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Lovely! I just saw that there's a new patient organisation in Germany called StartaMEvolution. They appear to be so new that not much information is available about them at this point in time. The call themselves "SAME" which I have already once misread as "S4ME"...

A Tweet by Polybio with regards to this study “They are expanding on the findings in this study, where measurement of complement proteins in blood will be combined with analysis of potential #SARS-CoV-2 reservoir in lung tissue, and measurement of endothelial dysfunction at that site...

Merged thread Genetic risk factors for severe and fatigue dominant long COVID and commonalities with ME/CFS identified by combinatorial analysis Abstract Background Long COVID is a debilitating chronic condition that has affected over 100 million people globally. It is characterized by a...

Effectiveness of Nirmatrelvir–Ritonavir Against the Development of Post–COVID-19 Conditions Among U.S. Veterans Background: COVID-19 has been linked to the development of many post–COVID-19 conditions (PCCs) after acute infection. Limited information is available on the effectiveness of oral...

"The ME Association and ME Research UK announce funding for a study that aims to create a diagnostic test for ME/CFS" https://meassociation.org.uk/2023/10/the-me-association-and-me-research-uk-announce-funding-for-a-study-that-aims-to-create-a-diagnostic-test-for-me-cfs/

Haha, I actually saw this paper yesterday but gave up when I saw the name Vinay Prasad. Thanks for clearing that up :)

Thank you! Then it is indeed my fault as I was too stupid to find it.

Well age matched and not too focused on older age groups. However almost 1/2 of LC patients in this study are overweight so possibly a lot of noise here. The largest chunk of data (including basic data such as Cohort demographics, symptomatology, and other key features) is in the supplementary...

Published abstract and link here Preprint Complement dysregulation is a predictive and therapeutically amenable feature of long COVID Background: Long COVID encompasses a heterogeneous set of ongoing symptoms that affect many individuals after recovery from infection with severe acute...

Great, so the only statement they've ever made is to pick fights with other patient organisations. Seems very similar to https://twitter.com/LongCovidAP and their founder https://twitter.com/JoshuaPribanic whose main focus seems to be to pick fights left and right with other patient...

I'm able to translate some messages to German if you forward them to me :)

A hypoarousal model of neurological post-COVID syndrome: the relation between mental fatigue, the level of central nervous activation and cognitive processing speed Background Knowledge on the nature of post-COVID neurological sequelae often manifesting as cognitive dysfunction and fatigue is...

COVID-19 Recovery: Consistent Absence of Cerebrospinal Fluid Biomarker Abnormalities in Patients With Neurocognitive Post-COVID Complications Abstract Background To investigate evidence of residual viral infection, intrathecal immune activation, central nervous system (CNS) injury, and humoral...

Validating some of the findings of Douglas Frasers team whose work and choice of cohort (predominantly older, a slight majority of males, often with pre-existing conditions, with predominantly respiratory and coughing problems) has been discussed here...

Validation of ANG-1 and P-SEL as biomarkers of post-COVID-19 conditions using data from the Biobanque québécoise de la COVID-19 (BQC-19) The quest for understanding and managing the long-term effects of COVID-19, often referred to as Long COVID or post-COVID-19 condition (PCC), remains an...

That's great @NelliePledge, thank you for doing this! There's also NichtGenesen and their english speaking analogue NotRecovered, both are based in Germany from what I know. Unfortunately, they don't seem to be as well setup as other organisations (they aren't an NGO, e.V. or similar) but they...

Long-term health impacts of COVID-19 among 242,712 adults in England Abstract The COVID-19 pandemic is having a lasting impact on health and well-being. We compare current self-reported health, quality of life and symptom profiles for people with ongoing symptoms following COVID-19 to those who...

An article on the study has also been published in Nature: https://www.nature.com/articles/d41586-023-03295-w#ref-CR1. A twitter thread by one of the authors of the study: www.twitter.com/IlievLab/status/1716568790903787819?t=gipAcjAvDXDrkrlGZFqXtQ&s=19.