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  1. rvallee

    NICE ME/CFS guideline - Stakeholder submissions to the draft and NICE responses - published 29th October 2021 - discussion thread

    This is genuinely "let them eat cake" level of being detached from reality. Sounds exactly like a millionaire complaining of having to look at homeless people and how it ruins their day. Holy narcissism, Batman. What is it doing taking up so much place in medicine, of all places?
  2. rvallee

    Trial of Long Covid treatment - AXA1125 from Axcella Therapeutics, 2021

    Oxford to test potential treatment for fatigue in long COVID patients https://www.ox.ac.uk/news/2021-10-29-oxford-test-potential-treatment-fatigue-long-covid-patients Dr Alison Schecter, President of R&D at Axcella, said: 'While Long COVID’s enormous patient and socioeconomic burden has become...
  3. rvallee

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    There's what we see and there's what's happening behind the scenes. No doubt there is far more politicking happening right now. The few glimpses we see in the FOIed documents is probably the tip of the iceberg. They really do have no arguments, but they have all the power. The only thing...
  4. rvallee

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Sadly this argument has been around for a long time and being utterly stupid hasn't stopped it from spreading unchallenged. Many of the proponents of the model claim they do not do GET, yet the only evidence for this entire paradigm is... GET. So they openly admit they don't have any evidence...
  5. rvallee

    NICE ME/CFS guideline - Stakeholder submissions to the draft and NICE responses - published 29th October 2021 - discussion thread

    Those comments are terrifying in revealing medicine's flaws. Medicine truly only seems to make significant progress by way of science and technology, if it were left to medical practice alone barely anything would progress at all. It's PhDs that make things move forward, MDs are holding back not...
  6. rvallee

    Supporting patients with long COVID return to work, 2021, Madan, Briggs and Chew-Graham

    These people live in a fantasy universe. They're still not paying any attention to what the patients are reporting, simply make up their own facts as they want.
  7. rvallee

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Yes. And we've never been at war with East Asia. Always West Asia. Always. Read the reports!
  8. rvallee

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Ironically, it's one of the most fundamental philosophical principles that one's freedom ends where it harms others. But clearly harm has as wide a range of definitions in medicine as freedom does. Freedom is almost always the rallying cry of tyrants, not coincidentally.
  9. rvallee

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    The difference between the "court of public opinion" and an official court-like process. Same process with "the election was stolen" in public but admitting in front of every judge, under oath, that, no, it wasn't. They're playing politics and, as said above, as if the roundtable didn't even...
  10. rvallee

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    What a petulant and unprofessional response. Textbook rejecting evidence and substituting their own. Clearly what evidence-based medicine means is "evidence I agree with", which defeats the entire purpose.
  11. rvallee

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    I may have missed it but I hope there's nothing in the guideline about "goals", "agreed" or not.
  12. rvallee

    Fatigue in patients with chronic disease: results from the population-based Lifelines Cohort Study, 2021, Goërtz, Knoop et al

    I think ultimately it's that they only think of causes, never consequences. BPS ideologues explicitly take the consequences and assign them as causes, if they can, or ignore them entirely. So all the things that can only be consequences, not causes, simply don't make it in their minds. It's not...
  13. rvallee

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Journalists and editors wouldn't know to use them. What would be useful would be to provide those photos for the commonly-used platforms (e.g. Getty), properly tagged. Although there will always be a problem that any photo labeled "fatigue" will be completely inadequate, especially as despite...
  14. rvallee

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Given that it's massively important to take every media opportunity to remind people that this was an extensive 3+ years evidence review process, not a campaign of any kind, that lead to those conclusions. The only role activism played in this is to make it happen. And it did, but the...
  15. rvallee

    Fatigue in patients with chronic disease: results from the population-based Lifelines Cohort Study, 2021, Goërtz, Knoop et al

    In the sense that disability support, sick leave and other important features related to dealing with chronic illness are psychosocial, then sure, why not? I don't know why they would be classified as psychosocial but whatever. Otherwise I have no idea what those supposed psychosocial ideas have...
  16. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    It's a damn shame this isn't studied in general. One of the main consequences of psychosomatic ideology is that it turns the people closest to you against you, or makes them go away in a time of greatest need.
  17. rvallee

    Sleep problems in ME/CFS - discussion thread

    Posts moved from Open Medicine Foundation (OMF) Could be interesting to check.
  18. rvallee

    Long covid after breakthrough infection

    Merged thread Accounting for the fact that breakthrough infections are less likely to occur after immunization and are less severe, the risk of Long Covid appears relatively the same. Which could tell us something about the process that kickstarts it. Six-month sequelae of post-vaccination...
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