion and ME/CFS, 2020, Lipkin et al

    I am not sure but I think this is on topic. Imaging of my right neck lymph node in 2009 showed a diameter of 1,74 cm. According to this article It has always been this way and sometimes it's sore. A few other lymph nodes are also not normal. PS: forgot the link...
  2. Hoopoe

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    So their definition of recovery is even more nonsensical than in PACE.
  3. Hoopoe

    (ME) outbreaks can be modelled as an infectious disease: a mathematical reconsideration of the Royal Free Epidemic of 1955, 2020, Waters et al

    Can you tell us more about this (the rice in particular)? Was it the alleged mass hysteria in Malaysia?
  4. Hoopoe

    (ME) outbreaks can be modelled as an infectious disease: a mathematical reconsideration of the Royal Free Epidemic of 1955, 2020, Waters et al

    I don't think a believer in mass hysteria would be convinced. Comparing an (alleged) outbreak of mass hysteria among young girls in Ethiopia in 2013 with another outbreak in a hospital in 1955 England doesn't seem like a good comparison. A believer in mass hysteria would say that these outbreaks...
  5. Hoopoe

    ETUDE: Encompassing Training in fUnctional Disorders across Europe

    Shame! The functional disorders paradigm exists to oppress people with difficult health problems because it's designed to prevent them receiving adequate investigation and care. It's also designed to allow doctors to abandon patients in good conscience. Under the superficial appearance of care...
  6. Hoopoe

    BPS attempts at psychologizing Long Covid

    Oh Henrik! How can you be so insensitive to caution against taking patients too seriously, while they are figuratively screaming for help as loud as they can. And then follow up with a recommendation for a think yourself well in 3 days therapy. I don't know what's wrong with you but I hope it's...
  7. Hoopoe

    BPS attempts at psychologizing Long Covid

    Another doctor who gets it! I mean Trisha Greenhalgh of course.
  8. Hoopoe

    BPS attempts at psychologizing Long Covid

    Yes I think they will, but they've also been surprisingly quiet. Maybe this pandemic is also helping them understand how wrong they've been.
  9. Hoopoe

    Chronic fatigue syndrome may hold keys to understanding post-Covid syndrome: David Tuller and Steven Lubet July 21, 2020

    I believe the "no known cause" part of the Fukuda criteria is there because they were intended for research. The long list of exclusions is there for the same reason. It doesn't mean knowing the pathogen that triggered the illness excludes a person from receiving the diagnosis.
  10. Hoopoe

    Internet based self-help randomized trial for motor Functional Neurological Disorder (SHIFT), 2020, Stone et al

    Eww... Yes, they "work" in the sense that they change the psychological state of patients in the way that would be expected by being given some treatment, and they change brains in the same sense as well. Disease that can be measured objectively don't meaningfully change because of a placebo...
  11. Hoopoe

    Internet based self-help randomized trial for motor Functional Neurological Disorder (SHIFT), 2020, Stone et al

    Maybe. Are there any cattle farming industry representatives involved in writing the treatment guidelines?
  12. Hoopoe

    Internet based self-help randomized trial for motor Functional Neurological Disorder (SHIFT), 2020, Stone et al

    If it's about satisfaction, I would prefer to eat a steak more often instead of reading a website.
  13. Hoopoe

    Plasma proteomic profiling suggests an association between antigen driven clonal B cell expansion and ME/CFS, 2020, Lipkin et al

    Sounds like they interpret this as an autoimmune problem. But how plausible is B cell autoimmunity after the negative Rituximab trial?
  14. Hoopoe

    Chronic fatigue syndrome may hold keys to understanding post-Covid syndrome: David Tuller and Steven Lubet July 21, 2020

    @Thrish I believe the lung damage is from the immediate effects of the infection. The lingering symptoms could be due some different process which produces a ME/CFS-like syndrome. In this case it wouldn't make sense to create a new syndrome that is ME/CFS plus lung damage. Similarly, the blood...
  15. Hoopoe

    Twitter account will provide headlines & quotes from the 1955 Royal Free Hospital outbreak to the day when each headline appeared - 65 years later

    Yes so far it totally goes against the claims that some make that ME was seen as a form of polio. Let's see how the reporting evolves.
  16. Hoopoe

    Chronic fatigue syndrome may hold keys to understanding post-Covid syndrome: David Tuller and Steven Lubet July 21, 2020

    Sad to see the true ME crowd spreading their misinformation in the comments. Yes, I think some of what they are saying is misinformation, not merely difference of opinion. For example in ME there is no encephalomyelitis (it was an initial suspicion that turned out to be incorrect, not an...
  17. Hoopoe

    Patient Safety Commissioner proposal - First Do No Harm IMMDSReview, 2020, Cumberlege et al

    I like it. The assumption of psychological causes of illness in general is another thing that has I suspect never been adequately shown to be safe or correct. Nobody is really looking for harm related to this even though it's very easy to find patient stories of harm. People may object to...
  18. Hoopoe

    A genetic polymorphism that is associated with mitochondrial energy metabolism increases risk of fibromyalgia (2020) van Tilburg et al.

    She is demonstrating exactly what I believe: that the idea of psychosomatic illness is a false explanation that is preventing the discovery of the real causes of many illnesses. To make progress, these ideas need to be questioned first.
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