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Gary or someone else from the ME Association - Emma Donohoe is listed as 'Amanda Donohoe' by her photo on the page https://www.meassociation.org.uk/2018/08/gary-burgess-reflects-on-series-one-of-the-me-show-and-shares-some-of-the-feedback-from-listeners-14-august-2018/

I was assaulted by a similar cacophony last time I was in hospital, when I was in an isolation room - I think there were 4 different beeps going off at irregular intervals, which eventually drove me to the window, wondering whether there was a way to jump out and end it all! (I was in for a...

Doesn't this conflict with what Ron Davis found? I can't think where it is - I think it's on this site somewhere, and also on Phoenix Rising - he found a lot of differences.

The ME Association has been working for some time with Dr Karl Morten and the research team at Oxford who have recently been honing their approach to the study of metabolomics in ME/CFS. Before embarking on a new study utilising samples from the ME/CFS Biobank for the ME Association, they have...

Pasted as received apart from formatting: Source: Solve ME/CFS Initiative Date: August 30, 2018 Time: 17:00-28:00 UTC URL: https://register.gotowebinar.com/register/141286537318847234 Ref: https://www.youtube.com/user/SolveCFS Back to School Part 1: 504 Education Plans and Medical...

I note that everyone except @Cinders66 here appears to be male (sorry - not sure about @Sidney), and wonder whether this is a factor in the effectiveness of the drugs. Males and females have very different chemical make-ups according to some researcher (can't remember who). It's one thing that...

I didn't notice anything particularly controversial in CS's talk, but the link https://www.nhs.uk/conditions/chronic-fatigue-syndrome-cfs/ (Learn more about CFS) was definitely dodgy.

I don't know any more about this - just copied from an incoming post: Title: The American Psychiatric Association Publishing Textbook of Psychosomatic Medicine and Consultation-Liaison Psychiatry, Third Edition Chapter: 25. Chronic Fatigue and Fibromyalgia Syndromes Authors: Michael C. Sharpe...

Very good - has it been published (yet)?

I don't know what happened when I was trying to upload a photo! I'll try again. It's a photo of my head/hair in 2016, after the hair fell out. It grew back again.

I had quite a lot of hair coming out a few years ago, but it seems to have grown back, and also greying seems to have slowed considerably (or perhaps it's just growing more slowly?). I henna my hair so it's not obvious. I've had ME for over 20 years and am 65. I'd urge caution over thyroid...

Source: Brighton & Hove Independent Date: August 7, 2018 Author: Amy Horsfield URL: https://www.brightonandhoveindependent.co.uk/news/health/scientist-joins-sussex-me-society-s-advisory-team-1-8593430 Scientist joins Sussex ME Society's advisory team...

Programme: Afternoon Edition Station: BBC Radio 5 Date: August 8, 2018 Time: 14:35 MET Ref: https://www.bbc.co.uk/programmes/b0bd75rp URL: http://www.bbc.co.uk/radio/player/bbc_radio_five_live Item: Severe ME Day

Well, it's had 1.7 k (1,700) views and 23 likes so far.

The link to a copy of Unrest has been deleted from this post as @JenB has confirmed that is was a pirated copy and asked that we don't share the link.

https://www.bbc.co.uk/programmes/b09pmbdp This programme is on at 1900 today, but it can be listened to already: Dreams of Public Resting Spaces Four Thought Theatre maker Raquel Meseguer, who lives with chronic pain, has a vision for public resting spaces. Challenging our etiquette and...

I know there is mesh available - I'm just not sure of my current ability to put it up. I've even got one saved in my ebay account, but that's one that has to be cut to size. I could afford something better now, but my cognitive ability is generally not very good at the moment.

I can't open downstairs windows due to insects of all types swarming in until the house is full of them. I simply can't catch them all, so they usually end up dying between the ceiling-curtains and the glass ceiling in the conservatory, after exhausting me trying to catch them. (I live next to...

I wasn't sure where to put this as it was in a Psychology magazine but it looked more scientific than that. Source: Frontiers in Psychology Preprint Date: July 26, 2018 URL: https://www.frontiersin.org/articles/10.3389/fpsyg.2018.01468/abstract Visual aspects of reading performance in...

Hope this hasn't been posted anywhere else. I'm not very with-it at the moment. Source: National Institutes of Health Date: August 2, 2018 URL: http://list.nih.gov/cgi-bin/wa.exe?A0=NIH-MECFS_INFORMATION News from NIH: Telebriefing audio and transcript now available...