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What were they?

Yes, through sophistry. The sort of thing that any health authority should see right through. They claim as long as the patient uses the technique and follows the practitioner's advice then there is no harm or downside. That assumes that their pre treatment assessments is 100% accurate at...

From the quote in @MSEsperanza 's post If a treatment, any treatment, is effective then it has the ability to harm as well as do good. People are very different. I have known people to have bad adverse reactions to drugs considered to be very safe. The mind, emotions and personality are...

I doubt it. LP is a proprietary "product" and one condition of undergoing LP is that you agree not to discuss the therapy or what takes place. I'm assuming they'll also be screening individuals before accepting them.to the research in the way they usually do with people signing up to the...

Any bets on whether there'll be any discussion of people living in poverty, of the detrimental effects of dealing with a brutal benefits system.....you know, some of the issues where their input could actually be of some use.

Definitely. I would like to see some absolute definitions of recovery, agreed by patients, where there is zero room for interpretation. For example - Full recovery - back to as they were before becoming sick. Recovery limited by age/length of illness - due to length of illness and the aging...

Let me just correct that bit. "Functional somatic symptoms refer to physical symptoms that cannot be have not yet been fully (bio) medically explained." Right. To anyone whose intelligence level is even marginally higher than that of a dead potted plant that should be a bit of a red flag...

Presumed. That's the trouble right there. Science should be very clear about the assumptions it makes. Just because medicine likes to fit diseases into neat pigeon holes - endocrinologist for this, rheumatologist for that, neurologist for the other and if you need to see too many it's the...

I agree but I worry the flip side of this is that instead of understanding and practical support this could be interpreted by some as patients saying the need the interventions designed by Chalder and Ross Morris. Be careful what you wish for and word it very carefully.

I agree with what you say @rvallee, but sadly, sometimes these folks have very loud voices. I agree. Unfortunately I have also been in the position where the conversation has effectively been shut down because, by playing the victim, the willing "past trauma" patient insists that their case...

Like @Hutan I agree with most of what you say, but I'm sorry to say I have met patients who do know what the BPSers mean, they do understand the implications and wholeheartedly agree and embrace it. I have met some in person and online. More than happy for the whole thing to be down to &...

So, if this is the case, why do we feel ill during activities we look forward to and enjoy? Or where we can do an enjoyable activity experience delayed PEM? As a youngster I had several flare ups of an ongoing condition which caused me to be bedbound for a month or so at a time. When it was...

This is like a flashback to the 90's for me. The idea around then was that patients were seeking "validation" and that somehow labelling their condition gave them that validation & reinforced their belief that they were ill. As @rvallee points out, who wants a label? The problem is the...

Oh. Well, that's okay then. :(

But how many patients attending the ER having heart attacks, actually realize they are having heart attacks? I know of one person who routinely suffered severe indigestion and heartburn. They simply thought their digestive issues had gotten worse when they were actually experiencing a series...

I can see where you're coming from because this is how I thought of it when I became ill. However I wasn't deconditioned to start with. I swam twice a week 50*25m lengths in 45 minutes, I also did muscle toning classes. I was fitter than most. I bought into this idea, in part, because I was...

Excellent! Thank you so much @PhysiosforME :thumbup:

May be of use to people living with allergies, eczema & asthma https://www.allergyuk.org/get-help/resources/1225-coronavirus-and-allergy-faqs

yep ,I agree this right here is one of the big problems. Patients should not need to be educated in how to get the most out of their appointment with a healthcare professional. This is and should be the healthcare professional's job and in a lot of cases it is impossible to do that properly...

Yep. In the evening, especially as it gets to 11pm, I become alert. Drives me up the wall because it's the time I am best able to do cognitively challenging tasks but if I do I can forget about sleeping and will feel terrible the next day. If only I could feel like this earlier in the...