It is worse than that. I have been trying to get together articles for a post but have had a crash, but the likes of Stone and others were much less dogmatic in 2008 than in what they write now, so things that were accepted as disease then with complicated tests are now being called FND with...
Eye movements have a particular problem here. I saw a documentary recently about an eye disease looking at children. Most of these children had been diagnosed with autism or ADD and ere very clumsy but this doctor had got them to do pictures of what they could see and it was really very little...
I've never understood the link with depression. They ignored all the symptoms which made ME different then said what was left was the same as depression yet even that does not work. Depression is a terrible disease because nothing seems worthwhile but people with ME are enthusiastic to do as...
It has never made sense to me why everyone was so keen to get rid of ME as a distinct disorder. Right from the start it had features that were unknown in any other disease - the variability of symptoms and the abnormal response to exercise.
This is a description of typical EBV infection which the Americans were obsessed with at that time. Stephen Straus was brought into the CDC and given overall control of the Incline Village outbreak because he was an expert in EBV. The disease was originally thought to be chronic epstein barr...
I often wonder why people don't dread ME. I suspect it is just too scary so it is easier to think people are exaggerating. A disease which can appear out of the blue and turn your healthy active child into a bed ridden tube fed invalid is just too much to contemplate. That you will then be...
Many of the doctors I have seen have been caring but they are taught certain things as facts and never revisit them. Instinctively they know that dismissing patients is not why they went into medicine.
This sort of article soothes those doubts by saying that it is the way it is being done which...
Very few people die of actual MS. The mortality comes from the same reasons as it does in ME mainly the consequences of immobility. One notable exception is when the muscles of the gut become paralysed.
I have been going to an MS therapy centre since 1994. In those days MS was seen as a death...
This is one of the issues I have with FND. They treat it with physio and CBT to persuade patients that there is no actual disease.
There seems no reason to think that the psychological treatments add anything. Personally I would not class therapeutic massage as a complementary treatment. They...
i had problems with hypoglycaemia for years. it was very frustrating as it cut in when i felt able to do something. Well enough to take the kids for school clothes, yay but by ten to twelve I hardly knew where i was. I was assured this was anxiety but I am now diabetic (which I think is related...
He is the one who compared it to neurasthenia. The victorians felt it was due to their version of modern life and city living but they were a long tie ago, idiot.
For what it is worth, high levels of stress make my me feel better. I believe that I work on adrenalin (or something, it would be good to have it tested). When I first read about this idea it explained many things about my illness I could not work out before.
I was once in bed feeling too sick...
We do not know if our fatigue is a protective response against a problem with our biology the way it is in things like flu. If it is, stimulants could be dangerous, think of racing cyclists who die after taking cocaine to keep them going.
If it is a switch that is stuck in the on position they...
Microbes are so interesting and change all the time yet they are almost taken for granted by many medical people as if they were something that was a problem in the past but not any longer.
It was strange the way scarlet fever was a problem when i was a child but I never heard of anyone having...
After the birth of my first child I experienced deep black depressions. The first few times I thought it was a reaction to my circumstances which were not very good at that point. Then I noticed the pattern so when it happened after that I treated it like a pain and just endured until it went...
What it shows is that basic physiology of mammals is completely known. It may be a long time before the relevance to ME treatment can be worked out, but it gives the lie to medically unexplained as if everything was already discovered.
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