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Excellent and to the point! One such scientist comments, PACE trial for chronic fatigue syndrome (still) being put through its paces: a reply I'm bringing the paper published by Michael Sharpe and colleagues [1] to your attention today in the interest of balance and peer-reviewed 'right to...

More fool them, they should be ashamed.........!

I take your point, but some of us do have our feet firmly in several arenas! I will do my best to persuade you I do know a bit about GM ( Monsanto tactics) and GM Watch's work...

Thanks to all for your views, including Tevor who has just written about the Reuters article which he has describes,".... believe me, this is a terrible piece....." (my emphasis) Trevor, "Repeating an allegation by an activist group with its own agenda in order to buttress a complaint strays...

I do believe @david30 is being trolled on FB re, Online activists are silencing us, scientists say Reuters March 2019 and I had had my wrists slapped on Faceache! .........(I made a comment about reuters journalist.) To my suggestion, think a good tactic would be to deflect the ME issue per se...

"Shaken by the Reuters article, IARC defended the integrity of its scientific approach. Its rules, explained the agency, require that it does not consider unpublished results, "be they those of the AHS or any other study". Its expert groups base their work exclusively on openly published...

Now you see the relevance to my drawing attention to this 1999 documentary. Do leopards change their spots? Community paediatrician Alan Stanton-Consultant Community Paediatrician, University Hospitals Birmingham -G D Committee 2019 https://me-pedia.org/wiki/Alan_Stanton Sick and Tired...

https://me-pedia.org/wiki/Sick_and_Tired_-_BBC http://news.bbc.co.uk/hi/english/static/audio_video/programmes/panorama/transcripts/transcript_08_11_99.txt I have downloaded and page numbered. It is highlighted pages 13-17. The good news, PS Young man is now 36 and much better, thankfully...

I consider my journey as a parent of a child with ME symptomolgy, is more akin to being in a tug of war with differing medical opinions surrounding you. The health visitor was spot on at an early age, allergy, intolerances, sensitivities; GP was a trial and the health visitor said her GPs never...

https://www.bbc.co.uk/sounds/play/live:bbc_radio_five_live Some of our children have hyper mobility. On BBC Morning there was a mum and daughter talking about FII and mixups that happened. They are doing an interview 5 minutes in. Today on BBC Radio 5 live, every parent's worst...

Great letter from qualified GP who knows her stuff! Met her in London at the NICE gatherings.......DrEReinhold Replying to @DrEReinhold @MECFSNews I tweeted that I hoped PACE would be discredited and tagged ben goldacre, not knowing his connection with SW. Within 3 days SW followed me on...

My son is grappling with this atm. He has not had energy to sort but new flat rules apply from April and it will cost more, even for back payments then I believe. (He was awarded DLA (higher mobility and care) and IB from the age of 16- as new rules relating to this IB group came in in 2000. I...

Sorry a bit slow today. Are you suggesting a summary rather than whole email? I posted the email complete so DT ( and others), can see the public LEA officers tasked with our children's situation. DT might need to issue an FOI at some point, but to whom? I did summarise the telephone...

ehttps://modalitypartnership.nhs.uk/self-help/bth/articles/2011/december/me-cfs-cause-of-school-absence NHS website - Study of chronic fatigue syndrome in children Chronic fatigue syndrome could affect one in 100 pupils, BBC News reported. The estimate is based on research that followed nearly...

Chap above mentioned EC..... I did not respond to that but kept it general. http://bathneshealthandcare.nhs.uk/childrens/community-paediatric-service/ Having a little look here.. OM Gooddness, it's a privitised service Virgin Care...

The net is closing, but no one seems to have been around.... Interestingly, this chap was in children's commissioning in 2015 and tasked to do a 'mini review' and related scoping exercise on "pushed out learners". I have read his stuff - nothing about sick kids- just "others'????? but he...

Just to let all know, I am making some headway!

Not sure as services have changed and been restructured since 2010/2011. I have contacted the parent Carer group who span this time frame initially. Softly, softly...... Don't want anyone closing ranks before we start! I have asked for info both as an involved exprofessional and a coordinator...

I agree, but the legislation and Statutory guidance says otherwise, and they often break all those rules. Thus any 'research' which can 'encourage' improved attendance, etc will be welcome 'cos it lets them off the hook- so they will argue. I am just looking at the 2016 Bath Commissioning...

In my professional experience, all children with chronic health problems and 'fatigue" would have to go first to a pediatrician, ( sometimes the 'school doctor'/ community paediatician before any other statutory services ( including specialist ME and CFS Clinics) would accept the referral...