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I hope so too. However this involves an invasive procedure, the blurrying of the fibromyalgia case definition and the lack of medical home are all barriers to a replication study.

Abstract Fibromyalgia (FM) is a syndrome characterized by widespread muscular pain, fatigue and functional symptoms, which is known to be difficult to diagnose as the various symptoms overlap with many other conditions. Currently, there are no biomarkers for FM, and the diagnosis is made...

I wasn’t present at the meeting, and i missed a couple of presentations that were available online. There was one presentation where the presenter, a canadian physician, said you could heal yourself through food. (I have big doubts about that) They also mentioned they had a holistic program...

The conference has wrapped up, there is this tweet from the institute that takes care of ME at the Canadian institutes for health research. Please like and retweet. This person may well be an agent of change for all of us.

Ugh.

Today was dedicated in priming physicians new to the field in understanding the illness. It was basically ME101. Tomorrow there will be a deep dive into the research. Most of the research presentations will be reserved to physicians and researchers. There will be a separate agenda for patients-...

What’s the question?

Exploring the Diagnostic Potential of Immune Biomarker Co-expression in Gulf War Illness Link to paper here * Patients with ME are control in this study Authors: Gordon Broderick, Mary Ann Fletcher, Michael Gallagher, Zachary Barnes, Suzanne D. Vernon, Nancy G. Klimas Abstract Complex...

That is a tragedy, @mango this is the experience I have in my region too. It allows health system to disregard science and to forego researching this further. It is also a dead end.

Epinephrin in the freezing is what most people with ME react to. Considering your current condition, i would recommend you ask the dentist to freeze you with plain lidocaine. (Edit to add: the reaction I have had to epinephrin was 3 days of horrible migraines and a 3 weeks long horrendous...

Certainly i was not suggesting to drain the baby too. I was suggesting that continuing to accept unhelpful concepts such as ME being an environmental illness is just as unhelpful as suggesting that ME is a psyciatric illness. While folks may have appreciated the care they may have received at...

First i need to say i am not from Ontario, and my care will not being affected by saying what I say. Patients with ME in Ontario are horribly served. There is only one medical-based clinic for the most populated area in Canada, and just a few doctors seeing patients from that clinic. The...

However mold illness is not ME.

The question though is not ‘is Me triggered by the environment’, it’s Is ME and environmental illness.

Stop the harm! Stop the stigma! Canadians should not accept to have ME and FM in another stigmatizing prison that is hard to get out of. They need to get it riht from the get go. For all the years the Environmental clinic has existed, absolutely no progress has been made. Patients are still...

The recommendations of the report are good but the persistance of calling ME an environmentally -linked illness or environmental illness is wrong, stigmatizing and harmful. There is no need to segregate these diseases in a label that doesn’t serve patients well. Assuming that it is an...

This ‘scam’ have been going on for decades and is the reason why there has been no progress in Canada in a very long time. ‘Parking’ full diseases into a shady, unfunded corner of medicine would do that. It is very shameful.

I appreciate your comments @Jonathan Edwards . I am asking because there is an ’Environmental illness task force’ report circulating right now for patients to comment to, in the light of the upcoming Montreal conference. This Ontario based task force is advising the government on...

While I agree with you some, I was referring to services who took care of the particular diseases. Endometriosis (en-doe-me-tree-O-sis) is an often painful disorder in which tissue that normally lines the inside of your uterus — the endometrium — grows outside your uterus. Endometriosis most...

Will do, thanks. (I could not change the poll question though)