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  1. Andy

    Prevalence in UK by area

    This, Unequal access to diagnosis of myalgic encephalomyelitis in England, 2024, Ponting and Samms, might be of use.
  2. Andy

    NHS England - E-learning Modules on ME/CFS

    David Strain was appointed medical advisor to AfME in July 2021, United Kingdom: Action for ME (AfME) news
  3. Andy

    NHS England - E-learning Modules on ME/CFS

    "Work to develop three E-learning modules has been overseen by Dr David Strain (Medical Adviser to Action for M.E.) and Essi Niitymaki (TEL Education Content Senior Project Manager, NHS England). Also involved were a group of clinicians with an interest in ME/CFS, charity representatives...
  4. Andy

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    APPG on ME - Severe ME Inquiry The All-Party Parliamentary Group on ME (APPG) has launched its inquiry into Severe ME. Action for M.E., the ME Association, and the 25% M.E. Group will be working closely to support the APPG throughout the inquiry’s duration. The purpose of the inquiry is to...
  5. Andy

    Trial Report Specialist physiotherapy for functional motor disorder in England and Scotland (Physio4FMD):... 2024 Nielsen, Stone, Carson, Edwards et al

    One trial has resulted in three papers. As well as this main paper, there is: Which factors predict outcome from specialist physiotherapy for functional motor disorder?... 2025, Nielsen, Stone, Carson, Edwards et al Cost Utility of Specialist Physiotherapy for Functional Motor Disorder...
  6. Andy

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2024 and 2025

    Inquiry to begin into DWP’s treatment of ill and disabled people on benefits "The treatment of chronically ill and disabled people by welfare officials, including benefits decisions subsequently linked to the deaths of vulnerable claimants, is to be formally investigated by Britain’s human...
  7. Andy

    Webinar 4th June 2024: Royal College of Physicians Edinburgh RCPE: ME/CFS and Long COVID

    Personally, given that this is an event organised by a UK organisation, I would have preferred to see this topic covered by the 25% ME Group, who are both based in the UK and specifically focus on this group of patients. adn this could have been covered by, perhaps, someone from ME Research UK...
  8. Andy

    UniteToFight2024 Long Covid and ME/CFS conference, 15th and 16th May 2024

    The claim By Ron about patients having MS has previously been discussed here, if it helps, Dr Ron Davis - Updates on ME/CFS research - September 2019 onwards
  9. Andy

    Hypothesis A global neuronal workspace model of functional neurological disorders 2024 Naccache and Munoz-Musat

    Abstract We introduce here a general model of Functional Neurological Disorders based on the following hypothesis: a Functional Neurological Disorder could correspond to a consciously initiated voluntary top-down process causing involuntary lasting consequences that are consciously experienced...
  10. Andy

    International: Science for ME social media posts

    Published papers thread for w/c 13th May. Facebook: https://www.facebook.com/sci4me/posts/pfbid0j51EPaDCNnTnDQj8zJm3sTk8aNYiK3W1kAbgNVxbYY7Ua9eZSrKPWbGutjiU7F8yl Mastodon: https://med-mastodon.com/@s4me/112472430880784636
  11. Andy

    Preprint Epidemiology of Myalgic Encephalomyelitis among individuals with self-reported CFS in BC, Canada, and their health-related quality of life, 2024,Nacul

    Ignoring the jumbled confusing use of ME, CFS and ME/CFS in the abstract. "Consenting individuals completed the following three questionnaires: 1) Symptoms Assessment Questionnaire (SAQ) for diagnosis confirmation, which is a symptom specific questionnaire for ME/CFS diagnosis aid [25]; 2)...
  12. Andy

    General news about Fabricated and Induced Illness syndrome (FII)

    Not directly about FII or ME/CFS but demonstrates the 'wider landscape' around these sort of issues. Schools in England send police to homes of absent pupils with threats to jail their parents Some schools in England are sending police to the homes of children who are persistently absent, or...
  13. Andy

    International: Science for ME social media posts

    Always happy to see other people sharing the hard work of the News in brief team.
  14. Andy

    What is the Todd Davenport approach to pacing?

    Not that I am aware of. You could try emailing him at tdavenport@pacific.edu
  15. Andy

    What is the Todd Davenport approach to pacing?

    Pacing with a heart rate monitor to minimize post-exertional malaise (PEM) in ME/CFS and long COVID https://workwellfoundation.org/pacing-with-a-heart-rate-monitor-to-minimize-post-exertional-malaise-pem-in-me-cfs-and-long-covid/
  16. Andy

    International: Science for ME social media posts

    News in Brief post for w/c 13th May. Facebook: https://www.facebook.com/sci4me/posts/pfbid02UuXQ2eZBucmGCVm5Rg3qPYxxyzAnEAJfRRfzyQZSMz8h4ZmTYB48PxT2nVRAHT3vl Mastodon: https://med-mastodon.com/@s4me/112466941384956150
  17. Andy

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    Presumably they would have been vetted in order that they wouldn't indulge in "hysterical projection, catastrophising, conspiracy theories, overt hostility and insults", or constructive criticism as most people call it.
  18. Andy

    News from PolyBio Research Foundation

    It was probably because people who noticed, or knew about, the event didn't post about it here, which could be for a variety of reasons.
  19. Andy

    Anyone tried Zoe - a nutrition app?

    ‘Personalising stuff that doesn’t matter’: the trouble with the Zoe nutrition app "Like other companies working in this space, Zoe has all the hallmarks of serious science. Its US equivalent Levels counts among its advisers many respected scientists, including Robert Lustig, famous for raising...
  20. Andy

    Changes in interoceptive accuracy related to emotional interference in somatic symptom disorder, 2024, Lee et al

    Abstract Objective The somatic symptom disorder (SSD) is characterized by one or more distressing or disabling somatic symptoms accompanied by an excessive amount of time, energy and emotion related to the symptoms. These manifestations of SSD have been linked to alterations in perception and...
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