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  1. Andy

    Opinion: ‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal - George Monbiot

    Trial By Error: Guardian Columnist George Monbiot Discusses His Scathing Critique of the “Biopsychosocial” Approach to ME/CFS and Long Covid "Earlier today I spoke with George Monbiot, a British investigative reporter and political activist, who has been a columnist for The Guardian for almost...
  2. Andy

    Wakefulness-promoting agents for severe fatigue: to use or not to use? 2024 De Wit et al

    Abstract About 20% of adults experience excessive daytime sleepiness or severe fatigue. Causes include somatic conditions, psychiatric disorders, and medication or drug use. Treatment depends on the underlying cause. If sleepiness persists despite optimal treatment of the underlying condition...
  3. Andy

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    Interesting. A caveat would be though whether the Lifelines cohort identifies ME/CFS accurately or not, and I believe there are doubts about that.
  4. Andy

    Review Evaluation of Tools to Assess Symptoms and Symptom Severity in Patients With [MUPS]: A Systematic Review... 2024 Baboo et al

    Full title: Evaluation of Tools to Assess Symptoms and Symptom Severity in Patients With Medically Unexplained Physical Symptoms: A Systematic Review and Narrative Synthesis Abstract A substantial portion of patients presenting to healthcare settings exhibit physical symptoms lacking clear...
  5. Andy

    Sensory Processing Difficulties and Occupational Therapy Outcomes for Functional Neurological Disorder 2024 McCombs, Perez et al

    Abstract Background and Objectives Occupational therapy (OT) consensus recommendations and articles outlining a sensory-based OT intervention for functional neurological disorder (FND) have been published. However, limited research has been conducted to examine the efficacy of OT interventions...
  6. Andy

    UK: Guardian: ‘She wants to go to school’: parents of unwell child fear truancy prosecution

    "Chloe Beak lives with chronic, debilitating migraines, which leave her unable to attend school for days at a time. But instead of receiving support from her school, her parents have been fined by the local authority for her truancy. The family’s current fix is to send their daughter in with a...
  7. Andy

    International: Science for ME social media posts

    Published papers thread for w/c 8th April Facebook: https://www.facebook.com/sci4me/posts/pfbid0mnTxwmUUdF1UZ6XyimCz9Q97rbYCYcE2WxZ1MUFK176yfk17XQkM6G1x27bbqhdel Mastodon: https://med-mastodon.com/@s4me/112275061825057564
  8. Andy

    Exploring the interplay between psychotic experiences, functional somatic symptoms and health anxiety in childhood and adolescence... 2024 Rimvall+

    Full title: Exploring the interplay between psychotic experiences, functional somatic symptoms and health anxiety in childhood and adolescence – A longitudinal cohort study Abstract Background Similarities exist between contemporary explanatory models underlying psychosis development...
  9. Andy

    Somatic symptom distress is not related to cardioceptive accuracy 2024 Petzke et al

    Highlights Correctly counting heartbeats (cardioception) is not related to symptom reporting. Cardioceptive tasks and interoception questionnaires are not related. The cardiovascular signal detection task is a useful and valid cardioception task. Cardioception is likely not a mechanism...
  10. Andy

    Review Long COVID: Long-Term Impact of SARS-CoV2 2024 Makhluf et al

    Management of children with long COVID continues to evolve according to protocols that (1) are based on expert opinions, (2) are extrapolated from guidelines in adult medicine, and (3) rely on already established approaches used to manage other chronic pediatric conditions like chronic fatigue...
  11. Andy

    Review Long COVID: Long-Term Impact of SARS-CoV2 2024 Makhluf et al

    2.3. Dysautonomia and Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Dysautonomia and symptoms related to Myalgic Encephalomyelitis and Chronic Fatigue Syndrome (ME/CFS) overlap with the clinical manifestations of LC. Common symptoms and include persistent fatigue, post-exertional...
  12. Andy

    Review Long COVID: Long-Term Impact of SARS-CoV2 2024 Makhluf et al

    Abstract Four years post-pandemic, SARS-CoV-2 continues to affect many lives across the globe. An estimated 65 million people suffer from long COVID, a term used to encapsulate the post-acute sequelae of SARS-CoV-2 infections that affect multiple organ systems. Known symptoms include chronic...
  13. Andy

    Genetic variants associated with chronic fatigue syndrome predict population-level fatigue severity and actigraphic measurements, 2024, Liu et al.

    As far as I can tell this is a poster presentation, so further details aren't available?
  14. Andy

    International: Science for ME social media posts

    News in Brief posts for w/c 8th April. Facebook: https://www.facebook.com/sci4me/posts/pfbid02D2D4g8BoZhMbo6Rgfarv92Lhb2gNN4hjvz4ThCVkmgUbTtrPf4bgfA4VYSHshDXDl Mastodon: https://med-mastodon.com/@s4me/112269023884040663
  15. Andy

    Protocol Efficacy of patient education and duloxetine, alone and in combination, for patients with multisystem functional somatic disorder:... 2024 Jespersen+

    "Functional somatic disorders (FSD) are characterized by specific patterns of persistent physical symptoms with a complex etiology involving a multiform interplay between physiological, psychological, and sociocultural factors [1,2]. Patients with FSD are prevalent in all medical settings and...
  16. Andy

    Protocol Efficacy of patient education and duloxetine, alone and in combination, for patients with multisystem functional somatic disorder:... 2024 Jespersen+

    Full title: Efficacy of patient education and duloxetine, alone and in combination, for patients with multisystem functional somatic disorder: Study protocol for the EDULOX trial Fink is also an author. Abstract Background Multisystem functional somatic disorder is characterized by specific...
  17. Andy

    Protocol Personalized Management of Fatigue in Individuals With [ME/CFS] and [LC] Using a Smart Digital mHealth Solution:... 2024 Dorronzoro-Zubiete et al

    Full title: Personalized Management of Fatigue in Individuals With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Long COVID Using a Smart Digital mHealth Solution: Protocol for a Participatory Design Approach Abstract Background:Fatigue is the most common symptom in myalgic...
  18. Andy

    The disappearance of ME/CFS

    The arguments that giving someone a diagnosis of ME/CFS in addition to Long Covid is detrimental to the patient and research into Long Covid should be selective, and this argues for maintaining a separate diagnosis, have also been made by David Putrino.
  19. Andy

    Irritable Bowel Syndrome

    Over-exertion/PEM causes me a cycle of gut pain, constipation and diarrhoea (among other symptoms) and certain foods cause gut pain and diarrhoea. I've never been able to interest any GP in taking these things seriously, so have no diagnosis of IBS or otherwise.
  20. Andy

    Psychological flexibility in somatic symptom and related disorders: A case control study 2024 Selker et al

    Highlights Psychological flexibility in people with somatic symptom disorder (SDD) is low. Three out of four patients with SSD have low or very low psychological flexibility. Lower psychological flexibility is associated with lower mental health. Assess psychological flexibility in SSD in...
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