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Google didn't bring up anything old, so I'd guess it's new.

I'd like to see this statement in full:

Maybe it would be worth @dave30th mentioning his troubles with COPE to retraction watch? Their handling of his concerns seem more clearly bad than this example.

Just saw this had picked up 4k views in the first hour, so thought it was worth mentioning: Looks like the creator is mainly a fashion vlogger, and she has a connective tissue disorder, pain, fatigue and hearing difficulties. This is her description of the vid: I've not watched it yet, but...

I know amitriptyline gets recommended to help with migraines, pain and sleep problems, all things that can be an issue with ME/CFS.

There are good things about the article... it's just so Guardian! The culture of that paper bugs me. Also, while it's rarely the author who chooses the headline, the 'my long battle to understand the mysteries of ME' intro to this piece really implies that some sort of rigorous examination of...

Oops - edited in.

"Missing the fizz: my long battle to understand the mysteries of ME" https://www.theguardian.com/society/2018/may/06/missing-the-fizz-my-long-battle-to-understand-the-mysteries-of-me The author has written a book on pursuing alternative healthcare. PACE bit, which does link to the new...

That doesn't sound good - not that I could read any of the two pages there though.

I see it as a good sign that Action for ME asked a question about PACE, and Chris' answer seemed fair and informed when I suspect that many would have been tempted to be evasive.

Some good comments under this too. This project is taking on some interesting issues that I've only ever thought about quite vaguely in the past. Thanks to all involved.

I don't know. It had been stated AYME were assisting with FITNET-NHS, so if that has changed, should participants and ethics committees be informed of the change? I just looked at the FITNET-NHS FAQ, and see that they have added a link to Crawley's TEDx talk, even though the video itself has...

There's so much uncertainty around criteria that I find it difficult to have much of an opinion about anything.

Why would they be collaborating with the North Bristol NHS Trust? The boom and bust, and “high alert” switch stuff, looks like unhelpful story-telling of the sort used to justify quackery.

I found the tone too much to get through (it was very long too!). Might be useful for showing the sorts of things in personal stories that can be used against people? I find this sort of anecdote driven journalism a bit of an uninteresting slog. Mosaic is the Wellcome Trust magazine - they're...

https://www.mddus.com/resources/publications-library/insight/q4-2017/diagnosis-unforthcoming?platform=hootsuite Burton often comes up with shamelessly over-confident stuff about how to manage and explain medically unexplained symptoms (he'd prefer some other over-arching term). This was his...

Or that those who believe they have a fungal infections are more likely to report benefit from anti-fungals.

I can't remember the study that is sometimes cited to support this point, but it fails to do so, and I'm not aware of any good evidence to support the claims made about this. Here are some examples of people making this claim without citing supporting evidence: From Wessely talking BS to the...

From memory: There was a study indicating that those who thought they had a psychological problem were more likely to report benefiting from psychological treatment, and this has then been repeatedly misrepresented.

I had thought that the Recovery Norge group was just run by idiots, but actually they seem quite nastily manipulative.