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  1. MeSci

    BBC Radio Northampton phone-in with Charles Shepherd

    It runs from about 1037 - 2108, then there's some conversation with Louise who claims to have benefited from CBT from about 2408 - 3045, then there's some odd mention of someone who phoned in from about 3615 - don't know if there was any more. Louise does say that she still has the condition...
  2. MeSci

    BBC Radio Northampton phone-in with Charles Shepherd

    This is all I know so far - anyone know more? Programme: Helen Blaby Station: BBC Radio Northampton Datum: August 1, 2018 Time: 12:00 WebRadio: https://www.bbc.co.uk/programmes/p06cdjnv Item: Charles Shepherd and a phone-in
  3. MeSci

    BBC: 'Vindication' for woman who wanted ME on death certificate

    Thank you - I can view it now.
  4. MeSci

    PEM discussion thread - post-exertional malaise

    I think I'm about 50% disabled at present by the ME disability scale: http://www.meassociation.org.uk/2016/05/the-mea-disability-rating-scale-2016/.
  5. MeSci

    Countryfile at 1900 on BBC1 290718 features Lyme Disease

    Tonight's Countryfile has the following feature (if it's not changed as it is so often!): Programme is at 1900, also shown on recording at https://www.bbc.co.uk/programmes/b0bdllcr "Tom (Heap) looks at what is being done to fight lyme disease, a debilitating illness that affects up to 3,000...
  6. MeSci

    ME Association: Dr Shepherd provides an update on antibiotic use in M.E. and highlights concerns about quinolones and fluroquinolones

    I mean, can they have the same effects on ME patients as quinolones and fluoroquinolones?
  7. MeSci

    ME Association: Dr Shepherd provides an update on antibiotic use in M.E. and highlights concerns about quinolones and fluroquinolones

    What about quinolines, like Clioquinol? I've found reference to taking this in 2007 around the same time as I started the dreaded perindopril (which put me in hospital with low blood salt).
  8. MeSci

    Merryn Crofts - media and inquest

    Is there any more after the first bit ends at about 34.00?
  9. MeSci

    Opinion piece: "Cannabis law reforms would let chronically ill people like me live in less pain and more dignity" by an ME patient

    There's some interesting info here: https://www.leafscience.com/2017/11/22/thc-cbd-difference/
  10. MeSci

    Opinion piece: "Cannabis law reforms would let chronically ill people like me live in less pain and more dignity" by an ME patient

    I thought that the amounts of THC contained in modern stuff were excessive, and responsible for addiction, etc?
  11. MeSci

    Petition to ask government agencies adopt ICC

    What do they mean by "other countries that are affected by US health policy"? Does that include the UK or not?
  12. MeSci

    Identification of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome-associated DNA methylation patterns, 2018, Trivedi, Klimas et al

    I presume CpG = where a cytosine nucleotide is followed by a guanine nucleotide in the linear sequence of bases along its 5' → 3' direction? https://en.wikipedia.org/wiki/CpG_site
  13. MeSci

    Psychosocial Profiles of Adolescents with Chronic Fatigue Syndrome: Correlations with Fatigue Severity and FITNET Treatment Outcome

    More crap (Note highlighted bit): Source: Utrecht University Date: June 30, 2017 URL: https://dspace.library.uu.nl/bitstream/handle/1874/365826/Berkelbach van der Sprenkel, E.pdf Psychosocial Profiles of Adolescents with Chronic Fatigue Syndrome: Correlations with Fatigue Severity and...
  14. MeSci

    Report from CFSAC, June 20-21, 2018

    (Don't ask me anything - I just got this in my Inbox!) Report CFSAC 21-22 june 2018, https://www.hhs.gov/ash/advisory-committees/cfsac/meetings/2018-06-20/ Where... * June 20 - Audio Recording https://www.hhs.gov/sites/default/files/lg/2018-06-20-cfsac-meeting-audio-day-1.mp3 - Transcript...
  15. MeSci

    “Potentially harmful and old-fashioned chronic fatigue treatments under review” ABC Australia article and TV program

    What about the quote "one in two can experience mental health problems as a result of their fatigue symptoms"? Where on earth did that come from?
  16. MeSci

    Gluten-free need not taken seriously by radio prog

    Copied previous messages: "arewenearlythereyet said: ↑ Here it is https://www.ncbi.nlm.nih.gov/pubmed/28765272 I think I have the full report at work...the calories in vs out was challenged by a theory about carbs and insulin etc but that was proven to be insignificant in the scheme of...
  17. MeSci

    Gluten-free need not taken seriously by radio prog

    Won't the quality of excreta be important? For example, a lot of us suffer from digestive problems, some of us have diarrhoea, etc.
  18. MeSci

    Gluten-free need not taken seriously by radio prog

    I haven't checked my calorie intake lately (have some problems with numeracy since my possible mini-stroke a couple of years ago) but I think I estimated it after going gluten-free and it was at least as high as before. I have a lot of unsaturated fat, especially coconut oil, so that must...
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