"Work to develop three E-learning modules has been overseen by Dr David Strain (Medical Adviser to Action for M.E.) and Essi Niitymaki (TEL Education Content Senior Project Manager, NHS England). Also involved were a group of clinicians with an interest in ME/CFS, charity representatives...
APPG on ME - Severe ME Inquiry
The All-Party Parliamentary Group on ME (APPG) has launched its inquiry into Severe ME.
Action for M.E., the ME Association, and the 25% M.E. Group will be working closely to support the APPG throughout the inquiry’s duration.
The purpose of the inquiry is to...
One trial has resulted in three papers. As well as this main paper, there is:
Which factors predict outcome from specialist physiotherapy for functional motor disorder?... 2025, Nielsen, Stone, Carson, Edwards et al
Cost Utility of Specialist Physiotherapy for Functional Motor Disorder...
Inquiry to begin into DWP’s treatment of ill and disabled people on benefits
"The treatment of chronically ill and disabled people by welfare officials, including benefits decisions subsequently linked to the deaths of vulnerable claimants, is to be formally investigated by Britain’s human...
Personally, given that this is an event organised by a UK organisation, I would have preferred to see this topic covered by the 25% ME Group, who are both based in the UK and specifically focus on this group of patients.
adn this could have been covered by, perhaps, someone from ME Research UK...
The claim By Ron about patients having MS has previously been discussed here, if it helps, Dr Ron Davis - Updates on ME/CFS research - September 2019 onwards
Abstract
We introduce here a general model of Functional Neurological Disorders based on the following hypothesis: a Functional Neurological Disorder could correspond to a consciously initiated voluntary top-down process causing involuntary lasting consequences that are consciously experienced...
Ignoring the jumbled confusing use of ME, CFS and ME/CFS in the abstract.
"Consenting individuals completed the following three questionnaires: 1) Symptoms Assessment Questionnaire (SAQ) for diagnosis confirmation, which is a symptom specific questionnaire for ME/CFS diagnosis aid [25]; 2)...
Not directly about FII or ME/CFS but demonstrates the 'wider landscape' around these sort of issues.
Schools in England send police to homes of absent pupils with threats to jail their parents
Some schools in England are sending police to the homes of children who are persistently absent, or...
Pacing with a heart rate monitor to minimize post-exertional malaise (PEM) in ME/CFS and long COVID
https://workwellfoundation.org/pacing-with-a-heart-rate-monitor-to-minimize-post-exertional-malaise-pem-in-me-cfs-and-long-covid/
News in Brief post for w/c 13th May.
Facebook: https://www.facebook.com/sci4me/posts/pfbid02UuXQ2eZBucmGCVm5Rg3qPYxxyzAnEAJfRRfzyQZSMz8h4ZmTYB48PxT2nVRAHT3vl
Mastodon: https://med-mastodon.com/@s4me/112466941384956150
Presumably they would have been vetted in order that they wouldn't indulge in "hysterical projection, catastrophising, conspiracy theories, overt hostility and insults", or constructive criticism as most people call it.
‘Personalising stuff that doesn’t matter’: the trouble with the Zoe nutrition app
"Like other companies working in this space, Zoe has all the hallmarks of serious science. Its US equivalent Levels counts among its advisers many respected scientists, including Robert Lustig, famous for raising...
Abstract
Objective
The somatic symptom disorder (SSD) is characterized by one or more distressing or disabling somatic symptoms accompanied by an excessive amount of time, energy and emotion related to the symptoms. These manifestations of SSD have been linked to alterations in perception and...
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