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  1. shak8

    Disability Benefits we can actually live on?

    In the US, when I qualified for social security disability benefits, I also qualified for getting on a five-year waiting list for reduced rent, if you then could find a place that would accept the voucher which very few landlords would accept. With the voucher (called Section 8 Housing) you...
  2. shak8

    Elevated Perceived Exertion in People with ME/CFS and Fibromyalgia: A Meta-analysis, 2020, Lindheimer et al

    Perhaps some of the increase of the perceived effort by patients is the result of the extra mental effort in keeping track of abnormal bodily sensations in order to distinguish whether or not one is doing too much.
  3. shak8

    Covid19 - Shielding and self-isolating for vulnerable people - policies and issues

    Just got a message from my (US) health insurance plan, an HMO, which asked me to make an appointment to COME IN in person for a lengthy wellness exam, which in my case is pretty much unnecessary and is not required. Suddenly it's business ($) as usual. The business of health care in this foolish...
  4. shak8

    Cochrane Review: Resistance exercise training for fibromyalgia Dec 2013

    Personal experience with resistance training (ie any resistance bands, or even bicep curls with soup cans) = rather extreme pain as a result. I view all exercise research in fibromyalgia to be a form of noxious brainwashing that I must avoid contact with.
  5. shak8

    Coronavirus - worldwide spread and control

    In my California small city in the past week, we've started a spike in cases which coincides with the recent relaxation of restrictions. Restaurants are not open as yet for indoor dining. I think it is hard for most people to maintain that ambiguous state of mind of allowed more normal...
  6. shak8

    The role of partners' fatigue and the patient-partner relationship in the outcome of cognitive behavioural therapy for CFS, 2020, Wearden/Knoop/et al

    In the Background section: (bolding is mine) There is evidence that behavourial factors play a role in the maintenance of symptoms." These are: negativity about fatigue, disturbed sleep, lowered activity level. The cited reference paper for the above statement is also by Knoop in which...
  7. shak8

    Covid-19 - Psychological research and treatment

    I grant you that routines save energy in normal-ish people. You don't have to think through all the steps of, say, your morning ablutions. Routines seem to enforce identity (which is a floating concept I think). All well and good, Chalder, stick with the trivial psychology of everyday stuff...
  8. shak8

    My mom is limited by a disability but still shows up in all ways that matter-Washington Post article

    Brittany Collins wrote back and said (among other nice things): "I so appreciate your attention to the sources included in the piece, and the time you took to seek out these other, very valuable resources. Though it's quite challenging to get editorial boards to alter a piece once published, I...
  9. shak8

    The role of partners' fatigue and the patient-partner relationship in the outcome of cognitive behavioural therapy for CFS, 2020, Wearden/Knoop/et al

    Meaningless one-off (baseline) "relationship dissatisfaction" data set. Whole lot of regression analysis, to what end? If the goal or question to warrant further study was to improve care and relationship satisfaction, fine. But no, it's to improve CBT outcomes for ME/CFS via tweaking the...
  10. shak8

    My mom is limited by a disability but still shows up in all ways that matter-Washington Post article

    Will send her these and ask her to use one/more next time, or this time, if she can get it corrected. Thank you, @Trish.
  11. shak8

    My mom is limited by a disability but still shows up in all ways that matter-Washington Post article

    I wrote her, but hadn't seen the links to Mayo and Merck Manual. What to link to instead?
  12. shak8

    Covid-19 - Psychological research and treatment

    Beware the psychologist with hurt feelings about the irrelevance of psychology to most sciences.
  13. shak8

    My mom is limited by a disability but still shows up in all ways that matter-Washington Post article

    https://www.washingtonpost.com/lifestyle/2020/05/08/what-i-learned-watching-my-mom-parent-with-disability/ Brittany Collins, author The mom has ME. May be paywalled.
  14. shak8

    MSD Manual (US): Chronic fatigue syndrome - updated Apr 2020 and Sept. 2021

    The Merck Manual, especially the version for doctors, has been and still is worse than Cliff Notes. A letter to Dr. Stephen Gluckman a good idea.
  15. shak8

    Patient experiences and the psychosocial benefits of group aquatic exercise to reduce symptoms of ME/CFS: a pilot study, 2020, Broadbent et al

    Moving one's body parts against the extraordinary weight of the water in a pool does give one an inordinate amount of strengthening per time of perceived effort. However, why this modality? Because it is effective and enjoyed by people with arthritis because of the off-loading of joints. Also...
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