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Yes, that was discussed here and really, it doesn't. https://www.s4me.info/threads/systemic-exertion-intolerance-disease-diagnostic-criteria-applied-on-an-adolescent-chronic-fatigue-syndrome-cohort-wyller-et-al-2018.3518/#post-62800 I think it is more about trying to discredit SEID and once...

They made a bad decision here and I swear they were still tip-toeing around the psychiatric lobby. Also, ICC is for research and clinical diagnosis and in research, it is best to have exclusions but a note should have been made that this exclusion is for research purposes and in a clinical...

Yes, I was very confused when I saw the press release as opposed to the study results.

I am from the US and yes, there were terrible implications with preexisting conditions and losing insurance. And yet, I think they will easily get their million volunteers. I am disabled and on SS so I cannot lose my insurance and if they would take me I would do it. I'm enrolling now.

No

I believe this is possible but I am not completely sold on it. I think it actually is another disease but of course, that will only be proven with a biomarker to compare someone like this. I just don't think, in the end, the brain scans and blood markers Dr. Davis is working on will be the same...

I got ill from a girl that came to work with "something" her doctor at that time was saying was some sort of Liver disease. (She was not suppose to be at work.) I mistakenly drank from her little cup of soda she had behind the soda machine which I thought was mine. I then got sick with the worst...

David Tuller posted this on his FB page: When I launched this year's crowdfunding campaign with a goal of $75,000, I wrote that I hoped to exceed that target, as happened last year. The extra money, I wrote, would go toward travel expenses and/or to increase my Berkeley position slightly above...

$75,436 and even higher since this Tweet. I had a feeling someone was going to come in towards the end and take care of this. :thumbsup:

I just watched this and it was very good. :emoji_clap::emoji_thumbsup::emoji_ok_hand:

This is the new front page of MEpedia and the "What is ME" icon will take you to Portal: Myalgic Encephalomyelitis. Jen has been doing a lot of portal work and I think the new front page looks great.

Scientists and Dr Tuller brief Australia’s Chief Medical Officer

Right. I was scared to read this and then it was like, OK. He stated two very important aspects. CFS is not psychiatric, don't exercise for treatment as it can be harmful. If my Primary knew that much I would be thrilled.

"I must caution against the over-aggressive use of exercise programs, which can worsen symptoms." "It’s very frustrating, since it implies that a person’s physical symptoms are due to some weakness in his or her character." To Your Good Health: Chronic Fatigue Syndrome Has a New Name...

This.

And I know there are the different severity of the disease. I was not severe for 20 years yet quite compromised and experienced PEM not knowing what was going on. I worked full time, yet my health compromised. Could socialize, yet my talking and ability to handle loud talking compromised. Go on...

Yes. And address the different criteria. ME/CFS is Dx'd with CCC but ME with ICC. Even SEID will Dx ME/CFS due to using PEM. And now that Leonard Jason is making the great effort of defining PEM including the fact that it is often delayed by 24-72 hours and can last 24 hours or weeks and all the...

Fixed it. :thumbsup:

@Gary Burgess And if someone calls in saying they overcame their illness and are now running Marathons, perhaps you should address the Oxford criteria (and Fukuda) and the fact that it misdiagnoses people with CF as having CFS.

@Gary Burgess I would appreciate your discussing how damaging media and at times patients saying Chronic Fatigue instead of saying Chronic Fatigue Syndrome is. Of course, ME is preferred but many are diagnosed with CFS but again and again, they themselves will say Chronic Fatigue. It is my...