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I have Fibromyalgia and I fit the 1990 criteria, 2010, 2011, and 2016. When one doesn't have the disease they can't believe it is real. But when you have it you know it is real and the criteria fit. And it is the same with ME/CFS and you have been diagnosed with it. You know when you fit the...

Oh, I JUST wrote back to you! lol ;)

I saw your e-mail so I resent it and this time it went through. It is over 40 minutes since I sent it and it should have bounced back pretty quickly so I think it is a go!:)

There is one thing that bothers me about using Salt Lake City if it is the only recruitment center for ME/CFS and FMS and that is the demographics. The population is not reflecting the population the diseases appear in and since All of Us states, "By taking into account individual differences...

I think that is true. But, just like doctors not carefully following any diagnostic criteria when there is not a diagnostic test there are sure to be some who are misdiagnosed. I think there have been some misdiagnosed with CFS when they have had any number of illnesses, even Fibromyalgia...

See @Emsho as he just posted to me on this thread about some already asking David Tuller to submit evidence.

Anyone From Around the World Can Submit EVIDENCE OF HARM Caused by CBT/GET to Scottish Parliament

Bateman Horne Center will be a recruitment center of the Precision Medicine Initiative for ME/CFS and Fibromyalgia. NIH Announces Precision Medicine Initiative

Drug Approved. Is Disease Real? 2008 Because you always want the person that came up with the criteria to diagnose a disease to then say it isn't a disease afterall. That always helps. And this: "So fibromyalgia is a social illness, it’s a societal illness, it’s a personal illness it has...

I don't think the new ICD-11 for Fibromyalgia coding got to where it is because of WHO or those in charge of the ICD. Someone is pushing the BPS theory. From this article in the NY Times, "Dr. Frederick Wolfe, the director of the National Databank for Rheumatic Diseases and the lead author of...

ugh...there isn't an upload option?

I already got an e-mail back from him. ME/CFS Fatigue Types Questionnaire INTRODUCTION: There are many types of fatigue, but current medical terminology does not differentiate between them. We need to develop new terms that identify the many different types of fatigue, such as...

I'm gonna e-mail him. ;)

There is the Revised Piper Fatigue Scale where there are 27 questions. And then just the Piper Fatiuge Scale that has 22 questions. Select "Take the Survey". And score yourself! http://www.propax.com/survey/PFS_Scoring.PDF

I have the 36 question scale. But if there is a 22 question, I'll keep looking.

It's the US. Where doctors are strained to their limits and insurance companies make the decisions on what they cover. Referrals, specialists, tests, and how much they will cover and what co-pay a patient is hit with. And 1 million patients. At least 1 million.

I'll change that now!

This seems to have more detail than the last 2009 post. http://www.dsq-sds.org/article/view/938/1113

It does resemble these rashes. (Scroll down.)

This? 2009 http://www.physicaltherapytoolbox.com/pdfs/fatigue01.pdf