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She also limited comments on that tweet to people she follows. She knows that if she didn't, she would get comments explaining how we already had many RCTs in ME/CFS that showed it doesn't lead to recovery.

I feel some sympathy with Garner despite the horrible ableism in the article. I also did a lot of weird therapies and had the irrational belief I could somehow control the course of the illness with a positive attitude. People tend to believe these things because magical thinking is part of...

Maybe ME/CFS and long covid does make you go mad, in a way. Patients start believing in weird ideas that promise improvement because they can't stand the idea of remaining sick. I wonder if he'll stay healthy.

• Neuropsychological and neurophysiological features of fatigue were studied in post-COVID-19 patients. • Apathy, deficits in executive functions and reduction in global cognition were found. • Abnormal shortening of cortical silent period and lack of MEP depression were demonstrated after a...

By experts you mean specialists, right? How would patients know which specialists they should go to?

Physicians can be good at classifying diseases based on their observable characteristics. From that angle, FND may be a valid diagnosis if only to indicate that it's not any of the other things that can be similar but different in some important way. The hard part is figuring out what's...

I get visibly weak after long sustained mental activity. This seems very unusual to me. It doesn't make any sense that my limbs would lose strength, my gait become slow and insecure when all I did was mental activity. I also don't feel well in these circumstances but nothing too bad.

I'm sure this is all supported by good science and not a confusion of consequences of illness with cause of illness. :rolleyes:

It seems that it's the scientists turn to explain how we got into a situation where ME/CFS has been neglected and nobody involved in pandemic modeling predicted long covid. To me the best answer as usual seems to be BPS influence. They succeeded in trivializing inconvenient problems and these...

At the risk of being off topic, maybe what society needs is an institution tasked with the job of directing research into poorly understood diseases.

Outside the UK there's on average even more neglect of ME/CFS, going as far as not even recognizing it. How can one explain that, if not with a systemic problem that affects medical research, medical practice, policy as a whole?

The demographic split could be due to long covid and ME/CFS intending to capture different things. Long covid just means "didn't recover quickly from covid 19", whereas ME/CFS attempts to define a disease. They are presumably the chance that someone will have long covid, by gender.

I think it's more likely that the politicians have been manipulated by BPS people, mostly with misleading research papers. What BPS people have always said (usually between the lines) that ME/CFS is a made up illness by people who are very confused and in need of psychotherapy and an exercise...

Is lack of care really an adequate explanation for the fact that historically no country has seriously attempted to help us patients? In my opinion attributing negative psychological traits to a large group of people (the people in the governments around the world) doesn't work as explanation.

Great article. A journalist who finally says what needs to be said.

It looks as if TG is from the same academic circle as the PACE authors and has more or less the same views. A dangerous situation for long covid patients for various reasons. Admitting that PEM is real and the implications of that would also mean admitting that ME/CFS patients were badly...

I've been bitter today (trying not to be) because the best interpretation of what happened is that long covid was created for all sorts of bad reasons and primarily to avoid a ME/CFS label. They had to invent a new label because ME/CFS was too toxic and couldn't be used. In some ways this is...

Maybe he became a good singer because he often felt inadequate.

In a way, these studies test certain assumptions common in CBT, for example that the problems of the patient are due to faulty beliefs. Maybe beliefs have simply little to do with whatever problems patients have.

I wonder if Collins will have to answer some hard questions once the devastation caused by neglecting research into ME/CFS and PVFS will become evident.