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Scandinavian Journal of Primary Health Care By The Oslo Chronic Fatigue Consortium Chronic fatigue syndromes: real illnesses that people can recover from Abstract: The ‘Oslo Chronic Fatigue Consortium’ consists of researchers and clinicians who question the current narrative that chronic...

Yes. Maybe the Research council has highlighted this due to all the criticism to the LP study that I guess they've also supported?

:laugh:

The University in Bergen has written an article about the allocation. Professor Karl Johan Tronstad comments: - This allocation means a lot for our research on ME/CFS. The goal for this project is to achieve new knowledge about the mechanisms behind the disease, og to look for biomarkers which...

That's wonderful news!!! :party::party::party:

Financial Times Wait goes on for effective long Covid treatments Quotes: Long Covid took 80 healthy life years per 1,000 residents — a preferred way of measuring quality of life — in the first two years post-infection, compared with 50 for cancer and 52 for heart disease, according to...

Just including from the google translated letter reasoning why this was "necessary": "You were recently included in the study. According to information from some people involved in the study, you have over time […] been active in social media with criticism of a biopsychosocial understanding of...

This article from Chemical and Engineering news by Shi En Kim was so thorough and well researched, I thought it deserved a thread of its own. quote: About 10% of those who contract the virus end up with several of long COVID-19’s 200 documented symptoms. The most debilitating of these include...

It's so good to see that it seems to resolve in about half, if I'm reading the graph right. Had a look at the report and on the second page they present a general framework for Post-COVID Conditions. They divide it in two: Post acute sequelae of SARS-CoV-2 infection - System specific pathology...

This was a good idea @Hutan and thank you for making this list! There's another good organisation in Norway for parents with children with ME called ME-foreldrene (The ME parents): https://www.me-foreldrene.no/ if you want to add it to the list.

ScienceAlert New Blood Test For Chronic Fatigue Syndrome Has 91% Accuracy quote: The blood test differentiates between the properties of a type of blood cell called peripheral blood mononuclear cells (PBMCs) in people with and without ME/CFS, using a technique called Raman spectroscopy and an...

ScienceAlert Viral Origins of Chronic Fatigue Syndrome May Be Hiding in Plain Sight Quote: Hanson says before SARS-CoV-2 emerged, the ability of RNA viruses to persist in tissues for long periods "was largely ignored". But now, with the growing recognition of post-viral illnesses, researchers...

NPR It's likely you know someone dealing with long COVID Excellent audio interview with Hannah Davis and Ed Yong on Long Covid and also a lot about ME. Duration 24 minutes.

CIDRAP Long-COVID patients with severe fatigue report little relief by 20 months quotes: The authors noted that some long-COVID patients with severe fatigue and exertion intolerance also meet the criteria for ME/CFS, a neuro-immunologic disease characterized by these symptoms and...

eClinicalMedicine Long-term symptom severity and clinical biomarkers in post-COVID-19/chronic fatigue syndrome:results from a prospective observational cohort Legler et al Summary Background Post-COVID-19 syndrome (PCS) is characterised by a wide range of symptoms, primarily fatigue and...

TIME Long COVID Recovery Remains Rare. Doctors Are Struggling to Understand Why quotes: Since August 2020, David Putrino, director of rehabilitation innovation at New York’s Mount Sinai Health System, has helped treat more than 3,000 people with Long COVID. These patients, in his experience...

The Conversation Existential crisis: how long COVID patients helped us understand what it's like to lose your sense of identity and purpose in life quotes: Over an 18-month period from October 2021, we conducted three rounds of interviews with 80 people from diverse age groups, geographical...

Tweet from STAT: “We estimated that there were approximately 10 million people in the first year of the pandemic in the US who are in this predicament: who got Covid, got long Covid, but tested negative for Covid," said @IgorKoralnik

STAT (Paywalled) New study suggests people who teste negative for Covid-19 can still develop long Covid quote: Of the 103 million confirmed cases of Covid-19 in the U.S., an estimated one-thirdhave led to long Covid — a condition that ranges in severity, but can be debilitating. A new study...

Neurology - Neuroimmunology & Neuroinflammation SARS-CoV-2-Specific Immune Responses in Patients With Postviral Syndrome After Suspected COVID-19 Abstract Background and Objectives Millions of Americans were exposed to SARS-CoV-2 early in the pandemic but could not get diagnosed with COVID-19...