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I agree this is a missed opportunity to post this on their site as it is stated in the IOM Report.

CDC Page for ME/CFS Take a look around each page. How does it look to everyone?

Fibromyalgia Page on MEpedia

"The Lightning Process is a goulash of osteopathy, positive affirmations, and neuro-linguistic programming." Great line!

I agree. Just pull away from this filthy organization that was the entire reason patients went into the PACE trial. This organization exists to exist. To have a job. They are manipulative and self-serving. They are afraid to go up against the psychiatric lobby. As a matter of fact if anythng...

Yes, I wish the term "recovery" wasn't used so loosely. I have found that term is used a lot by the Australian patients and charities also. Not sure why. Everyone needs to get the word out that using the word "recovery" should stop and saying "improvement" or saying that they recovered from...

https://coach.nine.com.au/2018/07/03/18/52/chronic-fatigue-syndrome-myalgic-encephalomyelitis The article is very good. Dr. Mark Guthridge is inerviewed about ME/CFS and the patient experience is well written. An accurate easy read.

You mean something like this could happen? 'Somewhere between the analysis and the printed copy we have been attacked by gremlins. Sadly, the passage of time, theft of a computer containing the original draft, and the fact that none of us can find the proofs anymore, mean that we have no idea...

We also need to educate the healthcare system that using depression and psychotic drugs to help us sleep is not working. They are not helping us sleep and just pretty much drug us during the day. Knocking someone out is not helping them sleep.

Most patients will meet either the IOM or CCC criteria but there are some that meet the ICC criteria. Unless they are researched as a disease group of ME patients, how can their very severe neurological issues and infections ever be treated? It seems as if they have gone into neurological...

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Thank you, @Emsho. I watched the broadcast and I thought you were terrific!

I'm going to my doctor in July and asking for it anyway. The drugs they have given me over 18 years have nearly destroyed me so why wouldn't my doctor do this? FDA is about to approve the research anyway.

I have been following this for a while and applied to my insurance company but they will not cover it. But, if this works, regardless of what the test really tests positive for (I am on the side of Fibro is an immune system disease) and more insurance companies will pick it up then that would be...

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And, this is the ProHealth article on the research they want to do on the BCG Vaccine.

EpicGenetics just contacted me and left me a message about a vaccine they are offering for Fibromyalgia patients which they have had very good success with and are trying to get FDA approval for a formal research project. They have been using a Fibromyalgia blood test that is covered by Medicare...

I'm not sure if this was posted for viewing but here is the full debate on YouTube.

Yes, I agree. Hard to quantify symptom experience but there seems to be a big gap here.