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  1. MeSci

    UK Parliament: ME/CFS Announcements: Statement by Health Secretary Sajid Javid, 12 May 2022

    I note that there is only one conservative - one of the sponsors. Glad to see that Caroline Lucas, the Green, has signed. Perhaps somewhat at odds with her honorary patronship of the Sussex and Kent ME/CFS Society, although I can't search their website properly due to the lack of a search box...
  2. MeSci

    The Chronic Elephant blog by hellytheelephant

    I found it from clicking around after accessing the website from a previous message: https://thechronicelephant.blogspot.com/2022/05/disability-shame-tango.html
  3. MeSci

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    I've sent a slightly-altered version to my MP from my email account.
  4. MeSci

    United Kingdom: Sussex & Kent ME/CFS Society News

    I saw Professor Pinching in Cornwall, and found him very good, and understanding. He wrote a supportive letter to my GP, I believe. He was one of the main AIDS professors before that. https://meassociation.org.uk/2011/09/professor-tony-pinchings-farewell-message/
  5. MeSci

    Identifying and Managing Suicidality in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2021, Chu, Jason et al

    I seriously tried to kill myself after having ME for a year, although the distress was added to by the extreme distress of my all-time favourite cat disappearing, probably killed by hunt-supporting neighbours. I spent a month in hospital. I had to give up my house, having walked out of my job...
  6. MeSci

    ME/CFS SKeptic: A new blog series on the dark history of psychosomatic medicine

    My father had rheumatoid arthritis, and "repressed hostility, a domineering personality and a rejection of the feminine role in society" fits him very well! Except that the hostility wasn't very well repressed. That said, it was probably nothing to do with his rheumatoid arthritis!
  7. MeSci

    Crowdfunding: Trial By Error: Reporting on ME, CFS, ME/CFS, "Medically Unexplained Symptoms," and now Long Covid, April 2022

    Nearly there! $66,719 raised, 99% of target. https://crowdfund.berkeley.edu/project/31347
  8. MeSci

    Crowdfunding: Trial By Error: Reporting on ME, CFS, ME/CFS, "Medically Unexplained Symptoms," and now Long Covid, April 2022

    $65,262 raised, 97% of target. 2 days left. https://crowdfund.berkeley.edu/project/31347
  9. MeSci

    Crowdfunding: Trial By Error: Reporting on ME, CFS, ME/CFS, "Medically Unexplained Symptoms," and now Long Covid, April 2022

    $54,089 raised, 80% of target, 3 days left. https://crowdfund.berkeley.edu/project/31347
  10. MeSci

    Crowdfunding: Trial By Error: Reporting on ME, CFS, ME/CFS, "Medically Unexplained Symptoms," and now Long Covid, April 2022

    $50,604, 75% funded, still 4 days left. https://crowdfund.berkeley.edu/project/31347
  11. MeSci

    Crowdfunding: Trial By Error: Reporting on ME, CFS, ME/CFS, "Medically Unexplained Symptoms," and now Long Covid, April 2022

    Now $48,422, 72% funded, 5 days left. https://crowdfund.berkeley.edu/project/31347
  12. MeSci

    Covid-19 vaccines and vaccinations

    In February, the UK medicines regulator approved the first Covid vaccine based on an older, more established technology. Its developer, Novavax, has pitched it as an alternative for people reluctant to take newer mRNA-based jabs. But while it is now available in much of Europe, Novavax is still...
  13. MeSci

    Covid-19 vaccines and vaccinations

    Merged thread A new Covid vaccine has been approved for use in the UK by regulators. It is manufactured by Valneva, using more traditional technology - similar to how polio and flu shots are made. It contains a whole copy of the virus which has been inactivated, so that it can't cause the...
  14. MeSci

    Crowdfunding: Trial By Error: Reporting on ME, CFS, ME/CFS, "Medically Unexplained Symptoms," and now Long Covid, April 2022

    $10,779 raised (16% funded) 25 days left. UC Berkeley | Trial by Error
  15. MeSci

    Radio prog on walking with Guillain-Barre syndrome

    Radio 4's programme Ramblings yesterday featured a couple whose female half had Guillain-Barre Syndrome, and was walking again after being paralysed in a rare reaction to a flu jab. Ramblings - The Saxon Shore Way in Kent - BBC Sounds There's not much about the illness; it's mostly about the...
  16. MeSci

    Leg tensing up only at night

    I think that supplementing with quite a lot of calcium is what has helped me.
  17. MeSci

    I'm curious about lab testing for viruses (not COVID) Is this common where you live? If so, when did it happen?

    In the UK at least, doctors will say "It's probably a virus" if they don't know what's wrong with you!
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