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    UK - Resources for help getting food during quarantine and other supermarket related problems

    Oh sh**! Has this happened before? Mine is always paid bang on time - in fact it hits my bank account the day before it's due.
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    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I think it could be read either way. It is true that many docs already are dismissing people with ongoing symptoms. I certainly accept it is also highly likely given some of the other things he's said that he is dismissing it too.
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    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I disagree -he says: "This matters, says Prof Garner, because “some doctors and families are dismissing people who are quite unwell with ‘post-viral exhaustion’” when it fatigue could still be a symptom of the coronavirus itself." I agree the next paragraph he is saying patients might...
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    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Apart from the "because we know the cause bit" I think Prof Garner does have a point in the included quote. Given how much that is still unknown about covid, I wouldn't want to see patients being told they have ME within a few weeks of being ill. If they are getting recurring symptoms of...
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    A general thread on the PACE trial!

    The article doesn't seem to be available at that link anymore. Edit - the Herald article originally posted by Sly Saint and quoted by Tom Kindlon I mean. Sorry, for some reason having issues with quoting. Brain fog I suspect.
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    Cancer-related fatigue and functional impairment – Towards an understanding of cognitive and behavioural factors: Hughes, Chalder et al May 2020

    So, we'll ignore the myriad of reasonable possible explanations, including - They were more severely affected by side effects, including fatigue, the first time round and were understandably concerned - They had no support at home, knew what a struggle they'd be facing - They have cancer & a...
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    Article: The hidden links between mental disorders

    I liked @Barry's post but also want to let you know I don't find mental illness remotely funny. I liked the post because I find it ironic that while the likes of the BPS cabal are pushing for mental health treatments for an ever increasing range of conditions and aim to use mental treatments...
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    United Kingdom: Optimum Health Clinic (Alex Howard)

    Yes, that's all very well of them to give people cards saying that, but context..... What if you're in a meeting with your boss, by phone or otherwise, who is annoyed that you're not back to work, or you're not back full time and you see something really funny. It might be a good idea to...
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    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    And all of it based on the assumption - I'd love to know how they define effective here. As far as I'm aware the numbers do not add up to value for money and if it was a drug NICE would probably refuse it on those grounds alone.
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    United Kingdom: Sussex & Kent ME/CFS Society News

    Certain members on here have taken the time to write polite letters explaining the issue. She doesn't seem interested in hearing it, or concerned that she is asking for things a majority of ME patients might not want - apart from Colin & his cronies.
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    My mom is limited by a disability but still shows up in all ways that matter-Washington Post article

    Good article. The website offers the option of limited access for free. Reading it and the way she describes how other people's ignorance and judgement of her Mom's illness made life much harder than it needed to be, it struck me that, on the one hand society seems to view the disabled...
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    Contribution of individual psychological and psychosocial factors, Dubbo Infection Outcomes Study, 2019, Cvejic, Hickie et al

    Neuroticism and the sense of loss of control is generally seen as a bad thing in terms of recovery. I can see some reasons why but isn't there also a flip side for some? For those feeling a loss of control complying strictly with a treatment regime, assuming it isn't making you worse like GET...
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    Updated: PACE - Part 3: Criteria Video

    Really excellent , it's very clear. Great work! Thank you @Adam pwme :thumbup:
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    Contribution of individual psychological and psychosocial factors, Dubbo Infection Outcomes Study, 2019, Cvejic, Hickie et al

    I agree with your post above @spinoza577, but this is dodgy ground, I think. Psychological and social aspects may make some difference - for example - if you live in poorly maintained housing that might have dampness, mould or infestation and can't afford to move somewhere better you might...
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    Who is Simon Wessely?

    Malcolm Aylward? I think that should be Mansel Aylward https://www.me-pedia.org/wiki/mansel_aylward
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    Contribution of individual psychological and psychosocial factors, Dubbo Infection Outcomes Study, 2019, Cvejic, Hickie et al

    So the eminent Sir Simon is saying that not only is it a possibility for at least some viruses to enter the brain, this may pose increase risks of ongoing ill health. It seems reasonable to assume depending on the areas of the brain affected and the specific virus involved, different ongoing...
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    Contribution of individual psychological and psychosocial factors, Dubbo Infection Outcomes Study, 2019, Cvejic, Hickie et al

    Based on Hutan's initial post - It seems to me that simply assessing someone's mental state when they are ill may alter the response simply by making someone think more their symptoms and the inconvenience and possible worry caused. Another issue is that we don't have any data from these...
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    Lightning Process study in Norway - Given Ethics Approval February 2022

    I had a go and it seemed to accept my signature. edit - so presumably okay for people outside Norway to sign
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    Solve ME/CFS Initiative's ME/ CFS Patient Registry: You + M.E.

    I was the same and I was about 30 when diagnosed. At one point I was fortunate enough to see a really good physio privately. She got me to focus on my symptoms rather than try to ignore them. The idea was that if I couldn't identify the symptoms be it pain, dizziness, weakness or fatigue than...
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