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  1. MSEsperanza

    Cochrane review and the PACE trial

    Do rehabilitationists in general use their imagination much to think of other forms of rehabilitation than exercise? Yet, are the authors of this review actually rehabilitationists?
  2. MSEsperanza

    Cochrane review and the PACE trial

    Just to broaden the perspective: Not only the Cochrane "Common Mental Disorders Group" but also the Cochrane "Multiple Sclerosis and Rare Diseases of the CNS Group" appears to have questionable standards of assessing research quality: Heine M, van de Port I, Rietberg MB, van Wegen EE, Kwakkel...
  3. MSEsperanza

    Germany: Restraining psychiatric patients requires court order

    I think that's right, because the Council of Europe is not identical with the Council of the EU: wikipedia: "Unlike the EU, the Council of Europe cannot make binding laws, but it does have the power to enforce select international agreements reached by European states on various topics. The...
  4. MSEsperanza

    Germany: Restraining psychiatric patients requires court order

    Germany: Restraining psychiatric patients requires court order https://www.dw.com/en/germany-restraining-psychiatric-patients-requires-court-order/a-44809053
  5. MSEsperanza

    Objective assessment of diverse types of MS related fatigue and fatiguability

    @Woolie, I thought this article might be of interest for your question posted in an related thread re: MS related fatigue: from: Rudroff, Thorsten, Kindred, John H, Ketelhut, Nathaniel B.; Fatigue in Multiple Sclerosis: Misconceptions and Future Research Directions, Frontiers in Neurology 2016...
  6. MSEsperanza

    Questionnaire on ME/CFS

    I just wonder why the questionnaire lists bacteria and fungi infections as "viral".
  7. MSEsperanza

    Objective assessment of diverse types of MS related fatigue and fatiguability

    Unfortunately some of the listed papers do not seem to reflect the premise I found so promising: to differentiate clearly between specific types of fatigue when writing about fatigue. Have to read them yet. The abstract and first paragraphs of one of the now added papers however sound quite...
  8. MSEsperanza

    Objective assessment of diverse types of MS related fatigue and fatiguability

    Thanks to all who have contributed to this thread so far. I hope I will be able to come back to some questions soon. In the meantime, just to get a more complete picture, I added the following paper to the OP: The Fatigue Scale for Motor and Cognitive Functions (FSMC): validation of a new...
  9. MSEsperanza

    Simon Wessely Didn't Want His e-Mail On A Blog - Here It Is on Hole Ousia

    @Hole Ousia, speaking of transparency and ethics – sink‘s links to the Science Media Centre also deserve attention IMO. * recommendations for a new function at the Science Media Centre (2010) Bithell https://www.s4me.info/forums/health-news-and-research-unrelated-to-me-cfs.29 * Issues reported...
  10. MSEsperanza

    A general thread on the PACE trial!

    Thanks, @Woolie . I noticed that the trial protocol (2007/BMC) called PACE a "randomised controlled trial" (RCT), but in the title of the Lancet paper ("The Paper" 2011) PACE was downgraded to a "randomised trial". (Links to the papers...
  11. MSEsperanza

    A general thread on the PACE trial!

    Today's PACE-Trial-For-Beginners-Quiz So, I skimmed the Cochrane thread, bookmarked some threads in Woolie's wonderful library, digged into this fabulous general thread on the PACE trial, and ended up with two surprise questions for today: 1) What does the acronym "PACE" stand for? 2) Why is...
  12. MSEsperanza

    Submission to the Scottish Parliament by Jonathan Edwards

    Nor am I. I forgot about the S4ME-Cochrane thread and just noticed that some of my vaguely posed questions already had been addressed there. Parts of my concerns will move to that thread soon. I highly appreciate your endeavor and find these reactions more than sloppy. What I tried to ask...
  13. MSEsperanza

    Submission to the Scottish Parliament by Jonathan Edwards

    Thank you for this great document, @Jonathan Edwards I have written my comment in portions and come late to this discussion, not having read all comments. Thus, anticipated apologies for a likely disjointed and maybe redundant reply. In addition to the points highlighted by earlier comments...
  14. MSEsperanza

    Petition "After the debate - Call for Change"

    I know this part of ME too well. If there's a place you don't have to feel embarrassed, it's here on the forum though. We even have a thread giving comfort about these special ME moments... https://www.s4me.info/threads/me-moments.985/ :hug:
  15. MSEsperanza

    Hausotter about CFS/ME

    Neurasthenia still exsists as one of the WHO codes, both in the American and in the German version. http://apps.who.int/classifications/icd10/browse/2016/en#/F48.0 A psychiatrist who wants to see depression, will diagnose depression. It's almost impossible to prove absence of depression. Same...
  16. MSEsperanza

    Hausotter about CFS/ME

    Still being crashed, just dropping by because the name "Hausotter" alerted me. Found him mentioned as a medical expert witness in a legal case about disability pension (his opinion , along with other "expert" opinions, in favor of the insurance company was invalidated). All three medical...
  17. MSEsperanza

    Michael Sharpe skewered by @JohntheJack on Twitter

    Where? :emoji_crescent_moon:
  18. MSEsperanza

    Michael Sharpe skewered by @JohntheJack on Twitter

    Just some PEM- brainstorming before going to bed again... 'I have no idea, it looks like a complete mess' Syndrome (NIILLCOMES) ? Postexertional Neuroimmune Symtptoms Exacerbation Syndrome (PENSES)? Postexertional Impairment Exacerbation Syndrome (PIES)? Neurological And Muscular...
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