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Plus the fact that undergraduates need to do their research study in order to progress in their chosen field! It's rarely gonna be a groundbreaking study, but helping an undergraduate by participating in their research is a way to help people to achieve their potential. And to reduce the stress...

Can you sign it if you live in a country which has just left the EU?

I hope I have misunderstood you here. It sounds like you are saying that you told NICE that PWME need a more persuasive version of CBT?!

If you want to be an ally to PWME, please don't go round saying that ME can respond long-term to placebo. That is exactly the sort of thing that the psych brigade will lap up. Ooh look it's all in their heads, they just need to believe that they're receiving a treatment that works!

I see your points here.

And frankly, if it was easy to produce improvements in functional capacity with placebo in this illness, then ME wouldn't be such a serious, life-ruining illness. (Since it is the impact upon functional capacity which makes this illness life-ruining.)

In a PWME, a placebo is not going to produce a persistent improvement in step count. Unless the PWME was currently doing less exercise than they actually could. Which is unusual - most of us are doing the max thay we can without making ourselves more ill. If someone increased their activity...

Tweet updates from Bhupesh Prusty: https://s4me.info/threads/tweets-from-bhupesh-prusty.13416/

(On a side note, I am wondering how you take a biopsy from a human brain?! Does the person have to be dead?)

That may have been a statement made specifically for that patient's personal case.

Are you referring to Jenny's case? If so, I don't think any of us know enough about her individual case to be able to comment on that.

But another review disagrees. https://www.ncbi.nlm.nih.gov/m/pubmed/28730271/ https://www.bmj.com/content/366/bmj.l4508.full "In our critical review, we found that serious adverse event signals were already present in the largest randomised trials of HPV vaccines. These signals were ignored...

I'm hearing excellent things about the new consultant doctor at the Barberry at the Birmingham Q Elizabeth hospital. Apparently he sees it as a biomedical illness and rejects all psychological models. (Even though ME/CFS is under neuropsychiatry at that hospital.)

I don't think anyone here disagrees with you on that.

I too was devastated to read the update from Jenny's family this morning. I want to ask (this isn't aimed at anyone in particular), please, please don't turn Jenny's case into a football for the CCI debate. I imagine that that would cause her (and her family and friends) significant distress...

I heard something about giardia lamblia? Herpesviruses?

Yes, Charles Shepherd has said that was his trigger

How bad is this compared to the swine flu in 2009?

Fucking heck (am I allowed to say that on this forum?) So they're now renaming GET / graded activity as "pacing up" And telling people that "pacing up" is not GET Because they know that the patient community says that GET is bad and pacing is good Fucking heck. You can't just change the...