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  1. Kalliope

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome', Larun et al. - New version October 2019 and new date December 2024

    Abstract: BACKGROUND:Cochrane recently amended its exercise review for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in response to an official complaint. OBJECTIVE:To determine if the amended review has addressed the concerns raised about the previous review and if exercise is...
  2. Kalliope

    DecodeME - UK ME/CFS DNA study underway

    Wonderful that it's available for all to see! Yes, it was excellent :thumbup:
  3. Kalliope

    DecodeME - UK ME/CFS DNA study underway

    (Article with interview of Muirhead is paywalled)
  4. Kalliope

    Open Book: On Reclaming Brokenness and Refusing the Violence of "Recovery Narratives" by A.H. Reaume

    Spotted this on twitter today and warmly recommend it! It took me a while to realize that the way I saw myself and the way I was treated was directly caused by the harmful cultural stories we tell about injury and disability and health and accommodation and value. Those wrong maps are the...
  5. Kalliope

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    A Norwegian news site for research has written an article about the music therapy study. The journalist is Ingrid Spilde who has written several good articles about ME research before (including the PACE trial). It seems she's actually read the study and sees through the spin. Wyller is...
  6. Kalliope

    Sweden - RME news

    I was wondering the same, but now I see he's going to attend via video
  7. Kalliope

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    Here's a presentation of Simone Ragavooloo, the Research Integrity Coordinator from BMJ: With formal academic qualifications in biological sciences and extensive experience across both the production and editorial branches of Science, Technology, Engineering and Mathematics (STEM) publishing...
  8. Kalliope

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    Trial By Error: BMJ Responds to Appeals About Norway's CBT-Music Therapy Study This morning, I received a message from BMJ’s “research integrity coordinator.” Hm. That seems like an important position at BMJ, given what appears to be a major lack of research integrity in some of the papers I...
  9. Kalliope

    Sweden - RME news

    Merged thread ME conference on PEM 14-15th Oct 2020 The Swedish patient organisation RME is organising an ME conference about PEM. 14th October in Stockholm 15th October in Malmö Lecturers Prof. Kristian Sommerfelt - University in Bergen, Norway Prof. Betsy Keller - Ithaca College, USA Dr...
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