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  1. MeSci

    UK House of Lords/ House of Commons - relevant people and questions

    Source: UK House of Commons Date: February 4, 2019 URL: https://www.parliament.uk/business/publications/written-questions-answers-statements/written-question/Commons/2019-01-28/213339/ Ref: http://www.me-net.combidom.com/meweb/web1.4.htm#westminster [Written Answers] Chronic Fatigue...
  2. MeSci

    A general thread on the PACE trial!

    In fact coeliac is not the only odd one out: https://www.s4me.info/threads/markers-of-non-coeliac-wheat-sensitivity-in-patients-with-myalgic-encephalomyelitis-chronic-fatigue-syndrome-2018-alaedini-et-al.3167/
  3. MeSci

    David Tuller: Trial By Error: Steve Brine's Troubling Claim in Parliamentary Debate on ME

    Do you mean Esther McVey? https://www.gov.uk/government/people/esther-mcvey
  4. MeSci

    UK House of Lords/ House of Commons - relevant people and questions

    Source: UK House of Commons Date: January 31, 2019 URL: https://www.parliament.uk/business/publications/written-questions-answers-statements/written-question/Commons/2019-01-23/211844/ Ref: http://www.me-net.combidom.com/meweb/web1.4.htm#westminster [Written Answers] Chronic Fatigue...
  5. MeSci

    UK House of Lords/ House of Commons - relevant people and questions

    https://www.parliament.uk/business/publications/written-questions-answers-statements/written-question/Commons/2019-01-28/213339/ Robert Halfon To ask the Secretary of State for Health and Social Care, what plans he has to support biomedical research into the diagnosis and treatment of ME.
  6. MeSci

    Petition: Review treatment of people with ME in Scotland

    Not sure if this is the place to post this, or whether it's appropriate: Source: Action for ME Date: January 30, 2019 URL: https://www.actionforme.org.uk/news/scottish-parliament-discussion-of-me-during-petitions-committee/ Scottish Parliament discussion of M.E. during Petitions Committee...
  7. MeSci

    UK House of Lords/ House of Commons - relevant people and questions

    Source: UK House of Commons Date: January 30, 2019 URL: https://www.parliament.uk/business/publications/written-questions-answers-statements/written-question/Commons/2019-01-22/211240/...
  8. MeSci

    BBC Radio Scotland with Stuart Murdoch and Dr Charles Shepherd, 30 January 2019

    Thanks - have listened now. On my computer/program (Firefox) it's from about 1:17:45-1:48:30.
  9. MeSci

    BBC Radio Scotland with Stuart Murdoch and Dr Charles Shepherd, 30 January 2019

    Where can I listen to it? I'm not on Facebook.
  10. MeSci

    UK House of Lords/ House of Commons - relevant people and questions

    https://www.parliament.uk/business/publications/written-questions-answers-statements/written-question/Commons/2019-01-29/214104/ Angela Crawley To ask the Secretary of State for Work and Pensions, what discussions she has had with the Secretary of State for Health and Social Care on the needs...
  11. MeSci

    David Tuller: Trial By Error: Steve Brine's Troubling Claim in Parliamentary Debate on ME

    I haven't read the whole thread yet, but just want to query something, where Dave says "“Patients can find themselves in a vicious cycle. Excessive rest in healthy individuals can have the following effects: Cardiovascular deconditioning Reduced exercise tolerance Muscle pain (may be delayed)...
  12. MeSci

    BBC Radio Scotland with Stuart Murdoch and Dr Charles Shepherd, 30 January 2019

    Not sure whether this makes it accessible to people elsewhere: WebRadio: https://www.bbc.co.uk/programmes/b055jkys?fbclid=IwAR1TgfuTf-Mn-_Syxl1P_iXJ4PHYzTm3W1bbGHynehQ3z7f_ruVT9Uag2sY
  13. MeSci

    UK House of Lords/ House of Commons - relevant people and questions

    Source: UK House of Commons Date: January 28, 2019 URL: https://www.parliament.uk/business/publications/written-questions-answers-statements/written-question/Commons/2019-01-23/211936/ Ref: http://www.me-net.combidom.com/meweb/web1.4.htm#westminster [Written Answers] Fibromyalgia...
  14. MeSci

    UK House of Lords/ House of Commons - relevant people and questions

    Source: UK House of Commons Date: January 28, 2019 URL: https://www.parliament.uk/business/publications/written-questions-answers-statements/written-question/Commons/2019-01-22/211239/ Ref: http://www.me-net.combidom.com/meweb/web1.4.htm#westminster [Written Answers] Personal Independence...
  15. MeSci

    Poll and discussion: Ear Problems

    :arghh: I hadn't heard of the daith, so looked it up: https://en.wikipedia.org/wiki/Daith_piercing
  16. MeSci

    Psychological and demographic factors associated with fatigue and social adjustment in young people with severe CFS/ME (2018) Chalder et al

    An alarming-sounding study ("Fearful beliefs about activity could be targeted using cognitive-behavioural interventions.")! Source: Journal of Behavioral Medicine Preprint Date: January 25, 2019 URL: https://link.springer.com/article/10.1007/s10865-019-00010-x Psychological and demographic...
  17. MeSci

    Patient Perspectives on Self-Management Technologies for Chronic Fatigue Syndrome (2019) Tabby Davies, Simon Jones, Ryan Kelly

    Source: ACM CHI Conference on Human Factors in Computing Systems 2019 Date: May 4-9, 2019 URL: https://researchportal.bath.ac.uk/en/publications/patient-perspectives-on-self-management-technologies-for-chronic- Ref: https://chi2019.acm.org Patient perspectives on self-management technologies...
  18. MeSci

    UK House of Lords/ House of Commons - relevant people and questions

    Source: UK House of Commons Date: January 24, 2019 URL: https://www.parliament.uk/business/publications/written-questions-answers-statements/written-question/Commons/2019-01-21/210666/ Ref: http://www.me-net.combidom.com/meweb/web1.4.htm#westminster [Written Answers] Social Security...
  19. MeSci

    UK House of Lords/ House of Commons - relevant people and questions

    https://www.parliament.uk/business/publications/written-questions-answers-statements/written-question/Commons/2019-01-23/211844/ Wera Hobhouse To ask the Secretary of State for Health and Social Care, what recent funding has been made available for research into myalgic encephalomyelitis...
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