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  1. MeSci

    Closed UK: DecodeME updates, was recruitment thread.

    Thanks, @Andy. For anyone else concerned, this advice presumably overrides your Friday advice: "if you haven't been notified by this time next week then it could be worth contacting the team to highlight the fact."
  2. MeSci

    Applying latent class cluster analysis & data mining methods to identify classes of CFS patients...predictive of treatment success, 2022, Clapperton

    "clinical trials support the effectiveness of cognitive behaviour therapy in terms of fatigue and physical functioning" !!!!!
  3. MeSci

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Oct 2022

    $39,651 raised (61%) Only 7 days left! https://crowdfund.berkeley.edu/project/33528
  4. MeSci

    Fibromyalgia and Chronic Fatigue Syndromes: A systematic review and meta-analysis of cardiorespiratory fitness and neuromuscular function...2022

    and this: Thirty-nine studies showed that patients had significantly lower peak HR than controls at the end of incremental exercise, even when normalized to age. There was a moderate-high effect size (SMD = -0.64, 95%CI = -0.77 to -0.50) and heterogeneity was classified as substantial (I2 =...
  5. MeSci

    Fibromyalgia and Chronic Fatigue Syndromes: A systematic review and meta-analysis of cardiorespiratory fitness and neuromuscular function...2022

    I found this surprising: Data from 11 studies showed that patients had significantly lower peak lactate values than controls (Z = 3.44, p = 0.00001), with a large effect size (SMD = -0.84, 95%CI = -1.33 to -0.36). Heterogeneity was classified as substantial (I2 = 80%). Studies with low risk of...
  6. MeSci

    Closed UK: DecodeME updates, was recruitment thread.

    Thanks, @Trish. Was it an email or a letter?
  7. MeSci

    Closed UK: DecodeME updates, was recruitment thread.

    I suspect it has been posted before, but how soon do we get notified that the sample has been received? I sent mine off on the 13th.
  8. MeSci

    A Brief Questionnaire to Assess Post-Exertional Malaise 2018 Cotler, Jason et al

    I'm not clear what is meant by 'soreness'. To me it is a superficial pain, e.g. from a graze.
  9. MeSci

    'You don't look sick is something I hear a lot' - BBC Nottingham

    An artist with a hidden disability which causes fainting episodes has used her work to challenge people's misconceptions. Chloë Burns was diagnosed with Postural Tachycardia Syndrome in her second year at Nottingham Trent University and takes tablets, including Ivabradine, for her condition...
  10. MeSci

    Closed UK: DecodeME updates, was recruitment thread.

    I think that the TV woman mistook the word 'causal' for 'casual' at 0.19! If only it were just 'casual'!
  11. MeSci

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Oct 2022

    $23,536 (36% of total needed) raised. 18 days left. https://crowdfund.berkeley.edu/project/33528
  12. MeSci

    Closed UK: DecodeME updates, was recruitment thread.

    I received my spit kit a few days ago, and finally managed to do it and post it today. It must have taken about 10-15 minutes to generate enough saliva.
  13. MeSci

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Oct 2022

    $21,625 raised. 20 days left. https://crowdfund.berkeley.edu/project/33528
  14. MeSci

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Oct 2022

    18,369 raised, 21 days left. https://crowdfund.berkeley.edu/project/33528
  15. MeSci

    Closed UK: DecodeME updates, was recruitment thread.

    I hope that ME-fog-proof instructions are also included in the package.
  16. MeSci

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Oct 2022

    I think they only come once a year, but it must add up cost-wise when you consider the number.
  17. MeSci

    Sore throats swollen glands

    My neck lymph nodes were swollen at times in early ME, but now they are swollen all the time.
  18. MeSci

    AAV-delivered gene editing for latent genital or orofacial herpes simplex virus infection reduces ganglionic viral load..., 2022, Aubert, et al

    There are millions of animals used before drugs are tested on humans. I have researched and commented a lot on this, for example: https://forums.phoenixrising.me/blog-articles/cancer-researcher-slams-requirement-for-animal-models.1689/ Regrettably I'm not well enough to research further. But...
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