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  1. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    This was a good article. Seems another one is in the making: Tweet from It'sME(Jaime)@exheedhergrasp1 The author of this article, Frank Diamond, interviewed me today -- probably coming out next week. He concluded with, "good luck in the fight." Grateful for people who are invested in getting...
  2. Kalliope

    United Kingdom: Independent SAGE

    Thank you! I must have gotten something wrong. Will correct.
  3. Kalliope

    United Kingdom: Independent SAGE

    @Robert 1973 Your question was asked today. At about 51 minutes: ETA: correct time
  4. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    BBC Inside Science Predicting Long Covid, and the Global Toll of Antimicrobial Resistance From the description: Prof Onur Boyman, Director of department of Immunology at University Hospital, Zurich, this week published a paper in the journal Nature Communications that presents a way of...
  5. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Danish news about health care workers who suffers from Long Covid being of risk of becoming fired. Wonder who they plan to replace them with.. TV2 Direktør om syge ansatte: - Ulykkeligt, men vi kan blive nødt til at afskedige google translation Director about sick employees: - Unfortunate, but...
  6. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Daily Mail Long Covid expert says the world is in 'deep trouble' quote: Dr Leonard Jason is a psychology professor at Depaul University that works with long Covid patients. He told DailyMail.com that the potential of the Omicron wave causing the condition in so many survivors could have severe...
  7. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Great interview with Jamie Seltzer Society to Improve Diagnosis in Medicine Understanding ME/CFS and Long COVID as Post-Viral Conditions Quote: The experience of patients whose COVID-19 symptoms persist for four weeks or more—Long COVID or post-COVID syndrome—has led to renewed interest in...
  8. Kalliope

    Pelvic Congestion Syndrome

    Thanks. I did not know that this seems to be a common phenomenon also outside of this patient group. I'm afraid you're probably right in that assumption :( Oh my, that' a lot. So glad to hear endometriosis treatment has helped, and hope you didn't have to go very long with a lot of pain before...
  9. Kalliope

    Development and testing of new vaccines against EBV and other viruses

    Cambridge Independent Cambridge ME Support Group chair welcomes Moderna vaccine trials for Epstein-Barr virus The article also mentions the updated NICE guidelines. Quote: The chairman of the Cambridge ME Support Goup, Mark Harper, has welcomed Moderna’s announcement of preliminary trials for...
  10. Kalliope

    The Effects of Messaging on Long COVID Expectations: An Online Experiment, 2022, Mills et al

    Posts about the preprint of this paper that were on the psychologising Long Covid thread have been merged with the new thread on the paper now published.
  11. Kalliope

    Podcast The Feel Good Café: The Energy Envelope Theory for Patients with ME, by Prof Leonard Jason

    Description: The Feel Good Café In this podcast episode, prof. Leonard Jason discusses how myalgic encephalomyelitis became chronic fatigue syndrome. He also covered the difference in fatigue someone with depression may experience in comparison to patients with ME. He then talked to me about the...
  12. Kalliope

    Pelvic Congestion Syndrome

    Last summer BBC had an article on Pelvic Congestion Syndrome. I had never heard of that before, and neither had my doctor, but then dr. Peter Rowe mentioned it briefly in his recent lecture for FNIH titled: Observations on long Covid through an ME/CFS lens (at approximately 13. minutes) by the...
  13. Kalliope

    Dialogues for a neglected illness - videos on experiences of people with ME (funded by Wellcome Foundation)

    Trial by Error by David Tuller: Q-and-A with Natalie Boulton, Director of "Dialogues for a Neglected Illness" quote: I recently asked Natalie Boulton some questions about the project and its impact. Here is an edited version of that exchange:
  14. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Salon The kids are not alright: Data suggests 10% of children with COVID-19 become "long-haulers" No mention of ME, but dr. Peter Rowe is among quoted experts: "No one is certain exactly how many people who've had COVID-19 end up being long haulers," wrote Johns Hopkins University School of...
  15. Kalliope

    Decreased NO production in endothelial cells exposed to plasma from ME/CFS patients, Bertinat et al (2022)

    Francisco Westermeier, one of the researchers, has written a summary on Twitter:
  16. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Another thing to keep in mind regarding today's Long Covid report from the Norwegian Institute of Public Health is that they've been a voice for as few restrictions as possible throughout the pandemic and only a few days ago the director said they now want people to get infected. Long Covid...
  17. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The Norwegian Institute of Public Health has today published a report about Long Covid. One of the authors are KG Brurberg who also co-authored the Cochrane review on ME and graded exercise therapy. The report is peer reviewed by among others research director Signe Flottorp, who is very...
  18. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Opinion piece by Jennie Spotila in The Philadelphia Inquirer: I have a chronic illness. During COVID, isn't my life worth protecting? Quote: Almost 30 years ago, I got sick with a virus that led to myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) — a debilitating neuroimmune disease...
  19. Kalliope

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Professor Kunst comments to Garner
  20. Kalliope

    MElivet - Blog posts by Nina E. Steinkopf

    New blog post from Nina E. Steinkopf in English translation. This time about Lightning Process which she compares with classical red flags of religious sects. Is the Lightning Process a sect?
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